Possible CF

HMEB

New member
My son is 2 years old. He has had a cough off and on since he was an infant. He has a runny nose off and on, and he has had wheezing a couple of times. He has taken tons of antiobiotics to clear up sinus infections....to no avail. He has never had any type of chest issues and no tummy problems. He is small and has a very small appetite. We went to the allergist, and he didn't test positive for the most common allergens. We then went for a CT of the sinuses -- which showed chronic, severe infection. The ENT did a culture which came back as pseudomonas aeruginosa. Everyone is freaked right now. They have started him on oral Cipro, and we see a pediatric infectious disease doc on Monday. We go for a sweat test on Tuesday. Does this sound familiar to anyone? I know speculating and worrying is doing no good, but I just cannot stop myself. I know you cannot tell me whether or not he has CF. Mostly, I want to know if you know of anyone who has a sinus infection with p. aeruginosa as their only symptom? Thanks in advance!
 

HMEB

New member
My son is 2 years old. He has had a cough off and on since he was an infant. He has a runny nose off and on, and he has had wheezing a couple of times. He has taken tons of antiobiotics to clear up sinus infections....to no avail. He has never had any type of chest issues and no tummy problems. He is small and has a very small appetite. We went to the allergist, and he didn't test positive for the most common allergens. We then went for a CT of the sinuses -- which showed chronic, severe infection. The ENT did a culture which came back as pseudomonas aeruginosa. Everyone is freaked right now. They have started him on oral Cipro, and we see a pediatric infectious disease doc on Monday. We go for a sweat test on Tuesday. Does this sound familiar to anyone? I know speculating and worrying is doing no good, but I just cannot stop myself. I know you cannot tell me whether or not he has CF. Mostly, I want to know if you know of anyone who has a sinus infection with p. aeruginosa as their only symptom? Thanks in advance!
 

HMEB

New member
My son is 2 years old. He has had a cough off and on since he was an infant. He has a runny nose off and on, and he has had wheezing a couple of times. He has taken tons of antiobiotics to clear up sinus infections....to no avail. He has never had any type of chest issues and no tummy problems. He is small and has a very small appetite. We went to the allergist, and he didn't test positive for the most common allergens. We then went for a CT of the sinuses -- which showed chronic, severe infection. The ENT did a culture which came back as pseudomonas aeruginosa. Everyone is freaked right now. They have started him on oral Cipro, and we see a pediatric infectious disease doc on Monday. We go for a sweat test on Tuesday. Does this sound familiar to anyone? I know speculating and worrying is doing no good, but I just cannot stop myself. I know you cannot tell me whether or not he has CF. Mostly, I want to know if you know of anyone who has a sinus infection with p. aeruginosa as their only symptom? Thanks in advance!
 

HMEB

New member
My son is 2 years old. He has had a cough off and on since he was an infant. He has a runny nose off and on, and he has had wheezing a couple of times. He has taken tons of antiobiotics to clear up sinus infections....to no avail. He has never had any type of chest issues and no tummy problems. He is small and has a very small appetite. We went to the allergist, and he didn't test positive for the most common allergens. We then went for a CT of the sinuses -- which showed chronic, severe infection. The ENT did a culture which came back as pseudomonas aeruginosa. Everyone is freaked right now. They have started him on oral Cipro, and we see a pediatric infectious disease doc on Monday. We go for a sweat test on Tuesday. Does this sound familiar to anyone? I know speculating and worrying is doing no good, but I just cannot stop myself. I know you cannot tell me whether or not he has CF. Mostly, I want to know if you know of anyone who has a sinus infection with p. aeruginosa as their only symptom? Thanks in advance!
 

