posting here as well

oatmeal28

New member
Thank you so much Melissa!

I am going to look at all these resources. You have been a huge help. This is very scary for me as I was very healthy growing up and up until a year ago, so I am in a stage of denial. I haven't told my parent's yet b/c I am not sure if it will scare them unnecessarily, or if I should tell them to see if there is any history of it in my family?

I again appreciate all this information and will be in touch if I have any questions. This site is very helpful and is easing some of the confusion I had on Friday.... Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

oatmeal28

New member
Thank you so much Melissa!

I am going to look at all these resources. You have been a huge help. This is very scary for me as I was very healthy growing up and up until a year ago, so I am in a stage of denial. I haven't told my parent's yet b/c I am not sure if it will scare them unnecessarily, or if I should tell them to see if there is any history of it in my family?

I again appreciate all this information and will be in touch if I have any questions. This site is very helpful and is easing some of the confusion I had on Friday.... Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

oatmeal28

New member
Thank you so much Melissa!

I am going to look at all these resources. You have been a huge help. This is very scary for me as I was very healthy growing up and up until a year ago, so I am in a stage of denial. I haven't told my parent's yet b/c I am not sure if it will scare them unnecessarily, or if I should tell them to see if there is any history of it in my family?

I again appreciate all this information and will be in touch if I have any questions. This site is very helpful and is easing some of the confusion I had on Friday.... Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

oatmeal28

New member
Thank you so much Melissa!

I am going to look at all these resources. You have been a huge help. This is very scary for me as I was very healthy growing up and up until a year ago, so I am in a stage of denial. I haven't told my parent's yet b/c I am not sure if it will scare them unnecessarily, or if I should tell them to see if there is any history of it in my family?

I again appreciate all this information and will be in touch if I have any questions. This site is very helpful and is easing some of the confusion I had on Friday.... Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

oatmeal28

New member
Thank you so much Melissa!
<br />
<br />I am going to look at all these resources. You have been a huge help. This is very scary for me as I was very healthy growing up and up until a year ago, so I am in a stage of denial. I haven't told my parent's yet b/c I am not sure if it will scare them unnecessarily, or if I should tell them to see if there is any history of it in my family?
<br />
<br />I again appreciate all this information and will be in touch if I have any questions. This site is very helpful and is easing some of the confusion I had on Friday.... Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Kristen

New member
I have a very good friend who went through a similar thing recently. Cough, cultured staph, bronchiectasis, some stomach issues, etc. Initially her sweat test was negative but border line. Her first genetic test came back inconclusive. It took years, but she was finally diagnosed with CF (and the only reason she kept pushing for testing was because she knew me.)

Like Melissa said, although this is very scary for anyone, a proper diagnosis will allow you to get the care you need and keep you healthy. And, it sounds like you have a fairly mild case of CF. I do as well (although I was diagnosed as a baby due to salty-tasting skin) and have been told by my doctors that I could live a very healthy life for many, many years to come (I'm currently 32). The key is to take care of yourself (because, even if you are mild, CF is progressive), which is what the diagnosis will help you do. It is a HUGE lifestyle change, getting in all your CPT and treatments and doctors appointments and stuff, but it doesn't have to be as bleak as Dr. Google might tell you <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
I have a very good friend who went through a similar thing recently. Cough, cultured staph, bronchiectasis, some stomach issues, etc. Initially her sweat test was negative but border line. Her first genetic test came back inconclusive. It took years, but she was finally diagnosed with CF (and the only reason she kept pushing for testing was because she knew me.)

Like Melissa said, although this is very scary for anyone, a proper diagnosis will allow you to get the care you need and keep you healthy. And, it sounds like you have a fairly mild case of CF. I do as well (although I was diagnosed as a baby due to salty-tasting skin) and have been told by my doctors that I could live a very healthy life for many, many years to come (I'm currently 32). The key is to take care of yourself (because, even if you are mild, CF is progressive), which is what the diagnosis will help you do. It is a HUGE lifestyle change, getting in all your CPT and treatments and doctors appointments and stuff, but it doesn't have to be as bleak as Dr. Google might tell you <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
I have a very good friend who went through a similar thing recently. Cough, cultured staph, bronchiectasis, some stomach issues, etc. Initially her sweat test was negative but border line. Her first genetic test came back inconclusive. It took years, but she was finally diagnosed with CF (and the only reason she kept pushing for testing was because she knew me.)

Like Melissa said, although this is very scary for anyone, a proper diagnosis will allow you to get the care you need and keep you healthy. And, it sounds like you have a fairly mild case of CF. I do as well (although I was diagnosed as a baby due to salty-tasting skin) and have been told by my doctors that I could live a very healthy life for many, many years to come (I'm currently 32). The key is to take care of yourself (because, even if you are mild, CF is progressive), which is what the diagnosis will help you do. It is a HUGE lifestyle change, getting in all your CPT and treatments and doctors appointments and stuff, but it doesn't have to be as bleak as Dr. Google might tell you <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
I have a very good friend who went through a similar thing recently. Cough, cultured staph, bronchiectasis, some stomach issues, etc. Initially her sweat test was negative but border line. Her first genetic test came back inconclusive. It took years, but she was finally diagnosed with CF (and the only reason she kept pushing for testing was because she knew me.)

Like Melissa said, although this is very scary for anyone, a proper diagnosis will allow you to get the care you need and keep you healthy. And, it sounds like you have a fairly mild case of CF. I do as well (although I was diagnosed as a baby due to salty-tasting skin) and have been told by my doctors that I could live a very healthy life for many, many years to come (I'm currently 32). The key is to take care of yourself (because, even if you are mild, CF is progressive), which is what the diagnosis will help you do. It is a HUGE lifestyle change, getting in all your CPT and treatments and doctors appointments and stuff, but it doesn't have to be as bleak as Dr. Google might tell you <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
I have a very good friend who went through a similar thing recently. Cough, cultured staph, bronchiectasis, some stomach issues, etc. Initially her sweat test was negative but border line. Her first genetic test came back inconclusive. It took years, but she was finally diagnosed with CF (and the only reason she kept pushing for testing was because she knew me.)
<br />
<br />Like Melissa said, although this is very scary for anyone, a proper diagnosis will allow you to get the care you need and keep you healthy. And, it sounds like you have a fairly mild case of CF. I do as well (although I was diagnosed as a baby due to salty-tasting skin) and have been told by my doctors that I could live a very healthy life for many, many years to come (I'm currently 32). The key is to take care of yourself (because, even if you are mild, CF is progressive), which is what the diagnosis will help you do. It is a HUGE lifestyle change, getting in all your CPT and treatments and doctors appointments and stuff, but it doesn't have to be as bleak as Dr. Google might tell you <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
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