poor weight gain

jab12477 · Jul 11, 2007

<img src="i/expressions/face-icon-small-confused.gif" border="0"> 7/11/07

Hello there. My name is Jessica. I do understand what you're talking about big time okay. I (myself) are having problems too with gaining more weight on me too. You see I was born with Cystic Fibrosis. Everytime I go see my doctor at the clinic (every six weeks) I would lose some weight or gain some weight just alittle. So they told me to try some Boost Plus to see if that work.

Also, every Tuesday before I eat some breakfast. I would step up on the scale too see my weight is now. My weight been running between 100lbs - 110lbs. My weight used to be somewhere in the 117lbs before I got really,really sick lately okay.

So maybe you can try too see if the Boost Plus work or not alright.

Sincerely,
Jessica Berry
29/w CF, CFRD, Pseudomonas Aeruginosa

ruyhwong · Sep 7, 2007

I've been using this cyto gainer product for 4 weeks. I can really tell the difference when I forget to take the cyto gainer. Results can be seen after only a week. I have seen good result in weight gain. I have gain 5 pounds.
Read More: <a target=_blank class=ftalternatingbarlinklarge href="http://allnutri.com/pid15842/cyto+gainer.aspx">http://allnutri.com/pid15842/cyto+gainer.aspx</a>

ruyhwong · Sep 7, 2007

I've been using this cyto gainer product for 4 weeks. I can really tell the difference when I forget to take the cyto gainer. Results can be seen after only a week. I have seen good result in weight gain. I have gain 5 pounds.
Read More: <a target=_blank class=ftalternatingbarlinklarge href="http://allnutri.com/pid15842/cyto+gainer.aspx">http://allnutri.com/pid15842/cyto+gainer.aspx</a>

ruyhwong · Sep 7, 2007

I've been using this cyto gainer product for 4 weeks. I can really tell the difference when I forget to take the cyto gainer. Results can be seen after only a week. I have seen good result in weight gain. I have gain 5 pounds.
Read More: <a target=_blank class=ftalternatingbarlinklarge href="http://allnutri.com/pid15842/cyto+gainer.aspx">http://allnutri.com/pid15842/cyto+gainer.aspx</a>

ruyhwong · Sep 7, 2007

I've been using this cyto gainer product for 4 weeks. I can really tell the difference when I forget to take the cyto gainer. Results can be seen after only a week. I have seen good result in weight gain. I have gain 5 pounds.
Read More: <a target=_blank class=ftalternatingbarlinklarge href="http://allnutri.com/pid15842/cyto+gainer.aspx">http://allnutri.com/pid15842/cyto+gainer.aspx</a>

ruyhwong · Sep 7, 2007

I've been using this cyto gainer product for 4 weeks. I can really tell the difference when I forget to take the cyto gainer. Results can be seen after only a week. I have seen good result in weight gain. I have gain 5 pounds.
Read More: <a target=_blank class=ftalternatingbarlinklarge href="http://allnutri.com/pid15842/cyto+gainer.aspx">http://allnutri.com/pid15842/cyto+gainer.aspx</a>

AnD · Sep 7, 2007

13 is such a hard age, and the emphasis on being "skinny" is so strong...she may be getting a lot of positive reinforcement from her friends ("I wish I could be as skinny as you- you don't even have to diet!" type comments) which can be really hard for parents to overcome.

She may also be feeling poorly if she is really low on the BMI scale, and eating may just add to her tiredness (remember how it felt in school to have a test right after lunch? For me and my friends it was brain fog and a strong desire for a nap <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Also, if she is eating enough, then another change of enzymes might be warranted-I think I went through at least 4 enzymes before I found one that was right for me.

