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Hi all... Just wanted to let you know that things are NOT GOOD with Kari and we feel that there is not much time left for her. She is at home and her Dad is with her 24/7, and he refuses to get hospice care yet even tho I think that it is crucial at this point. I go down every week for at least two days, I have to work and it is killing me not to be with her... She is SO OUT OF IT on pain meds and will not eat. She is on a bi pap most of the time Oh it is so hard to see... I have actully had people say to me that I have had 27 yrs to prepare for this. so I should be doing better! I will NEVER EVER be ready. Anyway hope you are all OK. Will write again soon.
peace.
lisa
Hi all... Just wanted to let you know that things are NOT GOOD with Kari and we feel that there is not much time left for her. She is at home and her Dad is with her 24/7, and he refuses to get hospice care yet even tho I think that it is crucial at this point. I go down every week for at least two days, I have to work and it is killing me not to be with her... She is SO OUT OF IT on pain meds and will not eat. She is on a bi pap most of the time Oh it is so hard to see... I have actully had people say to me that I have had 27 yrs to prepare for this. so I should be doing better! I will NEVER EVER be ready. Anyway hope you are all OK. Will write again soon.
peace.
lisa