Prenatal diagnosis

Andrea · Sep 28, 2008

I saw a specialist throughout my pregnancy with my son who does have CF. We did not do amniostecies but found at after he was born that he had CF. I did want to tell you that they found a choroid plexus cysts at about 20 weeks as well. When we went back at 28 weeks the cyst closed. Our doctor told us when he found the cyst that most of the time the cyst do close.

Andrea · Sep 28, 2008

I saw a specialist throughout my pregnancy with my son who does have CF. We did not do amniostecies but found at after he was born that he had CF. I did want to tell you that they found a choroid plexus cysts at about 20 weeks as well. When we went back at 28 weeks the cyst closed. Our doctor told us when he found the cyst that most of the time the cyst do close.

Andrea · Sep 28, 2008

I saw a specialist throughout my pregnancy with my son who does have CF. We did not do amniostecies but found at after he was born that he had CF. I did want to tell you that they found a choroid plexus cysts at about 20 weeks as well. When we went back at 28 weeks the cyst closed. Our doctor told us when he found the cyst that most of the time the cyst do close.

Andrea · Sep 28, 2008

I saw a specialist throughout my pregnancy with my son who does have CF. We did not do amniostecies but found at after he was born that he had CF. I did want to tell you that they found a choroid plexus cysts at about 20 weeks as well. When we went back at 28 weeks the cyst closed. Our doctor told us when he found the cyst that most of the time the cyst do close.

Andrea · Sep 28, 2008

I saw a specialist throughout my pregnancy with my son who does have CF. We did not do amniostecies but found at after he was born that he had CF. I did want to tell you that they found a choroid plexus cysts at about 20 weeks as well. When we went back at 28 weeks the cyst closed. Our doctor told us when he found the cyst that most of the time the cyst do close.

kitomd21 · Sep 29, 2008

Shell -

My son (no CF) was barely a year and a half old when our little Ellie (with CF) was born - taking care of both of them hasn't been as demanding as I thought it would be. Granted, there are "extra" things we do for her - we do her chest treatments 3x daily (approx 10 mins each time), give her an inhaler at the time of chest treatments, give her enzymes with each meal, vitamins once daily, and Zantax 3x daily. However, the amount of time it takes to do these things is minimal at this point in time. As she gets older, her treatments will be longer and the number of medications will increase. I wouldn't have chosen not to have her based on a concern of time constraints - don't let that be a factor! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Other than her treatments, she's a normal little girl. She smiles all the time and loves her daddy in that special daughter to daddy way already!!

As someone else posted, you have no way of knowing how CF will progress. Each individual is different - even if they carry the same mutations. We met with a geneticist when we found out my husband and I were carriers of the delta 508 mutation....I was pregnant with our son at the time. She essentially stressed that we have an amniocentesis because we carried the "worst mutation" and suggested that we would have a "choice" if he was CF positive. We didn't have the amnio because we were going to have him anyway - it wasn't his fault if he had CF. For the geneticist to have said that we should consider abortion because we carry the "worst mutation" was uncalled for - as I've stated before, two individuals with the same mutations won't experience the same CF path. Delta 508 merely yields "classic CF" but there is no way of knowing how each individual will respond. If we abort children because they have CF, we should abort all children with other life-threatening diseases...but that's an argument for eugenics.

I feel I have to be honest and say that I'm against abortion...just as those who have posted are honest about saying they are pro-choice. I don't want to sound preachy in any way...but please understand that a "choice" at this late stage is difficult for me to accept. You know your child is a boy...I know somebody who's child was born at 23 weeks (just 4 weeks farther than you are in your pregnancy) and they are doing well as amazing as that is!

Understand that I look at my Ellie each day and think about her future. Will she live beyond the average lifespan? Will she succumb at a much earlier age? How will she be affected by CF? That's not easy and I don't think it ever will be...but I love her with all my heart and being - just as much as her bigger brother. CF or not, she has two parents who are fighting for her and will love her every step of the way. Who knows how CF will affect her beyond the illness itself? Who knows who she'll meet? Who's lives will she touch? I'm grateful for my little girl and wouldn't have chosen to make my life less blessed by her presence....