I would get the doctor to help you at the next appointment- pics of what a feeding tube placement looks like, a trial NG feeding, statistics of how people with her BMI do compared to others with a healthier weight, anything you and the doctor can think of. She's 13- it's not a bad thing to give her a reality check about her cf now, in preparation for the rest of the teenage years. She is old enough to start taking responsiblity for her health, and she is the only one who can eat for her <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It may be time for a little "tough love" as they say. And as callous as this sounds, if she cries, then good- you have gotten through <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I have been that teenager with the reality check- if it happens, be prepared to be there for her big time and get her the answers she needs- she will need you.

And, as much as I hate to say it, (and I only mention this because of the "yeah, maybe then you will leave me alone about eating " comment- 1) because she is aggravated at you for encouraging her to eat (maybe typical teenage irritation, may not be), and 2) by not eating what she needs to, she is controlling your behavior, and what you think about- just something to ponder) so, if you have ruled out the medical reasons (enzymes, diabetes check, etc.) then you may have to go one further, and have her evalutated for an eating disorder.

I know that sounds drastic, but we (cf patients) are not immune to them, especially since most are brought on by control issues. I had one myself, and so did my best friend (years later), so I am not just throwing out this out willy nilly. It is so much easier to get a grip on it in the beginning, than when they are at a life threatening stage, with years of the habit being ingrained...If nothing else, perhaps being evaluated when nothing else is working and she won't eat like she needs to, will reach her about how big a deal this is <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I say all that with the disclaimer that I do not know your daughter in any way, and it may not apply in the least, but I couldn't not mention it just in case.

AnD · Sep 7, 2007

13 is such a hard age, and the emphasis on being "skinny" is so strong...she may be getting a lot of positive reinforcement from her friends ("I wish I could be as skinny as you- you don't even have to diet!" type comments) which can be really hard for parents to overcome.

She may also be feeling poorly if she is really low on the BMI scale, and eating may just add to her tiredness (remember how it felt in school to have a test right after lunch? For me and my friends it was brain fog and a strong desire for a nap <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Also, if she is eating enough, then another change of enzymes might be warranted-I think I went through at least 4 enzymes before I found one that was right for me.

I would get the doctor to help you at the next appointment- pics of what a feeding tube placement looks like, a trial NG feeding, statistics of how people with her BMI do compared to others with a healthier weight, anything you and the doctor can think of. She's 13- it's not a bad thing to give her a reality check about her cf now, in preparation for the rest of the teenage years. She is old enough to start taking responsiblity for her health, and she is the only one who can eat for her <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It may be time for a little "tough love" as they say. And as callous as this sounds, if she cries, then good- you have gotten through <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I have been that teenager with the reality check- if it happens, be prepared to be there for her big time and get her the answers she needs- she will need you.

And, as much as I hate to say it, (and I only mention this because of the "yeah, maybe then you will leave me alone about eating " comment- 1) because she is aggravated at you for encouraging her to eat (maybe typical teenage irritation, may not be), and 2) by not eating what she needs to, she is controlling your behavior, and what you think about- just something to ponder) so, if you have ruled out the medical reasons (enzymes, diabetes check, etc.) then you may have to go one further, and have her evalutated for an eating disorder.

I know that sounds drastic, but we (cf patients) are not immune to them, especially since most are brought on by control issues. I had one myself, and so did my best friend (years later), so I am not just throwing out this out willy nilly. It is so much easier to get a grip on it in the beginning, than when they are at a life threatening stage, with years of the habit being ingrained...If nothing else, perhaps being evaluated when nothing else is working and she won't eat like she needs to, will reach her about how big a deal this is <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I say all that with the disclaimer that I do not know your daughter in any way, and it may not apply in the least, but I couldn't not mention it just in case.

AnD · Sep 7, 2007

13 is such a hard age, and the emphasis on being "skinny" is so strong...she may be getting a lot of positive reinforcement from her friends ("I wish I could be as skinny as you- you don't even have to diet!" type comments) which can be really hard for parents to overcome.

She may also be feeling poorly if she is really low on the BMI scale, and eating may just add to her tiredness (remember how it felt in school to have a test right after lunch? For me and my friends it was brain fog and a strong desire for a nap <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Also, if she is eating enough, then another change of enzymes might be warranted-I think I went through at least 4 enzymes before I found one that was right for me.

