Hiya, I just really need some advice as my cf team make it very hard to understand sometimes. I was dianognosed with cystic fybrosis at 2 and half months old, Im 19 years old now and I live in glasgow, I stopped all my medications when I was 16 years old, what i dont get is that my health has been perfectly fine and i havent been hospitilised once or need to see my cf team, is there any possibility i could have been diaongnosed wrongly?? How could i go about getting tested again?? how do they test for it??
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- Thread starter olive
- Start date
Hiya, I just really need some advice as my cf team make it very hard to understand sometimes. I was dianognosed with cystic fybrosis at 2 and half months old, Im 19 years old now and I live in glasgow, I stopped all my medications when I was 16 years old, what i dont get is that my health has been perfectly fine and i havent been hospitilised once or need to see my cf team, is there any possibility i could have been diaongnosed wrongly?? How could i go about getting tested again?? how do they test for it??
Hiya, I just really need some advice as my cf team make it very hard to understand sometimes. I was dianognosed with cystic fybrosis at 2 and half months old, Im 19 years old now and I live in glasgow, I stopped all my medications when I was 16 years old, what i dont get is that my health has been perfectly fine and i havent been hospitilised once or need to see my cf team, is there any possibility i could have been diaongnosed wrongly?? How could i go about getting tested again?? how do they test for it??
AleksandraKaczynska
New member
The test that really counts in the sweat test (at least in Europe) - then genetic.
There are some mutations of cf that are slow to develop but it doesn't mean nothing is going on.
Think about talking to your cf team, asking for a cheque up again.Maybe say that you need this to convince yourself to take up the treatment again.
If your genetic test comes out clear and the sweat test shows you have cf you should take your health seriously. It's much better to stay healthy then go through hospitals and in perhaps 10 years or so - have all the problems you hear about connected with cf.
There are some mutations of cf that are slow to develop but it doesn't mean nothing is going on.
Think about talking to your cf team, asking for a cheque up again.Maybe say that you need this to convince yourself to take up the treatment again.
If your genetic test comes out clear and the sweat test shows you have cf you should take your health seriously. It's much better to stay healthy then go through hospitals and in perhaps 10 years or so - have all the problems you hear about connected with cf.
AleksandraKaczynska
New member
The test that really counts in the sweat test (at least in Europe) - then genetic.
There are some mutations of cf that are slow to develop but it doesn't mean nothing is going on.
Think about talking to your cf team, asking for a cheque up again.Maybe say that you need this to convince yourself to take up the treatment again.
If your genetic test comes out clear and the sweat test shows you have cf you should take your health seriously. It's much better to stay healthy then go through hospitals and in perhaps 10 years or so - have all the problems you hear about connected with cf.
There are some mutations of cf that are slow to develop but it doesn't mean nothing is going on.
Think about talking to your cf team, asking for a cheque up again.Maybe say that you need this to convince yourself to take up the treatment again.
If your genetic test comes out clear and the sweat test shows you have cf you should take your health seriously. It's much better to stay healthy then go through hospitals and in perhaps 10 years or so - have all the problems you hear about connected with cf.
AleksandraKaczynska
New member
The test that really counts in the sweat test (at least in Europe) - then genetic.
<br />There are some mutations of cf that are slow to develop but it doesn't mean nothing is going on.
<br />Think about talking to your cf team, asking for a cheque up again.Maybe say that you need this to convince yourself to take up the treatment again.
<br />If your genetic test comes out clear and the sweat test shows you have cf you should take your health seriously. It's much better to stay healthy then go through hospitals and in perhaps 10 years or so - have all the problems you hear about connected with cf.
<br />There are some mutations of cf that are slow to develop but it doesn't mean nothing is going on.
<br />Think about talking to your cf team, asking for a cheque up again.Maybe say that you need this to convince yourself to take up the treatment again.
<br />If your genetic test comes out clear and the sweat test shows you have cf you should take your health seriously. It's much better to stay healthy then go through hospitals and in perhaps 10 years or so - have all the problems you hear about connected with cf.