Take care...love your little boy and be as strong for him as he will most certainly need.

kitomd21 · Sep 29, 2008

Shell -

My son (no CF) was barely a year and a half old when our little Ellie (with CF) was born - taking care of both of them hasn't been as demanding as I thought it would be. Granted, there are "extra" things we do for her - we do her chest treatments 3x daily (approx 10 mins each time), give her an inhaler at the time of chest treatments, give her enzymes with each meal, vitamins once daily, and Zantax 3x daily. However, the amount of time it takes to do these things is minimal at this point in time. As she gets older, her treatments will be longer and the number of medications will increase. I wouldn't have chosen not to have her based on a concern of time constraints - don't let that be a factor! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Other than her treatments, she's a normal little girl. She smiles all the time and loves her daddy in that special daughter to daddy way already!!

As someone else posted, you have no way of knowing how CF will progress. Each individual is different - even if they carry the same mutations. We met with a geneticist when we found out my husband and I were carriers of the delta 508 mutation....I was pregnant with our son at the time. She essentially stressed that we have an amniocentesis because we carried the "worst mutation" and suggested that we would have a "choice" if he was CF positive. We didn't have the amnio because we were going to have him anyway - it wasn't his fault if he had CF. For the geneticist to have said that we should consider abortion because we carry the "worst mutation" was uncalled for - as I've stated before, two individuals with the same mutations won't experience the same CF path. Delta 508 merely yields "classic CF" but there is no way of knowing how each individual will respond. If we abort children because they have CF, we should abort all children with other life-threatening diseases...but that's an argument for eugenics.

I feel I have to be honest and say that I'm against abortion...just as those who have posted are honest about saying they are pro-choice. I don't want to sound preachy in any way...but please understand that a "choice" at this late stage is difficult for me to accept. You know your child is a boy...I know somebody who's child was born at 23 weeks (just 4 weeks farther than you are in your pregnancy) and they are doing well as amazing as that is!

Understand that I look at my Ellie each day and think about her future. Will she live beyond the average lifespan? Will she succumb at a much earlier age? How will she be affected by CF? That's not easy and I don't think it ever will be...but I love her with all my heart and being - just as much as her bigger brother. CF or not, she has two parents who are fighting for her and will love her every step of the way. Who knows how CF will affect her beyond the illness itself? Who knows who she'll meet? Who's lives will she touch? I'm grateful for my little girl and wouldn't have chosen to make my life less blessed by her presence....

Take care...love your little boy and be as strong for him as he will most certainly need.

kitomd21 · Sep 29, 2008

Shell -

My son (no CF) was barely a year and a half old when our little Ellie (with CF) was born - taking care of both of them hasn't been as demanding as I thought it would be. Granted, there are "extra" things we do for her - we do her chest treatments 3x daily (approx 10 mins each time), give her an inhaler at the time of chest treatments, give her enzymes with each meal, vitamins once daily, and Zantax 3x daily. However, the amount of time it takes to do these things is minimal at this point in time. As she gets older, her treatments will be longer and the number of medications will increase. I wouldn't have chosen not to have her based on a concern of time constraints - don't let that be a factor! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Other than her treatments, she's a normal little girl. She smiles all the time and loves her daddy in that special daughter to daddy way already!!

As someone else posted, you have no way of knowing how CF will progress. Each individual is different - even if they carry the same mutations. We met with a geneticist when we found out my husband and I were carriers of the delta 508 mutation....I was pregnant with our son at the time. She essentially stressed that we have an amniocentesis because we carried the "worst mutation" and suggested that we would have a "choice" if he was CF positive. We didn't have the amnio because we were going to have him anyway - it wasn't his fault if he had CF. For the geneticist to have said that we should consider abortion because we carry the "worst mutation" was uncalled for - as I've stated before, two individuals with the same mutations won't experience the same CF path. Delta 508 merely yields "classic CF" but there is no way of knowing how each individual will respond. If we abort children because they have CF, we should abort all children with other life-threatening diseases...but that's an argument for eugenics.

I feel I have to be honest and say that I'm against abortion...just as those who have posted are honest about saying they are pro-choice. I don't want to sound preachy in any way...but please understand that a "choice" at this late stage is difficult for me to accept. You know your child is a boy...I know somebody who's child was born at 23 weeks (just 4 weeks farther than you are in your pregnancy) and they are doing well as amazing as that is!

