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pregnant with a low FEV1
- Thread starter shuv
- Start date
Transplantmommy
New member
Hi Shuv and welcome to the site. I was not in your exact situation but it was pretty darn close. I was referred for transplant in November 2004 and started the transplant evlauations for double lung and liver in June 2005. I went back to the Cleveland Clinic in July for some more testing and then found out on August 1 that I was 9 weeks pregnant. All of my doctors told me to abort the pregnancy because of how high risk it was and also the fact that I was close to being on the transplant list. I was at about 40% lung function.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
Transplantmommy
New member
Hi Shuv and welcome to the site. I was not in your exact situation but it was pretty darn close. I was referred for transplant in November 2004 and started the transplant evlauations for double lung and liver in June 2005. I went back to the Cleveland Clinic in July for some more testing and then found out on August 1 that I was 9 weeks pregnant. All of my doctors told me to abort the pregnancy because of how high risk it was and also the fact that I was close to being on the transplant list. I was at about 40% lung function.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
Transplantmommy
New member
Hi Shuv and welcome to the site. I was not in your exact situation but it was pretty darn close. I was referred for transplant in November 2004 and started the transplant evlauations for double lung and liver in June 2005. I went back to the Cleveland Clinic in July for some more testing and then found out on August 1 that I was 9 weeks pregnant. All of my doctors told me to abort the pregnancy because of how high risk it was and also the fact that I was close to being on the transplant list. I was at about 40% lung function.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
Transplantmommy
New member
Hi Shuv and welcome to the site. I was not in your exact situation but it was pretty darn close. I was referred for transplant in November 2004 and started the transplant evlauations for double lung and liver in June 2005. I went back to the Cleveland Clinic in July for some more testing and then found out on August 1 that I was 9 weeks pregnant. All of my doctors told me to abort the pregnancy because of how high risk it was and also the fact that I was close to being on the transplant list. I was at about 40% lung function.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
Take Care and let us know what you decide.
Transplantmommy
New member
Hi Shuv and welcome to the site. I was not in your exact situation but it was pretty darn close. I was referred for transplant in November 2004 and started the transplant evlauations for double lung and liver in June 2005. I went back to the Cleveland Clinic in July for some more testing and then found out on August 1 that I was 9 weeks pregnant. All of my doctors told me to abort the pregnancy because of how high risk it was and also the fact that I was close to being on the transplant list. I was at about 40% lung function.
<br />
<br />I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
<br />
<br />I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
<br />
<br />I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
<br />
<br />I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
<br />
<br />My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
<br />
<br />I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
<br />
<br />I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
<br />
<br />It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
<br />
<br />If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
<br />
<br />Take Care and let us know what you decide.
<br />
<br />I was warned that if I went ahead with the pregnancy there was 1. a chance the baby would have CF and 2. there was no guarantee that they could save the baby (or me for that matter) if something went wrong. I was also told that they would not let me go full term and that I would have a c-section no matter what because the pushing would be way too much on my body.
<br />
<br />I continued to get my normal lung infecitons while I was pregnant but I actually felt the best that I had felt in a while. I had no complications, no early labor or anything like that. On December 5 when I had a follow-up with my CF doctor, he sent me to my OB, and they suggested that I be hospitalized until I had the baby because they felt that I needed to be monitored 24/7 at that point. In the hospital, they tracked the heart beat 2 times a day and I had an ultrasound once or twice a week. They kept track of my weight, how my lungs were doing, and a few other things.
<br />
<br />I was in the hospital for Christmas and New Years and then they decided on January 9th that they would perform the c-section the next day. The baby had dropped a little in activity and it was also getting a little harder for me to breathe as the baby was getting bigger. So, on January 10, 2006, I had a c-section to deliver a perfectly healthy 3lb 5oz little boy. He was born at 33 weeks. The doctors tied my tubes (with my consent) so that I would not get pregnant again so I could get listed and get the transplant. I was in the hospital for 4 more days and Brady was in for a little over a month. He needed to gain weight, get rid of the jaundice, and learn how to suck from a bottle. He came home on Valentine's Day 2006 weighing exactly 5 lbs. He has not been hopitalized for anything since and he is doing great. He will be 4 years old in 2 months!!!
<br />
<br />I went back to the Cleveland Clinic in March 2006 to continue on with the testing and after everything was complete, I was listed for double lung and liver transplant on August 24. I spent a 63 day stay in the hospital from September to December that year, waiting for the transplant, and when the doctors weren't getting any organs for me, they sent me home for the holidays and Brady's first birthday. On January 22 I started coughing up a lot of blood at home (probably anywhere from 3-4 cups) and I was rushed to my CF hospital where I was admitted and had an embolization to stop the bleeding. I coughed up some more blood the next morning and had another embolization and once things calmed down, I was air lifted to Cleveland Clinic in January 27, 2007.
