I agree that our healthcare costs in this country are crazy...even crazier is that so many are without insurance. It seems that the only way you can get affordable or free insurance is if you fall within the very poor or the fairly wealthy categories. The middle class tends to have a very hard time getting or affording insurance...state insurance is difficult to get because they make too much and sometimes through their jobs, the premiums are crazy. Yes, I know that there are a lucky few who have managable insurance premiums. I know...I was one of those middle class workers at one time. It seemed that everytime I turned around, those deductions from my paycheck were increasing and the coverage was getting worse. I really feel for those who have small businesses and have to buy insurance outright...my dad falls under that category. He is too young to get Mediccare but needs the health care. He makes too much for Medicaid, so he has to buy insurance. On a positive note, some states are beginning to institute insurance at a lower cost for these small business owners. In NY, it is called Healthy NY. They also are beginning to help those who make too much for medicaid to provide insurance for their kids (Child health plus), even if they make a substantial amount of money. I think that is great, as my kids are taken care of that way, otherwise they would have no insurance for my kids as I make too much money for Medicaid, even though I am on disability.
When I was growing up, my mother actually made too much to get any state help regarding insurance for our family even though she was supporting 5 kids by herself!!! So, lucky I wasn't too sickly or any other of my other siblings for that matter (I wasn't diagnosed with CF until last year) or I don't know what she would do. There weren't any programs out there to help us then.
As far as others who need meds, try the companies that make the meds...alot of them do have programs that help those who have limited funds. I know of the TOBI foundation. Other good resources include your doctor. In my case, my doctor does have an individual who specializes in low income folks who need meds and helps them get it via federal programs etc....
Also, many hospitals have funds set aside for those who do not have insurance or cannot cover the entire bill. I know the hospital I go to does indeed have this program, I have actually taken advantage of this. If you do go into the hospital, ask for the financial advisor, he or she will hopefully be able to help you with the bills, apply for the appropriate programs etc..Case workers are also helpful too.
I also agree that med costs are crazy, even if it takes R&D 10 years to bring it to market. Who in reality's sake can afford the $3000+ it costs for 28 days of TOBI or even the costs of other meds like those for reflux, heart meds (can be pricey), and oh, let's not forget the Creon, if they didn't qualify for help?
When I was a nurse, I often did admission interviews on the new incoming patients. Do you know how many of them did not take their prescribed meds because they could not afford them? (Particularly the elderly who were on fixed incomes and had absolutely no insurance coverage...pre Medicare D). Most of these people had chronic medical issues, like congestive heart failure, COPD or diabetes, but had to hold off on their meds at times because they needed to eat or had another expense that needed to be taken care of. Many times, the docs felt that their exacerbations of their illnesses were related to the fact that they didn't take their meds (they called it non compliant...yeah, there were those who were non compliant but many didn't take their meds because they couldn't afford them every month)
Okay, that's my rant....
Hey Sean, have you ever seen the documentary "Super Size Me"? It really is an eye opener as far as discussing how eating fast foods and lack of physical eductation in our schools and its impact on our health as well as our children's, partidularly obesity issues. (I know alot of those with CF don't have an obesity issue, but about 60% of Americans are considered either overweight or obese) The main character (Morgan) in the movie basically goes on a one month binge on McDonalds, eating nothing but McDonald products for 30 days while being monitored by a cardiologist, GI doc, a registered dietitian and a primary doc to see how this would affect his health. He gets regular blood draws to check his bodily functions. In the end, he gains something like 25lbs in one month, his liver turns to fat and becomes inflamed and experiencing other problem such as palpitations and chest pains. People say that most people don't eat that much fast food, but sadly, there are people who eat it more than once a day! Of course, during the movie, many other issues are discussed such as gastric bypass, how companies spend so much money advertising foods on TV, in magazines etc....
I really like the quote presented in the movie: "We don't have health care in America, we have sick care"
AS far as the article goes, I am glad that they are indeed working on new meds for resistant bugs...we need more of them as the bacteria grow smarter. Right now there are only a handful of drugs out there that can combat bugs like MRSA and VRE, so my fingers are crossed!
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">