Understand that I look at my Ellie each day and think about her future. Will she live beyond the average lifespan? Will she succumb at a much earlier age? How will she be affected by CF? That's not easy and I don't think it ever will be...but I love her with all my heart and being - just as much as her bigger brother. CF or not, she has two parents who are fighting for her and will love her every step of the way. Who knows how CF will affect her beyond the illness itself? Who knows who she'll meet? Who's lives will she touch? I'm grateful for my little girl and wouldn't have chosen to make my life less blessed by her presence....

Take care...love your little boy and be as strong for him as he will most certainly need.

kitomd21 · Sep 29, 2008

Shell -

My son (no CF) was barely a year and a half old when our little Ellie (with CF) was born - taking care of both of them hasn't been as demanding as I thought it would be. Granted, there are "extra" things we do for her - we do her chest treatments 3x daily (approx 10 mins each time), give her an inhaler at the time of chest treatments, give her enzymes with each meal, vitamins once daily, and Zantax 3x daily. However, the amount of time it takes to do these things is minimal at this point in time. As she gets older, her treatments will be longer and the number of medications will increase. I wouldn't have chosen not to have her based on a concern of time constraints - don't let that be a factor! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Other than her treatments, she's a normal little girl. She smiles all the time and loves her daddy in that special daughter to daddy way already!!

As someone else posted, you have no way of knowing how CF will progress. Each individual is different - even if they carry the same mutations. We met with a geneticist when we found out my husband and I were carriers of the delta 508 mutation....I was pregnant with our son at the time. She essentially stressed that we have an amniocentesis because we carried the "worst mutation" and suggested that we would have a "choice" if he was CF positive. We didn't have the amnio because we were going to have him anyway - it wasn't his fault if he had CF. For the geneticist to have said that we should consider abortion because we carry the "worst mutation" was uncalled for - as I've stated before, two individuals with the same mutations won't experience the same CF path. Delta 508 merely yields "classic CF" but there is no way of knowing how each individual will respond. If we abort children because they have CF, we should abort all children with other life-threatening diseases...but that's an argument for eugenics.

I feel I have to be honest and say that I'm against abortion...just as those who have posted are honest about saying they are pro-choice. I don't want to sound preachy in any way...but please understand that a "choice" at this late stage is difficult for me to accept. You know your child is a boy...I know somebody who's child was born at 23 weeks (just 4 weeks farther than you are in your pregnancy) and they are doing well as amazing as that is!

Understand that I look at my Ellie each day and think about her future. Will she live beyond the average lifespan? Will she succumb at a much earlier age? How will she be affected by CF? That's not easy and I don't think it ever will be...but I love her with all my heart and being - just as much as her bigger brother. CF or not, she has two parents who are fighting for her and will love her every step of the way. Who knows how CF will affect her beyond the illness itself? Who knows who she'll meet? Who's lives will she touch? I'm grateful for my little girl and wouldn't have chosen to make my life less blessed by her presence....

Take care...love your little boy and be as strong for him as he will most certainly need.

kitomd21 · Sep 29, 2008

Shell -
 
 My son (no CF) was barely a year and a half old when our little Ellie (with CF) was born - taking care of both of them hasn't been as demanding as I thought it would be. Granted, there are "extra" things we do for her - we do her chest treatments 3x daily (approx 10 mins each time), give her an inhaler at the time of chest treatments, give her enzymes with each meal, vitamins once daily, and Zantax 3x daily. However, the amount of time it takes to do these things is minimal at this point in time. As she gets older, her treatments will be longer and the number of medications will increase. I wouldn't have chosen not to have her based on a concern of time constraints - don't let that be a factor! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Other than her treatments, she's a normal little girl. She smiles all the time and loves her daddy in that special daughter to daddy way already!!
 
 As someone else posted, you have no way of knowing how CF will progress. Each individual is different - even if they carry the same mutations. We met with a geneticist when we found out my husband and I were carriers of the delta 508 mutation....I was pregnant with our son at the time. She essentially stressed that we have an amniocentesis because we carried the "worst mutation" and suggested that we would have a "choice" if he was CF positive. We didn't have the amnio because we were going to have him anyway - it wasn't his fault if he had CF. For the geneticist to have said that we should consider abortion because we carry the "worst mutation" was uncalled for - as I've stated before, two individuals with the same mutations won't experience the same CF path. Delta 508 merely yields "classic CF" but there is no way of knowing how each individual will respond. If we abort children because they have CF, we should abort all children with other life-threatening diseases...but that's an argument for eugenics.
 
