Thank you
It sounds like they are in good hands. The only other advice I'd give right now, is that your sister take a notebook to the appt. so she can make notes, because nobody can remember everything. <img src="i/expressions/face-icon-small-wink.gif" border="0"> This is a lot to take in, so she should just take it one step at a time.
If your sis has internet access, send her here. This community will give her so much support as she goes through this scary time. Here there is education & hope. I was so lost until I found this site. The education I've gained from people who have CF is invaluable to me. Yes, docs & clinics have lots of resources, but they don't HAVE CF themselves, so they lack the personal experience. The friendships I've made here are precious to me. We'd love to help you & your sister get through this. <img src="i/expressions/face-icon-small-smile.gif" border="0">
There's nothing like CF to bring out our inner strengths. Our family didn't know how strong we really were until CF came into our lives. Please keep us posted.
Stacey
It sounds like they are in good hands. The only other advice I'd give right now, is that your sister take a notebook to the appt. so she can make notes, because nobody can remember everything. <img src="i/expressions/face-icon-small-wink.gif" border="0"> This is a lot to take in, so she should just take it one step at a time.
If your sis has internet access, send her here. This community will give her so much support as she goes through this scary time. Here there is education & hope. I was so lost until I found this site. The education I've gained from people who have CF is invaluable to me. Yes, docs & clinics have lots of resources, but they don't HAVE CF themselves, so they lack the personal experience. The friendships I've made here are precious to me. We'd love to help you & your sister get through this. <img src="i/expressions/face-icon-small-smile.gif" border="0">
There's nothing like CF to bring out our inner strengths. Our family didn't know how strong we really were until CF came into our lives. Please keep us posted.
Stacey