Thank you all so much for your much needed information and support with this. I didn't think I would find such support (very needed support) from a web site. My daughter's name is Jordan and she is a twin she has a brother Jacob and even if she does not have this I would love to donate to research to help find a cure for this. If anyone knows how to go about doing that please let me know and I will be sure to let everyone know how our test goes. My dr said we should have auth from the insurance co by Monday and then I will get her up to Children's Hospital as soon as they allow. Her ped said she would have the results the very next day!
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Please Help, Need Info
- Thread starter MsCali24
- Start date
Thank you all so much for your much needed information and support with this. I didn't think I would find such support (very needed support) from a web site. My daughter's name is Jordan and she is a twin she has a brother Jacob and even if she does not have this I would love to donate to research to help find a cure for this. If anyone knows how to go about doing that please let me know and I will be sure to let everyone know how our test goes. My dr said we should have auth from the insurance co by Monday and then I will get her up to Children's Hospital as soon as they allow. Her ped said she would have the results the very next day!
You can find any info you want about CF at cff.org
Let us know how the tests turn out and we are always here for support if you need us! Unfortunately, the CF family is a fairly large one but we are very supportive for each other and it's not a family you want to join, but when you do, it's a good one to have!
Let us know how the tests turn out and we are always here for support if you need us! Unfortunately, the CF family is a fairly large one but we are very supportive for each other and it's not a family you want to join, but when you do, it's a good one to have!
You can find any info you want about CF at cff.org
Let us know how the tests turn out and we are always here for support if you need us! Unfortunately, the CF family is a fairly large one but we are very supportive for each other and it's not a family you want to join, but when you do, it's a good one to have!
Let us know how the tests turn out and we are always here for support if you need us! Unfortunately, the CF family is a fairly large one but we are very supportive for each other and it's not a family you want to join, but when you do, it's a good one to have!
I wish my doctor had erred on the side of caution. My son's diagnosis came much later than it should have because of an insensitive doctor. He was 3 but went through a lot of suffering for a year and a half before we FORCED our doctor to do some kind of testing. If your daughter has CF, then your doctor will be saving you and your daughter a LOT of pain by diagnosing her early. Rest assured, the sweat test is completely painless so your daughter will not be put through anything traumatic. There was no family history for CF in mine or my husband's family either. You are so lucky to have a concerned and attentive doctor. I pray that your daughter's tests come back normal. But please do go through with the test (and make sure it is done at an accredited CF center).
Good luck
Jena
Good luck
Jena
I wish my doctor had erred on the side of caution. My son's diagnosis came much later than it should have because of an insensitive doctor. He was 3 but went through a lot of suffering for a year and a half before we FORCED our doctor to do some kind of testing. If your daughter has CF, then your doctor will be saving you and your daughter a LOT of pain by diagnosing her early. Rest assured, the sweat test is completely painless so your daughter will not be put through anything traumatic. There was no family history for CF in mine or my husband's family either. You are so lucky to have a concerned and attentive doctor. I pray that your daughter's tests come back normal. But please do go through with the test (and make sure it is done at an accredited CF center).
Good luck
Jena
Good luck
Jena