Pregnant Again

Mommy2Alysa

New member
Update:

Got the amnio results back.. this baby does 100% have both the mutated genes that our daugther has so this one has CF also.

Upset and worried? Of course but this way our kids can do their treatments together and give support to one another like my husabnd and I cant. We are only carriers and dont really know what it FEELS like to haev CF whereas our children do and will be able to support each other in a way that a lot of "normal" siblings cant.

Thanks for your encouraging words and I am not that scared anymore. Having two with CF wont be that much more life changing then having one (except for teh hospital visits). We'll just take it one day at a time. Like someone said in a previous post, I wouldnt trade my kids for the world.
 

Mommy2Alysa

New member
Update:

Got the amnio results back.. this baby does 100% have both the mutated genes that our daugther has so this one has CF also.

Upset and worried? Of course but this way our kids can do their treatments together and give support to one another like my husabnd and I cant. We are only carriers and dont really know what it FEELS like to haev CF whereas our children do and will be able to support each other in a way that a lot of "normal" siblings cant.

Thanks for your encouraging words and I am not that scared anymore. Having two with CF wont be that much more life changing then having one (except for teh hospital visits). We'll just take it one day at a time. Like someone said in a previous post, I wouldnt trade my kids for the world.
 

Scarlett81

New member
I think you are looking at it in the best most healthy way possible. None of my siblings had cf, so I can imagine that as I got older I'd appreciate having someone who literally understood what it was like. People try to understand but they just can't.
Things will be fine-you're already a great mom for your first and the second will be no different.
Remember-you're having a baby!!!!! Not a 'cfer'....A new child with its own looks and personality and silly habits. It will make you laugh and cry and drive you nuts!
<img src="i/expressions/heart.gif" border="0">
 

Scarlett81

New member
I think you are looking at it in the best most healthy way possible. None of my siblings had cf, so I can imagine that as I got older I'd appreciate having someone who literally understood what it was like. People try to understand but they just can't.
Things will be fine-you're already a great mom for your first and the second will be no different.
Remember-you're having a baby!!!!! Not a 'cfer'....A new child with its own looks and personality and silly habits. It will make you laugh and cry and drive you nuts!
<img src="i/expressions/heart.gif" border="0">
 

Scarlett81

New member
I think you are looking at it in the best most healthy way possible. None of my siblings had cf, so I can imagine that as I got older I'd appreciate having someone who literally understood what it was like. People try to understand but they just can't.
Things will be fine-you're already a great mom for your first and the second will be no different.
Remember-you're having a baby!!!!! Not a 'cfer'....A new child with its own looks and personality and silly habits. It will make you laugh and cry and drive you nuts!
<img src="i/expressions/heart.gif" border="0">
 

julie

New member
if you think it will give you peace of mind to find out, then I would recommend doing the testing. At least that way you can mentally prepare instead of 9 months of wondering.

As for your quesiton about others with more than one child.... Mark has CF and his brother (from the same mom and dad) is not even a CARRIER! So he got one end of the spectrum and his brother got the other.

Mark's parents didn't have more children after him but that wasn't because of the CF. They only wanted two, and the marriage was strained from the get-go anways.

I know that only sort of answers your questions.
 

julie

New member
if you think it will give you peace of mind to find out, then I would recommend doing the testing. At least that way you can mentally prepare instead of 9 months of wondering.

As for your quesiton about others with more than one child.... Mark has CF and his brother (from the same mom and dad) is not even a CARRIER! So he got one end of the spectrum and his brother got the other.

Mark's parents didn't have more children after him but that wasn't because of the CF. They only wanted two, and the marriage was strained from the get-go anways.

I know that only sort of answers your questions.
 

julie

New member
if you think it will give you peace of mind to find out, then I would recommend doing the testing. At least that way you can mentally prepare instead of 9 months of wondering.

As for your quesiton about others with more than one child.... Mark has CF and his brother (from the same mom and dad) is not even a CARRIER! So he got one end of the spectrum and his brother got the other.

Mark's parents didn't have more children after him but that wasn't because of the CF. They only wanted two, and the marriage was strained from the get-go anways.

