My daughter was diagnosed with CF about two months ago. We are doing very well. She has just recently began taking her enzymes without a fight....finally. Our daughter has a spit-fire personality, and doesn't do anything against her will without a true battle first. This same is true with her nebulizer treatment, my husband and I used to have to hold her down to get her to finish it...but she has just recently began sitting patiently.
What I wanted to know from other CF families is do you also find it stressful...all the medicine and doctors visits? I am worried that my husband and I are not handling the stress properly, I am truly afraid all of the added stress is going to trouble my marriage. Do any of you go to support groups....do they help? Or is there anything else that is helpful?
Thanks,
Lynsey -daughter 20 months w/CF
What I wanted to know from other CF families is do you also find it stressful...all the medicine and doctors visits? I am worried that my husband and I are not handling the stress properly, I am truly afraid all of the added stress is going to trouble my marriage. Do any of you go to support groups....do they help? Or is there anything else that is helpful?
Thanks,
Lynsey -daughter 20 months w/CF