Mockingbird
New member
Okay, that last one was one of the mean ones and not what I was talking about above.
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Please, I need some help (2 terminations mentioned inside)
- Thread starter anonymous
- Start date
Emily65Roses
New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Even if people are saying mean things to you OP, come on what is really worse? Saying mean things or doing them? I would certainly consider killing an innocent baby (bc you are selfish) meaner than me saying you are selfish!! DUH! You need to take a SERIOUS look at yourself, not only for yourself, but for the daughter you have, the baby you have already killed, the baby you are about to kill and most likely the babies you will kill in the future.
I have one more word for you: STOP.<hr></blockquote>
This is the kind of garbage that gets people to get sick of this site and leave altogether. Is this crap necessary? I think not. I have CF myself (which I can't say for sure about you as you posted ANONYMOUSLY - sign your name if you're going to write hateful words). The original poster *could* basically be saying my life is worthless, I should've been aborted, etc (which by the way, I'm sure was not her intent... just saying). And I was still nice to her. You can tell her you don't agree with what she's doing without being a judgemental know-it-all. If she was running around murdering living CFers, kids and adults, then even I'd be rude. But abortion is still LEGAL and every woman's CHOICE and you need to get off your damn high horse. As long as she's within the law, she doesn't need OR DESERVE your crap thrown at her.
I have one more word for you: STOP.<hr></blockquote>
This is the kind of garbage that gets people to get sick of this site and leave altogether. Is this crap necessary? I think not. I have CF myself (which I can't say for sure about you as you posted ANONYMOUSLY - sign your name if you're going to write hateful words). The original poster *could* basically be saying my life is worthless, I should've been aborted, etc (which by the way, I'm sure was not her intent... just saying). And I was still nice to her. You can tell her you don't agree with what she's doing without being a judgemental know-it-all. If she was running around murdering living CFers, kids and adults, then even I'd be rude. But abortion is still LEGAL and every woman's CHOICE and you need to get off your damn high horse. As long as she's within the law, she doesn't need OR DESERVE your crap thrown at her.
THANK YOU EMILY!! God, I'm getting sick of this myself...<b>you</b> people are the ones who need to STOP!! And I agree with Emily on another point, too... If you remain anonymous, you aren't sticking up for what you believe in. Your throwing in useless garbage. Get some balls if you're going to chip in with such disgusting and callous comments. And that's not to say every anonymous poster is bad, just the ones that are too scared to leave a name because they know they're going to get an earful of s**t.
ccflewallen
New member
i would hate to think that it would have been better had i been terminated because i have cf. you only get so many second chances
There isn't a parent alive, who has a sick child who doesn't wish daily that their child was born healthy. Yes, you cherish and love them because they are your child and you can't imagine life without them, but if each of us had a wish it would be for our own child's perfect health. I applaud the poster's honesty. This is not supposed to be a disscussion of pro choice or pro life. This is suppose to be a place where one can find support and information. Sure there are no guarantees in life, but life is a bumpy enough road as it is. Is it wrong of her to want to start from the best possible place for her child? Of course not. Is it wrong of her to want a healthy child? Absolutely not. It is what each and every one of us wishes and prays for. Shame on all of you who choose to judge her! She is entitled to her opinion (as all of you are) and ultimately it is her choice whether to continue this pregnancy or not. Personally, I think she is showing admirable courage and honesty. She doesn't want to see her child suffer or her family suffer, and in order to spare both is willing to make a very difficult choice. I admire you and and wish the best for you. If you choose to terminate this pregnancy I hope and pray that your next pregnancy brings you the healthy baby you deserve.
I haven't had a chance to read through all the posts, so I apologize if I am repeating...
It seems to me that there might be some serious lack of educations as to what one's course of action might be if they are aware that they, as well as their spouses are carriers.
To the initial poster, you have to do what you have to do in life and NOT I, nor anyone else is in a position to judge you. We are all entitled to our opinions but that's just about it. Therefore, I hope you will read the next few sentences of this post and take to heart and look into what I have written, you might benefit.
There is the adoption route if you want a surefire way to have a child who does not have your CF mutations, but then there is always the risk that there might be some other issue(s). Additionally, there is PGD (PreGenetic Implantation Diagnosis) that must be used in combination with ICSI. It is EXCEPTIONALLY accurate if your mutations and your spouses mutations have been identified-they can eliminate any embryos that carry either just one mutation or that carry two and are therefore positive for CF. Both of these options are costly but I believe will have a better outcome on your body and you and your husbands emotional state of mind.