I know that only sort of answers your questions.
 

blindhearted

New member
At least you got the test, and even though it wasnt the result you were hoping for, you now know and can prepare. You seem to be handling it with a positive attitude. Remember everything happens for a reason and God doesnt put more on you than you can handle (even though sometimes it doesnt seem that way). Enjoy being preggers. Congrats on baby #2. Good luck with everything. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
At least you got the test, and even though it wasnt the result you were hoping for, you now know and can prepare. You seem to be handling it with a positive attitude. Remember everything happens for a reason and God doesnt put more on you than you can handle (even though sometimes it doesnt seem that way). Enjoy being preggers. Congrats on baby #2. Good luck with everything. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
At least you got the test, and even though it wasnt the result you were hoping for, you now know and can prepare. You seem to be handling it with a positive attitude. Remember everything happens for a reason and God doesnt put more on you than you can handle (even though sometimes it doesnt seem that way). Enjoy being preggers. Congrats on baby #2. Good luck with everything. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Smacys

New member
My boyfriend and I unexpectedly became pregnant recently. We both had blood testing done after the fact and found out that we are carries of CF. So, we did the amnio and got the results yesterday that the baby tested positive for CF. I am now 18 weeks pregnant and am crushed that my baby will be so sick. I have no idea what to do. Before yesterday, I knew nothing of CF, but I met with a doctor and have been researching it online for the past 24 hours. I am considering not moving forward with the pregnancy, but I can't stand the idea of abortion. I already love this baby and either option seems horrible. If I have the baby, I could face a life of constant worry and sorrow. If I don't, then I know a part of me will die when I have the abortion. I am reaching out as I need to know more about what it is like to live with a child that is suffering from CF. Is it fair to knowingly bring he/she into the world with such a condition?

Any advice would be much appreciated.
 

Smacys

New member
My boyfriend and I unexpectedly became pregnant recently. We both had blood testing done after the fact and found out that we are carries of CF. So, we did the amnio and got the results yesterday that the baby tested positive for CF. I am now 18 weeks pregnant and am crushed that my baby will be so sick. I have no idea what to do. Before yesterday, I knew nothing of CF, but I met with a doctor and have been researching it online for the past 24 hours. I am considering not moving forward with the pregnancy, but I can't stand the idea of abortion. I already love this baby and either option seems horrible. If I have the baby, I could face a life of constant worry and sorrow. If I don't, then I know a part of me will die when I have the abortion. I am reaching out as I need to know more about what it is like to live with a child that is suffering from CF. Is it fair to knowingly bring he/she into the world with such a condition?

Any advice would be much appreciated.
 

Smacys

New member
My boyfriend and I unexpectedly became pregnant recently. We both had blood testing done after the fact and found out that we are carries of CF. So, we did the amnio and got the results yesterday that the baby tested positive for CF. I am now 18 weeks pregnant and am crushed that my baby will be so sick. I have no idea what to do. Before yesterday, I knew nothing of CF, but I met with a doctor and have been researching it online for the past 24 hours. I am considering not moving forward with the pregnancy, but I can't stand the idea of abortion. I already love this baby and either option seems horrible. If I have the baby, I could face a life of constant worry and sorrow. If I don't, then I know a part of me will die when I have the abortion. I am reaching out as I need to know more about what it is like to live with a child that is suffering from CF. Is it fair to knowingly bring he/she into the world with such a condition?

Any advice would be much appreciated.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Smacys</b></i>

My boyfriend and I unexpectedly became pregnant recently. We both had blood testing done after the fact and found out that we are carries of CF. So, we did the amnio and got the results yesterday that the baby tested positive for CF. I am now 18 weeks pregnant and am crushed that my baby will be so sick. I have no idea what to do. Before yesterday, I knew nothing of CF, but I met with a doctor and have been researching it online for the past 24 hours. I am considering not moving forward with the pregnancy, but I can't stand the idea of abortion. I already love this baby and either option seems horrible. If I have the baby, I could face a life of constant worry and sorrow. If I don't, then I know a part of me will die when I have the abortion. I am reaching out as I need to know more about what it is like to live with a child that is suffering from CF. Is it fair to knowingly bring he/she into the world with such a condition?