I would get the doctor to help you at the next appointment- pics of what a feeding tube placement looks like, a trial NG feeding, statistics of how people with her BMI do compared to others with a healthier weight, anything you and the doctor can think of. She's 13- it's not a bad thing to give her a reality check about her cf now, in preparation for the rest of the teenage years. She is old enough to start taking responsiblity for her health, and she is the only one who can eat for her <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It may be time for a little "tough love" as they say. And as callous as this sounds, if she cries, then good- you have gotten through <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I have been that teenager with the reality check- if it happens, be prepared to be there for her big time and get her the answers she needs- she will need you.

And, as much as I hate to say it, (and I only mention this because of the "yeah, maybe then you will leave me alone about eating " comment- 1) because she is aggravated at you for encouraging her to eat (maybe typical teenage irritation, may not be), and 2) by not eating what she needs to, she is controlling your behavior, and what you think about- just something to ponder) so, if you have ruled out the medical reasons (enzymes, diabetes check, etc.) then you may have to go one further, and have her evalutated for an eating disorder.

I know that sounds drastic, but we (cf patients) are not immune to them, especially since most are brought on by control issues. I had one myself, and so did my best friend (years later), so I am not just throwing out this out willy nilly. It is so much easier to get a grip on it in the beginning, than when they are at a life threatening stage, with years of the habit being ingrained...If nothing else, perhaps being evaluated when nothing else is working and she won't eat like she needs to, will reach her about how big a deal this is <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I say all that with the disclaimer that I do not know your daughter in any way, and it may not apply in the least, but I couldn't not mention it just in case.

AnD · Sep 7, 2007

13 is such a hard age, and the emphasis on being "skinny" is so strong...she may be getting a lot of positive reinforcement from her friends ("I wish I could be as skinny as you- you don't even have to diet!" type comments) which can be really hard for parents to overcome.

She may also be feeling poorly if she is really low on the BMI scale, and eating may just add to her tiredness (remember how it felt in school to have a test right after lunch? For me and my friends it was brain fog and a strong desire for a nap <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Also, if she is eating enough, then another change of enzymes might be warranted-I think I went through at least 4 enzymes before I found one that was right for me.

I would get the doctor to help you at the next appointment- pics of what a feeding tube placement looks like, a trial NG feeding, statistics of how people with her BMI do compared to others with a healthier weight, anything you and the doctor can think of. She's 13- it's not a bad thing to give her a reality check about her cf now, in preparation for the rest of the teenage years. She is old enough to start taking responsiblity for her health, and she is the only one who can eat for her <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It may be time for a little "tough love" as they say. And as callous as this sounds, if she cries, then good- you have gotten through <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I have been that teenager with the reality check- if it happens, be prepared to be there for her big time and get her the answers she needs- she will need you.

And, as much as I hate to say it, (and I only mention this because of the "yeah, maybe then you will leave me alone about eating " comment- 1) because she is aggravated at you for encouraging her to eat (maybe typical teenage irritation, may not be), and 2) by not eating what she needs to, she is controlling your behavior, and what you think about- just something to ponder) so, if you have ruled out the medical reasons (enzymes, diabetes check, etc.) then you may have to go one further, and have her evalutated for an eating disorder.

I know that sounds drastic, but we (cf patients) are not immune to them, especially since most are brought on by control issues. I had one myself, and so did my best friend (years later), so I am not just throwing out this out willy nilly. It is so much easier to get a grip on it in the beginning, than when they are at a life threatening stage, with years of the habit being ingrained...If nothing else, perhaps being evaluated when nothing else is working and she won't eat like she needs to, will reach her about how big a deal this is <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I say all that with the disclaimer that I do not know your daughter in any way, and it may not apply in the least, but I couldn't not mention it just in case.