That being said, I am not for or agains what you have done because I honestly don't know what I would do if I were place in that position. It's easy to say something right now, but when your back is against the wall... you gotta do what you gotta do!
Hope you find some answers
www.cysticfibrosismaleinfertility.com
It seems to me that there might be some serious lack of educations as to what one's course of action might be if they are aware that they, as well as their spouses are carriers.
To the initial poster, you have to do what you have to do in life and NOT I, nor anyone else is in a position to judge you. We are all entitled to our opinions but that's just about it. Therefore, I hope you will read the next few sentences of this post and take to heart and look into what I have written, you might benefit.
There is the adoption route if you want a surefire way to have a child who does not have your CF mutations, but then there is always the risk that there might be some other issue(s). Additionally, there is PGD (PreGenetic Implantation Diagnosis) that must be used in combination with ICSI. It is EXCEPTIONALLY accurate if your mutations and your spouses mutations have been identified-they can eliminate any embryos that carry either just one mutation or that carry two and are therefore positive for CF. Both of these options are costly but I believe will have a better outcome on your body and you and your husbands emotional state of mind.
That being said, I am not for or agains what you have done because I honestly don't know what I would do if I were place in that position. It's easy to say something right now, but when your back is against the wall... you gotta do what you gotta do!
Hope you find some answers
www.cysticfibrosismaleinfertility.com
I'm afraid I can't be sympathetic with your course of action. Your decision to terminate a pregnancy based on genetic information is one I don't agree with. To be confronted with the same situation only leads me to think that you have been given a chance to rethink your thinking.
As I hope you know, most CF patients have a lifespan of between 30 and 45 years. Isn't that worth something to you? Isn't that an adult, early middle age, who experiences infancy in the arms of his parents, childhood, the teenage years, and adulthood? Do you think that isn't worth living? Who are you trying to protect here? And why are you depriving these children of a chance at life? It scares and saddens me to think of all the lives who have been terminated because they "tested positive" for CF, a gene that wasn't even identified until 1989. . They never had a chance. I think they would have fought harder to live than they were given credit for.
My daughter will be dead 16 years on Tuesday.
TD
As I hope you know, most CF patients have a lifespan of between 30 and 45 years. Isn't that worth something to you? Isn't that an adult, early middle age, who experiences infancy in the arms of his parents, childhood, the teenage years, and adulthood? Do you think that isn't worth living? Who are you trying to protect here? And why are you depriving these children of a chance at life? It scares and saddens me to think of all the lives who have been terminated because they "tested positive" for CF, a gene that wasn't even identified until 1989. . They never had a chance. I think they would have fought harder to live than they were given credit for.
My daughter will be dead 16 years on Tuesday.
TD
<blockquote>Quote<br><hr>My heart aches for a child. My husband has CF and is infertile. We will never have children, but if we could we would. <hr></blockquote>
I just have to clairify that MEN WITH CF ARE NOT, NOT NOT NOT NOT INFERTILE because of their CF. They lack the vas deferens that carriers the sperm from the testicles to the ejaculation point but pregnancy is still an option. It is costly, yes, but some insurance companies are paying for it (more and more as people advocate for "INFERTILITY" just as we do for CF) and currently 13 states have in their laws that companies with more than X number of employees are mandated to cover infertility procedures or are mandated to offer the coverage (the mandate to cover, mandate to offer varies from state to state).
If your husband is infertile for some reason other than CF, that may very well be true but there is too much confusion about CF in men and infertilty, even in the medical field.
www.cysticfibrosismaleinfertility.com
I just have to clairify that MEN WITH CF ARE NOT, NOT NOT NOT NOT INFERTILE because of their CF. They lack the vas deferens that carriers the sperm from the testicles to the ejaculation point but pregnancy is still an option. It is costly, yes, but some insurance companies are paying for it (more and more as people advocate for "INFERTILITY" just as we do for CF) and currently 13 states have in their laws that companies with more than X number of employees are mandated to cover infertility procedures or are mandated to offer the coverage (the mandate to cover, mandate to offer varies from state to state).
If your husband is infertile for some reason other than CF, that may very well be true but there is too much confusion about CF in men and infertilty, even in the medical field.
www.cysticfibrosismaleinfertility.com