 I feel I have to be honest and say that I'm against abortion...just as those who have posted are honest about saying they are pro-choice. I don't want to sound preachy in any way...but please understand that a "choice" at this late stage is difficult for me to accept. You know your child is a boy...I know somebody who's child was born at 23 weeks (just 4 weeks farther than you are in your pregnancy) and they are doing well as amazing as that is!
 
 Understand that I look at my Ellie each day and think about her future. Will she live beyond the average lifespan? Will she succumb at a much earlier age? How will she be affected by CF? That's not easy and I don't think it ever will be...but I love her with all my heart and being - just as much as her bigger brother. CF or not, she has two parents who are fighting for her and will love her every step of the way. Who knows how CF will affect her beyond the illness itself? Who knows who she'll meet? Who's lives will she touch? I'm grateful for my little girl and wouldn't have chosen to make my life less blessed by her presence....
 
 Take care...love your little boy and be as strong for him as he will most certainly need.

arbrown5676 · Sep 29, 2008

The choice is totally up to you.. but please choose wisely.

This is just my opinion .. don't take it too personal.

I can relate with your situation completely. My husband and I are a young couple, and we have two beautiful little girls. Makenna is now 19 months, and Raegan 4 months. Makenna is a healthy, happy, toddler that just bounces off the walls. Raegan has CF.. and she is a VERY active, happy baby.

Yes, having a child with CF is very stressful. I've laid awake so many nights.. and I've cried myself to sleep, so many nights.

I couldn't imagine life without either of my daughters. As a mother.. you take what you get and make the best of it. A baby that was made out of love (and even those that are not), deserve to be loved. If theirs one thing I've learned from being a mother it's that you love and care for your child no matter what. It's a personal choice to terminate a pregnancy.. what you do is your business, your choice.. but if you do terminate your baby .. are you going to be able to live with this choice, without thinking.. what if?

Everyday is one step closer to a cure. Everyday with Raegan is a blessing. I wish I could take her disease from her, but I can't.. and this was one of the hardest things to except. Im her mommy.. Im suppose to take all her "boo-boos", all her pain away.. but with this I can't. It kills me to think of everything she's going to go through BUT when I look in her eye's I see HOPE.. I see a FUTURE. I see a little girl that I wont give up on.

Makenna, like any toddler requires a lot of attention, and Raegan, like every other baby.. requires a lot of attention. Raegan's medication, chest therapy, and sometimes (not very often) nebulizer treatments, became a daily routine.. and after you get use to it.. it becomes very normal.

With the baby's medical expenses, you can get a medical card from the state. My husband is in the Navy.. so we have insurance through the military, but if we didn't have that we would have a medical card for Raegan. You could even get a medical card for co-pay's if you already have insurance.

The positive way I look at Raegan having CF.. you can't look at her and say she has it, she can see her surroundings, she will soon be crawling.. and walking, she will still have friends, she can still go to the park, she can still live a very normal life, despite the things that CF brings. Some have symptom's worse than other's, with Raegan being so little.. we have no clue how severe her CF will be, until she's older. Regardless of her condition, or the symptoms.. she's always be my baby, and I'll make the best of it.. as any parent would for a perfectly healthy child.

With Makenna, being a child with no health problems, Im so thankful, but at the same time.. Im thankful for my sick child just the same. A mother's love is never ending.. regardless the situation.

Sorry, I wrote a book. Just think wisely on your decision.. it's one that you will never be able to go back and change.. or one that you will ever be able to erase.

arbrown5676 · Sep 29, 2008

The choice is totally up to you.. but please choose wisely.

This is just my opinion .. don't take it too personal.

I can relate with your situation completely. My husband and I are a young couple, and we have two beautiful little girls. Makenna is now 19 months, and Raegan 4 months. Makenna is a healthy, happy, toddler that just bounces off the walls. Raegan has CF.. and she is a VERY active, happy baby.

Yes, having a child with CF is very stressful. I've laid awake so many nights.. and I've cried myself to sleep, so many nights.

I couldn't imagine life without either of my daughters. As a mother.. you take what you get and make the best of it. A baby that was made out of love (and even those that are not), deserve to be loved. If theirs one thing I've learned from being a mother it's that you love and care for your child no matter what. It's a personal choice to terminate a pregnancy.. what you do is your business, your choice.. but if you do terminate your baby .. are you going to be able to live with this choice, without thinking.. what if?