HMEB

New member
My son is 2 years old. He has had a cough off and on since he was an infant. He has a runny nose off and on, and he has had wheezing a couple of times. He has taken tons of antiobiotics to clear up sinus infections....to no avail. He has never had any type of chest issues and no tummy problems. He is small and has a very small appetite. We went to the allergist, and he didn't test positive for the most common allergens. We then went for a CT of the sinuses -- which showed chronic, severe infection. The ENT did a culture which came back as pseudomonas aeruginosa. Everyone is freaked right now. They have started him on oral Cipro, and we see a pediatric infectious disease doc on Monday. We go for a sweat test on Tuesday. Does this sound familiar to anyone? I know speculating and worrying is doing no good, but I just cannot stop myself. I know you cannot tell me whether or not he has CF. Mostly, I want to know if you know of anyone who has a sinus infection with p. aeruginosa as their only symptom? Thanks in advance!
 

JazzysMom

New member
His size & his culture of Pseudomonas are typical symtpoms. His sinuses also.

Not everyone has all the classic symptoms have CF so its great that they are sending him for additional testing.

Be sure any CF testing is done at an Accredited CF Center to assure accuracy.

If he has cultured PA in his sinuses & other antibiotics havent worked that is because certain meds that the bacteria is sensitive must be used.

Please keep in touch with us as after you find out the results of the sweat test. BTW PLEASE get the actual number from the sweat test. Dont except Negative, Borderline or Positive.

We have members who had "negative" results on the sweat test get a CF diagnosis through genetic testing.

HUGS
 

JazzysMom

New member
His size & his culture of Pseudomonas are typical symtpoms. His sinuses also.

Not everyone has all the classic symptoms have CF so its great that they are sending him for additional testing.

Be sure any CF testing is done at an Accredited CF Center to assure accuracy.

If he has cultured PA in his sinuses & other antibiotics havent worked that is because certain meds that the bacteria is sensitive must be used.

Please keep in touch with us as after you find out the results of the sweat test. BTW PLEASE get the actual number from the sweat test. Dont except Negative, Borderline or Positive.

We have members who had "negative" results on the sweat test get a CF diagnosis through genetic testing.

HUGS
 

JazzysMom

New member
His size & his culture of Pseudomonas are typical symtpoms. His sinuses also.

Not everyone has all the classic symptoms have CF so its great that they are sending him for additional testing.

Be sure any CF testing is done at an Accredited CF Center to assure accuracy.

If he has cultured PA in his sinuses & other antibiotics havent worked that is because certain meds that the bacteria is sensitive must be used.

Please keep in touch with us as after you find out the results of the sweat test. BTW PLEASE get the actual number from the sweat test. Dont except Negative, Borderline or Positive.

We have members who had "negative" results on the sweat test get a CF diagnosis through genetic testing.

HUGS
 

JazzysMom

New member
His size & his culture of Pseudomonas are typical symtpoms. His sinuses also.

Not everyone has all the classic symptoms have CF so its great that they are sending him for additional testing.

Be sure any CF testing is done at an Accredited CF Center to assure accuracy.

If he has cultured PA in his sinuses & other antibiotics havent worked that is because certain meds that the bacteria is sensitive must be used.

Please keep in touch with us as after you find out the results of the sweat test. BTW PLEASE get the actual number from the sweat test. Dont except Negative, Borderline or Positive.

We have members who had "negative" results on the sweat test get a CF diagnosis through genetic testing.

HUGS
 

JazzysMom

New member
His size & his culture of Pseudomonas are typical symtpoms. His sinuses also.
<br />
<br />Not everyone has all the classic symptoms have CF so its great that they are sending him for additional testing.
<br />
<br />Be sure any CF testing is done at an Accredited CF Center to assure accuracy.
<br />
<br />If he has cultured PA in his sinuses & other antibiotics havent worked that is because certain meds that the bacteria is sensitive must be used.
<br />
<br />Please keep in touch with us as after you find out the results of the sweat test. BTW PLEASE get the actual number from the sweat test. Dont except Negative, Borderline or Positive.
<br />
<br />We have members who had "negative" results on the sweat test get a CF diagnosis through genetic testing.
<br />
<br />HUGS
 
Top