AnD · Sep 7, 2007

13 is such a hard age, and the emphasis on being "skinny" is so strong...she may be getting a lot of positive reinforcement from her friends ("I wish I could be as skinny as you- you don't even have to diet!" type comments) which can be really hard for parents to overcome.

She may also be feeling poorly if she is really low on the BMI scale, and eating may just add to her tiredness (remember how it felt in school to have a test right after lunch? For me and my friends it was brain fog and a strong desire for a nap <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Also, if she is eating enough, then another change of enzymes might be warranted-I think I went through at least 4 enzymes before I found one that was right for me.

I would get the doctor to help you at the next appointment- pics of what a feeding tube placement looks like, a trial NG feeding, statistics of how people with her BMI do compared to others with a healthier weight, anything you and the doctor can think of. She's 13- it's not a bad thing to give her a reality check about her cf now, in preparation for the rest of the teenage years. She is old enough to start taking responsiblity for her health, and she is the only one who can eat for her <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It may be time for a little "tough love" as they say. And as callous as this sounds, if she cries, then good- you have gotten through <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I have been that teenager with the reality check- if it happens, be prepared to be there for her big time and get her the answers she needs- she will need you.

And, as much as I hate to say it, (and I only mention this because of the "yeah, maybe then you will leave me alone about eating " comment- 1) because she is aggravated at you for encouraging her to eat (maybe typical teenage irritation, may not be), and 2) by not eating what she needs to, she is controlling your behavior, and what you think about- just something to ponder) so, if you have ruled out the medical reasons (enzymes, diabetes check, etc.) then you may have to go one further, and have her evalutated for an eating disorder.

I know that sounds drastic, but we (cf patients) are not immune to them, especially since most are brought on by control issues. I had one myself, and so did my best friend (years later), so I am not just throwing out this out willy nilly. It is so much easier to get a grip on it in the beginning, than when they are at a life threatening stage, with years of the habit being ingrained...If nothing else, perhaps being evaluated when nothing else is working and she won't eat like she needs to, will reach her about how big a deal this is <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

I say all that with the disclaimer that I do not know your daughter in any way, and it may not apply in the least, but I couldn't not mention it just in case.

Bensmomjulie · Oct 30, 2007

Benjamin has dealt with weight gain since he was born. His official diagnosis of failure to thrive came first with the gastroenterologist before he was diagnosed with CF at 2 weeks old. He only had failure to thrive because after his meconium illius surgery, they couldn't let him eat, so he was fed intraveniously. That first gastroenterologist made serious mistakes in his treatment. He has something called fibrosing colonopathy caused by too many enzymes. None of the doctors who treat him will acknowledge this so he doesn't get the proper care. I am currently considering taking him out of state. The enzymes were given when he was about 4 or 5 at a rate 2 to 3 times what he needs now at age 18. Because of this we have been brutalized his entire life and accused of being non-compliant. I see the posts of people asking about the stool testing. With all of his problems, I think this would have helped. At age 7 a wonderful surgeon was able to remove massive amounts of scar tissue, but because that damage was done, and the fact that he had meconium illius he is at greater risk for future scarring. I have been asking for many years if something could be done to see if his intestines are up to the job, or if there is some other treatment that could help, but none of the doctors will consider the possibility that he needs his intestines cleaned out again. The only reason it happened the last time is becuase instead of using the surgeon that was recommended we requested the one who had done the surgery at 2 days old. He used his own initiative to investigate further to see what could be done. He saved Benjamin's life twice. I might need a third time. He has a g-tube, and it makes him sick, he has no appetite, and because the formula he is getting while he sleeps has so much sugar in it he has developed CF related diabetes. I think it's only because we were not intended to digest food while we sleep, and the formula isn't balanced for CF. It says it is for people with lung problems, but it doesn't take into consideration digestive problems. Everyone with CF who has a g-tube has digestive problems! Some people swear by the g-tube. We only swear at it. I hope you have better success than we do, and consider the possibility that she isn't just being stubborn if she doesn't eat enough to gain weight.<img src="i/expressions/face-icon-small-mad.gif" border="0">