Everyday is one step closer to a cure. Everyday with Raegan is a blessing. I wish I could take her disease from her, but I can't.. and this was one of the hardest things to except. Im her mommy.. Im suppose to take all her "boo-boos", all her pain away.. but with this I can't. It kills me to think of everything she's going to go through BUT when I look in her eye's I see HOPE.. I see a FUTURE. I see a little girl that I wont give up on.

Makenna, like any toddler requires a lot of attention, and Raegan, like every other baby.. requires a lot of attention. Raegan's medication, chest therapy, and sometimes (not very often) nebulizer treatments, became a daily routine.. and after you get use to it.. it becomes very normal.

With the baby's medical expenses, you can get a medical card from the state. My husband is in the Navy.. so we have insurance through the military, but if we didn't have that we would have a medical card for Raegan. You could even get a medical card for co-pay's if you already have insurance.

The positive way I look at Raegan having CF.. you can't look at her and say she has it, she can see her surroundings, she will soon be crawling.. and walking, she will still have friends, she can still go to the park, she can still live a very normal life, despite the things that CF brings. Some have symptom's worse than other's, with Raegan being so little.. we have no clue how severe her CF will be, until she's older. Regardless of her condition, or the symptoms.. she's always be my baby, and I'll make the best of it.. as any parent would for a perfectly healthy child.

With Makenna, being a child with no health problems, Im so thankful, but at the same time.. Im thankful for my sick child just the same. A mother's love is never ending.. regardless the situation.

Sorry, I wrote a book. Just think wisely on your decision.. it's one that you will never be able to go back and change.. or one that you will ever be able to erase.

arbrown5676 · Sep 29, 2008

The choice is totally up to you.. but please choose wisely.

This is just my opinion .. don't take it too personal.

I can relate with your situation completely. My husband and I are a young couple, and we have two beautiful little girls. Makenna is now 19 months, and Raegan 4 months. Makenna is a healthy, happy, toddler that just bounces off the walls. Raegan has CF.. and she is a VERY active, happy baby.

Yes, having a child with CF is very stressful. I've laid awake so many nights.. and I've cried myself to sleep, so many nights.

I couldn't imagine life without either of my daughters. As a mother.. you take what you get and make the best of it. A baby that was made out of love (and even those that are not), deserve to be loved. If theirs one thing I've learned from being a mother it's that you love and care for your child no matter what. It's a personal choice to terminate a pregnancy.. what you do is your business, your choice.. but if you do terminate your baby .. are you going to be able to live with this choice, without thinking.. what if?

Everyday is one step closer to a cure. Everyday with Raegan is a blessing. I wish I could take her disease from her, but I can't.. and this was one of the hardest things to except. Im her mommy.. Im suppose to take all her "boo-boos", all her pain away.. but with this I can't. It kills me to think of everything she's going to go through BUT when I look in her eye's I see HOPE.. I see a FUTURE. I see a little girl that I wont give up on.

Makenna, like any toddler requires a lot of attention, and Raegan, like every other baby.. requires a lot of attention. Raegan's medication, chest therapy, and sometimes (not very often) nebulizer treatments, became a daily routine.. and after you get use to it.. it becomes very normal.

With the baby's medical expenses, you can get a medical card from the state. My husband is in the Navy.. so we have insurance through the military, but if we didn't have that we would have a medical card for Raegan. You could even get a medical card for co-pay's if you already have insurance.

The positive way I look at Raegan having CF.. you can't look at her and say she has it, she can see her surroundings, she will soon be crawling.. and walking, she will still have friends, she can still go to the park, she can still live a very normal life, despite the things that CF brings. Some have symptom's worse than other's, with Raegan being so little.. we have no clue how severe her CF will be, until she's older. Regardless of her condition, or the symptoms.. she's always be my baby, and I'll make the best of it.. as any parent would for a perfectly healthy child.

With Makenna, being a child with no health problems, Im so thankful, but at the same time.. Im thankful for my sick child just the same. A mother's love is never ending.. regardless the situation.

Sorry, I wrote a book. Just think wisely on your decision.. it's one that you will never be able to go back and change.. or one that you will ever be able to erase.

arbrown5676 · Sep 29, 2008

The choice is totally up to you.. but please choose wisely.

This is just my opinion .. don't take it too personal.

