please inform me

[anjules234]

i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna

 

[anjules234]

i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna

 

[anjules234]

i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna

 

[anjules234]

i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna

 

[anjules234]

i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna

 

[blindhearted]

Try post in the Adults section, you should get more responses. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so sorry to hear about u loosing ur mom. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I think it's great that you want to educate ppl with CF. You can go to www.cff.org (the offical CF Foundation Website) and it has a lot of information about CF. Also, JazzysMom list a lot of websites on her blog, you should be able to find information there. And you are right, the public is not well informed about the disease...which is sad. Everytime I tell someone I have CF, I get funny looks, or ppl say they know what it is and start talking just to realize they are confusing it with another disease. Anyway, good luck with what ur are doing.

 

[blindhearted]

Try post in the Adults section, you should get more responses. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so sorry to hear about u loosing ur mom. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I think it's great that you want to educate ppl with CF. You can go to www.cff.org (the offical CF Foundation Website) and it has a lot of information about CF. Also, JazzysMom list a lot of websites on her blog, you should be able to find information there. And you are right, the public is not well informed about the disease...which is sad. Everytime I tell someone I have CF, I get funny looks, or ppl say they know what it is and start talking just to realize they are confusing it with another disease. Anyway, good luck with what ur are doing.

 

[blindhearted]

Try post in the Adults section, you should get more responses. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so sorry to hear about u loosing ur mom. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I think it's great that you want to educate ppl with CF. You can go to www.cff.org (the offical CF Foundation Website) and it has a lot of information about CF. Also, JazzysMom list a lot of websites on her blog, you should be able to find information there. And you are right, the public is not well informed about the disease...which is sad. Everytime I tell someone I have CF, I get funny looks, or ppl say they know what it is and start talking just to realize they are confusing it with another disease. Anyway, good luck with what ur are doing.

 

[blindhearted]

Try post in the Adults section, you should get more responses. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so sorry to hear about u loosing ur mom. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I think it's great that you want to educate ppl with CF. You can go to www.cff.org (the offical CF Foundation Website) and it has a lot of information about CF. Also, JazzysMom list a lot of websites on her blog, you should be able to find information there. And you are right, the public is not well informed about the disease...which is sad. Everytime I tell someone I have CF, I get funny looks, or ppl say they know what it is and start talking just to realize they are confusing it with another disease. Anyway, good luck with what ur are doing.

 

[blindhearted]

Try post in the Adults section, you should get more responses. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so sorry to hear about u loosing ur mom. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I think it's great that you want to educate ppl with CF. You can go to www.cff.org (the offical CF Foundation Website) and it has a lot of information about CF. Also, JazzysMom list a lot of websites on her blog, you should be able to find information there. And you are right, the public is not well informed about the disease...which is sad. Everytime I tell someone I have CF, I get funny looks, or ppl say they know what it is and start talking just to realize they are confusing it with another disease. Anyway, good luck with what ur are doing.