Bensmomjulie · Oct 30, 2007

Benjamin has dealt with weight gain since he was born. His official diagnosis of failure to thrive came first with the gastroenterologist before he was diagnosed with CF at 2 weeks old. He only had failure to thrive because after his meconium illius surgery, they couldn't let him eat, so he was fed intraveniously. That first gastroenterologist made serious mistakes in his treatment. He has something called fibrosing colonopathy caused by too many enzymes. None of the doctors who treat him will acknowledge this so he doesn't get the proper care. I am currently considering taking him out of state. The enzymes were given when he was about 4 or 5 at a rate 2 to 3 times what he needs now at age 18. Because of this we have been brutalized his entire life and accused of being non-compliant. I see the posts of people asking about the stool testing. With all of his problems, I think this would have helped. At age 7 a wonderful surgeon was able to remove massive amounts of scar tissue, but because that damage was done, and the fact that he had meconium illius he is at greater risk for future scarring. I have been asking for many years if something could be done to see if his intestines are up to the job, or if there is some other treatment that could help, but none of the doctors will consider the possibility that he needs his intestines cleaned out again. The only reason it happened the last time is becuase instead of using the surgeon that was recommended we requested the one who had done the surgery at 2 days old. He used his own initiative to investigate further to see what could be done. He saved Benjamin's life twice. I might need a third time. He has a g-tube, and it makes him sick, he has no appetite, and because the formula he is getting while he sleeps has so much sugar in it he has developed CF related diabetes. I think it's only because we were not intended to digest food while we sleep, and the formula isn't balanced for CF. It says it is for people with lung problems, but it doesn't take into consideration digestive problems. Everyone with CF who has a g-tube has digestive problems! Some people swear by the g-tube. We only swear at it. I hope you have better success than we do, and consider the possibility that she isn't just being stubborn if she doesn't eat enough to gain weight.<img src="i/expressions/face-icon-small-mad.gif" border="0">

Bensmomjulie · Oct 30, 2007

Benjamin has dealt with weight gain since he was born. His official diagnosis of failure to thrive came first with the gastroenterologist before he was diagnosed with CF at 2 weeks old. He only had failure to thrive because after his meconium illius surgery, they couldn't let him eat, so he was fed intraveniously. That first gastroenterologist made serious mistakes in his treatment. He has something called fibrosing colonopathy caused by too many enzymes. None of the doctors who treat him will acknowledge this so he doesn't get the proper care. I am currently considering taking him out of state. The enzymes were given when he was about 4 or 5 at a rate 2 to 3 times what he needs now at age 18. Because of this we have been brutalized his entire life and accused of being non-compliant. I see the posts of people asking about the stool testing. With all of his problems, I think this would have helped. At age 7 a wonderful surgeon was able to remove massive amounts of scar tissue, but because that damage was done, and the fact that he had meconium illius he is at greater risk for future scarring. I have been asking for many years if something could be done to see if his intestines are up to the job, or if there is some other treatment that could help, but none of the doctors will consider the possibility that he needs his intestines cleaned out again. The only reason it happened the last time is becuase instead of using the surgeon that was recommended we requested the one who had done the surgery at 2 days old. He used his own initiative to investigate further to see what could be done. He saved Benjamin's life twice. I might need a third time. He has a g-tube, and it makes him sick, he has no appetite, and because the formula he is getting while he sleeps has so much sugar in it he has developed CF related diabetes. I think it's only because we were not intended to digest food while we sleep, and the formula isn't balanced for CF. It says it is for people with lung problems, but it doesn't take into consideration digestive problems. Everyone with CF who has a g-tube has digestive problems! Some people swear by the g-tube. We only swear at it. I hope you have better success than we do, and consider the possibility that she isn't just being stubborn if she doesn't eat enough to gain weight.<img src="i/expressions/face-icon-small-mad.gif" border="0">