THis is a very hot, emotional & controvertial topic. If you ask most of us who are ALREADY born/living if we wanted to be born, we would say "of course". Will it be easy......at some point no. Will be be fair.....at some point no. Its not a predictable illness even with research, statistics etc. There is no guaratee of anything. IF you decide to terminate remember that since you are both carriers there will be a 25% chance with EACH pregnancy that the baby will have CF so you might want to consider alternative ways to be a parent. IF you decide to proceded with the pregnant then I would recommend you educate yourself, get things in place that makes it difficult for CFers later on. I, for one, dont really think much about it. IF my parents knew & decided not to have me then I wouldnt be here to talk about it. I cant say I am upset about having CF either since its all I know. Do I get upset, frustrated & angry at times....hell ya. Why wouldnt I? I also learned to accept & be a lot more tolerant & compassionate toward people because of it. So many views on such a personal matter. What it comes down to is what your & your husband will do no matter what input you get from here. Good LUck & if you proceded with the pregnancy, please be sure to return here with thoughts, concerns and questions during and after the pregnancy!



Any advice would be much appreciated.</end quote></div>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Smacys</b></i>

My boyfriend and I unexpectedly became pregnant recently. We both had blood testing done after the fact and found out that we are carries of CF. So, we did the amnio and got the results yesterday that the baby tested positive for CF. I am now 18 weeks pregnant and am crushed that my baby will be so sick. I have no idea what to do. Before yesterday, I knew nothing of CF, but I met with a doctor and have been researching it online for the past 24 hours. I am considering not moving forward with the pregnancy, but I can't stand the idea of abortion. I already love this baby and either option seems horrible. If I have the baby, I could face a life of constant worry and sorrow. If I don't, then I know a part of me will die when I have the abortion. I am reaching out as I need to know more about what it is like to live with a child that is suffering from CF. Is it fair to knowingly bring he/she into the world with such a condition?

THis is a very hot, emotional & controvertial topic. If you ask most of us who are ALREADY born/living if we wanted to be born, we would say "of course". Will it be easy......at some point no. Will be be fair.....at some point no. Its not a predictable illness even with research, statistics etc. There is no guaratee of anything. IF you decide to terminate remember that since you are both carriers there will be a 25% chance with EACH pregnancy that the baby will have CF so you might want to consider alternative ways to be a parent. IF you decide to proceded with the pregnant then I would recommend you educate yourself, get things in place that makes it difficult for CFers later on. I, for one, dont really think much about it. IF my parents knew & decided not to have me then I wouldnt be here to talk about it. I cant say I am upset about having CF either since its all I know. Do I get upset, frustrated & angry at times....hell ya. Why wouldnt I? I also learned to accept & be a lot more tolerant & compassionate toward people because of it. So many views on such a personal matter. What it comes down to is what your & your husband will do no matter what input you get from here. Good LUck & if you proceded with the pregnancy, please be sure to return here with thoughts, concerns and questions during and after the pregnancy!



Any advice would be much appreciated.</end quote></div>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Smacys</b></i>

My boyfriend and I unexpectedly became pregnant recently. We both had blood testing done after the fact and found out that we are carries of CF. So, we did the amnio and got the results yesterday that the baby tested positive for CF. I am now 18 weeks pregnant and am crushed that my baby will be so sick. I have no idea what to do. Before yesterday, I knew nothing of CF, but I met with a doctor and have been researching it online for the past 24 hours. I am considering not moving forward with the pregnancy, but I can't stand the idea of abortion. I already love this baby and either option seems horrible. If I have the baby, I could face a life of constant worry and sorrow. If I don't, then I know a part of me will die when I have the abortion. I am reaching out as I need to know more about what it is like to live with a child that is suffering from CF. Is it fair to knowingly bring he/she into the world with such a condition?

THis is a very hot, emotional & controvertial topic. If you ask most of us who are ALREADY born/living if we wanted to be born, we would say "of course". Will it be easy......at some point no. Will be be fair.....at some point no. Its not a predictable illness even with research, statistics etc. There is no guaratee of anything. IF you decide to terminate remember that since you are both carriers there will be a 25% chance with EACH pregnancy that the baby will have CF so you might want to consider alternative ways to be a parent. IF you decide to proceded with the pregnant then I would recommend you educate yourself, get things in place that makes it difficult for CFers later on. I, for one, dont really think much about it. IF my parents knew & decided not to have me then I wouldnt be here to talk about it. I cant say I am upset about having CF either since its all I know. Do I get upset, frustrated & angry at times....hell ya. Why wouldnt I? I also learned to accept & be a lot more tolerant & compassionate toward people because of it. So many views on such a personal matter. What it comes down to is what your & your husband will do no matter what input you get from here. Good LUck & if you proceded with the pregnancy, please be sure to return here with thoughts, concerns and questions during and after the pregnancy!



Any advice would be much appreciated.</end quote></div>
 
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