I can relate with your situation completely. My husband and I are a young couple, and we have two beautiful little girls. Makenna is now 19 months, and Raegan 4 months. Makenna is a healthy, happy, toddler that just bounces off the walls. Raegan has CF.. and she is a VERY active, happy baby.

Yes, having a child with CF is very stressful. I've laid awake so many nights.. and I've cried myself to sleep, so many nights.

I couldn't imagine life without either of my daughters. As a mother.. you take what you get and make the best of it. A baby that was made out of love (and even those that are not), deserve to be loved. If theirs one thing I've learned from being a mother it's that you love and care for your child no matter what. It's a personal choice to terminate a pregnancy.. what you do is your business, your choice.. but if you do terminate your baby .. are you going to be able to live with this choice, without thinking.. what if?

Everyday is one step closer to a cure. Everyday with Raegan is a blessing. I wish I could take her disease from her, but I can't.. and this was one of the hardest things to except. Im her mommy.. Im suppose to take all her "boo-boos", all her pain away.. but with this I can't. It kills me to think of everything she's going to go through BUT when I look in her eye's I see HOPE.. I see a FUTURE. I see a little girl that I wont give up on.

Makenna, like any toddler requires a lot of attention, and Raegan, like every other baby.. requires a lot of attention. Raegan's medication, chest therapy, and sometimes (not very often) nebulizer treatments, became a daily routine.. and after you get use to it.. it becomes very normal.

With the baby's medical expenses, you can get a medical card from the state. My husband is in the Navy.. so we have insurance through the military, but if we didn't have that we would have a medical card for Raegan. You could even get a medical card for co-pay's if you already have insurance.

The positive way I look at Raegan having CF.. you can't look at her and say she has it, she can see her surroundings, she will soon be crawling.. and walking, she will still have friends, she can still go to the park, she can still live a very normal life, despite the things that CF brings. Some have symptom's worse than other's, with Raegan being so little.. we have no clue how severe her CF will be, until she's older. Regardless of her condition, or the symptoms.. she's always be my baby, and I'll make the best of it.. as any parent would for a perfectly healthy child.

With Makenna, being a child with no health problems, Im so thankful, but at the same time.. Im thankful for my sick child just the same. A mother's love is never ending.. regardless the situation.

Sorry, I wrote a book. Just think wisely on your decision.. it's one that you will never be able to go back and change.. or one that you will ever be able to erase.

arbrown5676 · Sep 29, 2008

The choice is totally up to you.. but please choose wisely.
 
 This is just my opinion .. don't take it too personal.
 
 I can relate with your situation completely. My husband and I are a young couple, and we have two beautiful little girls. Makenna is now 19 months, and Raegan 4 months. Makenna is a healthy, happy, toddler that just bounces off the walls. Raegan has CF.. and she is a VERY active, happy baby.
 
 Yes, having a child with CF is very stressful. I've laid awake so many nights.. and I've cried myself to sleep, so many nights.
 
 I couldn't imagine life without either of my daughters. As a mother.. you take what you get and make the best of it. A baby that was made out of love (and even those that are not), deserve to be loved. If theirs one thing I've learned from being a mother it's that you love and care for your child no matter what. It's a personal choice to terminate a pregnancy.. what you do is your business, your choice.. but if you do terminate your baby .. are you going to be able to live with this choice, without thinking.. what if?
 
 Everyday is one step closer to a cure. Everyday with Raegan is a blessing. I wish I could take her disease from her, but I can't.. and this was one of the hardest things to except. Im her mommy.. Im suppose to take all her "boo-boos", all her pain away.. but with this I can't. It kills me to think of everything she's going to go through BUT when I look in her eye's I see HOPE.. I see a FUTURE. I see a little girl that I wont give up on.
 
 Makenna, like any toddler requires a lot of attention, and Raegan, like every other baby.. requires a lot of attention. Raegan's medication, chest therapy, and sometimes (not very often) nebulizer treatments, became a daily routine.. and after you get use to it.. it becomes very normal.
 
 With the baby's medical expenses, you can get a medical card from the state. My husband is in the Navy.. so we have insurance through the military, but if we didn't have that we would have a medical card for Raegan. You could even get a medical card for co-pay's if you already have insurance.
 