Bensmomjulie · Oct 30, 2007

Benjamin has dealt with weight gain since he was born. His official diagnosis of failure to thrive came first with the gastroenterologist before he was diagnosed with CF at 2 weeks old. He only had failure to thrive because after his meconium illius surgery, they couldn't let him eat, so he was fed intraveniously. That first gastroenterologist made serious mistakes in his treatment. He has something called fibrosing colonopathy caused by too many enzymes. None of the doctors who treat him will acknowledge this so he doesn't get the proper care. I am currently considering taking him out of state. The enzymes were given when he was about 4 or 5 at a rate 2 to 3 times what he needs now at age 18. Because of this we have been brutalized his entire life and accused of being non-compliant. I see the posts of people asking about the stool testing. With all of his problems, I think this would have helped. At age 7 a wonderful surgeon was able to remove massive amounts of scar tissue, but because that damage was done, and the fact that he had meconium illius he is at greater risk for future scarring. I have been asking for many years if something could be done to see if his intestines are up to the job, or if there is some other treatment that could help, but none of the doctors will consider the possibility that he needs his intestines cleaned out again. The only reason it happened the last time is becuase instead of using the surgeon that was recommended we requested the one who had done the surgery at 2 days old. He used his own initiative to investigate further to see what could be done. He saved Benjamin's life twice. I might need a third time. He has a g-tube, and it makes him sick, he has no appetite, and because the formula he is getting while he sleeps has so much sugar in it he has developed CF related diabetes. I think it's only because we were not intended to digest food while we sleep, and the formula isn't balanced for CF. It says it is for people with lung problems, but it doesn't take into consideration digestive problems. Everyone with CF who has a g-tube has digestive problems! Some people swear by the g-tube. We only swear at it. I hope you have better success than we do, and consider the possibility that she isn't just being stubborn if she doesn't eat enough to gain weight.<img src="i/expressions/face-icon-small-mad.gif" border="0">

Bensmomjulie · Oct 30, 2007

Benjamin has dealt with weight gain since he was born. His official diagnosis of failure to thrive came first with the gastroenterologist before he was diagnosed with CF at 2 weeks old. He only had failure to thrive because after his meconium illius surgery, they couldn't let him eat, so he was fed intraveniously. That first gastroenterologist made serious mistakes in his treatment. He has something called fibrosing colonopathy caused by too many enzymes. None of the doctors who treat him will acknowledge this so he doesn't get the proper care. I am currently considering taking him out of state. The enzymes were given when he was about 4 or 5 at a rate 2 to 3 times what he needs now at age 18. Because of this we have been brutalized his entire life and accused of being non-compliant. I see the posts of people asking about the stool testing. With all of his problems, I think this would have helped. At age 7 a wonderful surgeon was able to remove massive amounts of scar tissue, but because that damage was done, and the fact that he had meconium illius he is at greater risk for future scarring. I have been asking for many years if something could be done to see if his intestines are up to the job, or if there is some other treatment that could help, but none of the doctors will consider the possibility that he needs his intestines cleaned out again. The only reason it happened the last time is becuase instead of using the surgeon that was recommended we requested the one who had done the surgery at 2 days old. He used his own initiative to investigate further to see what could be done. He saved Benjamin's life twice. I might need a third time. He has a g-tube, and it makes him sick, he has no appetite, and because the formula he is getting while he sleeps has so much sugar in it he has developed CF related diabetes. I think it's only because we were not intended to digest food while we sleep, and the formula isn't balanced for CF. It says it is for people with lung problems, but it doesn't take into consideration digestive problems. Everyone with CF who has a g-tube has digestive problems! Some people swear by the g-tube. We only swear at it. I hope you have better success than we do, and consider the possibility that she isn't just being stubborn if she doesn't eat enough to gain weight.<img src="i/expressions/face-icon-small-mad.gif" border="0">

poor weight gain

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