<br />
<br />My doctors talked to me about taking me off of the liver list and just going for the lungs, because they felt that another bleed like that would kill me and I knew that they were right. On January 30 my doctor came into my room to tell me that they had the organs...lungs and liver and I went into surgery that night. I came out with brand new organs, great oxygen levels, pink fingernails, and color to my face on January 31 and I have been doing well since.
<br />
<br />I would not recommend that anyone get pregnant on purpose while they have a low lung function, but I feel that if they are in a situation like I was, then it doesn't hurt to try to go along with the pregnancy as long as the doctors monitor you closely and you tell them when anything (even little things) do not feel right. Also know that if anything does go wrong and they have to save you or the baby, it is their moral obligation to save you over the baby.
<br />
<br />I would also recommend that you do not try to go full term if you decide to keep the baby. It's hard for any healthy person to be pregnant, it's much harder for someone like you or me. This may also be a dertermining factor in if you go through with keeping the baby...the doctors failed to mention to me that I would not be advised to have any children after having transplant because of the stress on the body and the meds that we are on. Had I terminated my pregnancy, I would not have the chance to carry a child again, and that really upset me that the doctors didn't tell me that.
<br />
<br />It is really your choice in what you want to do. I am a very strong willed person and I felt like I was "healthy" enough to carrry a child even though the doctors advised me not to.
<br />
<br />If you want to ask me more questions or want to keep in contact, you can e-mail me at tripletransplant@yahoo.com or locate me at www.facebook.com/transplantmommy
<br />
<br />Take Care and let us know what you decide.
well first of all congrats! i dont really have any advice. i have a fev-1 of around 40-43%. im not on a tx list. but i have had the tx talk. as of now i dont need to be listed. anyways. i've never talked to anybody that is pregnant with a low fev-1. i know the risks and i've read the cf husbands blog. if it was me..id personally go for it, and i would be confindent about it. that's just me though. even though my fev-1 is low, i feel healthy, i do whatever i want and CF doesnt really slow me down. i dont really pay too much attention to the numbers, i just go by how i feel.
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
well first of all congrats! i dont really have any advice. i have a fev-1 of around 40-43%. im not on a tx list. but i have had the tx talk. as of now i dont need to be listed. anyways. i've never talked to anybody that is pregnant with a low fev-1. i know the risks and i've read the cf husbands blog. if it was me..id personally go for it, and i would be confindent about it. that's just me though. even though my fev-1 is low, i feel healthy, i do whatever i want and CF doesnt really slow me down. i dont really pay too much attention to the numbers, i just go by how i feel.
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
well first of all congrats! i dont really have any advice. i have a fev-1 of around 40-43%. im not on a tx list. but i have had the tx talk. as of now i dont need to be listed. anyways. i've never talked to anybody that is pregnant with a low fev-1. i know the risks and i've read the cf husbands blog. if it was me..id personally go for it, and i would be confindent about it. that's just me though. even though my fev-1 is low, i feel healthy, i do whatever i want and CF doesnt really slow me down. i dont really pay too much attention to the numbers, i just go by how i feel.
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
well first of all congrats! i dont really have any advice. i have a fev-1 of around 40-43%. im not on a tx list. but i have had the tx talk. as of now i dont need to be listed. anyways. i've never talked to anybody that is pregnant with a low fev-1. i know the risks and i've read the cf husbands blog. if it was me..id personally go for it, and i would be confindent about it. that's just me though. even though my fev-1 is low, i feel healthy, i do whatever i want and CF doesnt really slow me down. i dont really pay too much attention to the numbers, i just go by how i feel.
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
well first of all congrats! i dont really have any advice. i have a fev-1 of around 40-43%. im not on a tx list. but i have had the tx talk. as of now i dont need to be listed. anyways. i've never talked to anybody that is pregnant with a low fev-1. i know the risks and i've read the cf husbands blog. if it was me..id personally go for it, and i would be confindent about it. that's just me though. even though my fev-1 is low, i feel healthy, i do whatever i want and CF doesnt really slow me down. i dont really pay too much attention to the numbers, i just go by how i feel.
<br />i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
<br />i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />i've wondered myself if id ever become pregnant. i have a boyfriend of two years, and we dont use any protection..(well now we do, i got on depo to help gain weight) and i never got pregnant. i was thinkin maybe i couldnt, or maybe id just have a hard time getting pregnant.
<br />i wish you luck, and you've gave me alittle bit of hope. i want to be a mom one day. <img src="i/expressions/face-icon-small-smile.gif" border="0">