 The positive way I look at Raegan having CF.. you can't look at her and say she has it, she can see her surroundings, she will soon be crawling.. and walking, she will still have friends, she can still go to the park, she can still live a very normal life, despite the things that CF brings. Some have symptom's worse than other's, with Raegan being so little.. we have no clue how severe her CF will be, until she's older. Regardless of her condition, or the symptoms.. she's always be my baby, and I'll make the best of it.. as any parent would for a perfectly healthy child.
 
 With Makenna, being a child with no health problems, Im so thankful, but at the same time.. Im thankful for my sick child just the same. A mother's love is never ending.. regardless the situation.
 
 Sorry, I wrote a book. Just think wisely on your decision.. it's one that you will never be able to go back and change.. or one that you will ever be able to erase.

missymoo · Sep 29, 2008

Well, had our meeting with the doctors today. We had already pretty much made our decision before we went with much deliberation, heartache and tears. We have decided to keep our wee boy and deal with what life throws at us. At least we have plenty of time to prepare and adjust for this huge change that is going to happen in our lives. By the by, he is the df580 mutation, which the doctor said was the most common, but said nothing about the "worst" and after already reading posts about this point, I wasn't going to take much notice of what mutation he had anyway. The doctor was really positive and I'm so glad I met with her. We will now meet the CF nurse in our area and a family to help get some of our questions answered. I don't live in the US so our healthcare system is hugely different, but I know that a lot of medications are funded by the government. I will need to research some of the other stuff.

As everyone has said, how serious he will be is anyone's guess is it is very individual apparently - just luck of the draw. We will deal with these sorts of things when they happen.

I really appreciate everyone's kind words and thoughts. It is the support that we receive that is going to make all the difference...

missymoo · Sep 29, 2008

Well, had our meeting with the doctors today. We had already pretty much made our decision before we went with much deliberation, heartache and tears. We have decided to keep our wee boy and deal with what life throws at us. At least we have plenty of time to prepare and adjust for this huge change that is going to happen in our lives. By the by, he is the df580 mutation, which the doctor said was the most common, but said nothing about the "worst" and after already reading posts about this point, I wasn't going to take much notice of what mutation he had anyway. The doctor was really positive and I'm so glad I met with her. We will now meet the CF nurse in our area and a family to help get some of our questions answered. I don't live in the US so our healthcare system is hugely different, but I know that a lot of medications are funded by the government. I will need to research some of the other stuff.

As everyone has said, how serious he will be is anyone's guess is it is very individual apparently - just luck of the draw. We will deal with these sorts of things when they happen.

I really appreciate everyone's kind words and thoughts. It is the support that we receive that is going to make all the difference...

missymoo · Sep 29, 2008

Well, had our meeting with the doctors today. We had already pretty much made our decision before we went with much deliberation, heartache and tears. We have decided to keep our wee boy and deal with what life throws at us. At least we have plenty of time to prepare and adjust for this huge change that is going to happen in our lives. By the by, he is the df580 mutation, which the doctor said was the most common, but said nothing about the "worst" and after already reading posts about this point, I wasn't going to take much notice of what mutation he had anyway. The doctor was really positive and I'm so glad I met with her. We will now meet the CF nurse in our area and a family to help get some of our questions answered. I don't live in the US so our healthcare system is hugely different, but I know that a lot of medications are funded by the government. I will need to research some of the other stuff.

As everyone has said, how serious he will be is anyone's guess is it is very individual apparently - just luck of the draw. We will deal with these sorts of things when they happen.

I really appreciate everyone's kind words and thoughts. It is the support that we receive that is going to make all the difference...

missymoo · Sep 29, 2008

Well, had our meeting with the doctors today. We had already pretty much made our decision before we went with much deliberation, heartache and tears. We have decided to keep our wee boy and deal with what life throws at us. At least we have plenty of time to prepare and adjust for this huge change that is going to happen in our lives. By the by, he is the df580 mutation, which the doctor said was the most common, but said nothing about the "worst" and after already reading posts about this point, I wasn't going to take much notice of what mutation he had anyway. The doctor was really positive and I'm so glad I met with her. We will now meet the CF nurse in our area and a family to help get some of our questions answered. I don't live in the US so our healthcare system is hugely different, but I know that a lot of medications are funded by the government. I will need to research some of the other stuff.

As everyone has said, how serious he will be is anyone's guess is it is very individual apparently - just luck of the draw. We will deal with these sorts of things when they happen.

I really appreciate everyone's kind words and thoughts. It is the support that we receive that is going to make all the difference...

missymoo · Sep 29, 2008

Well, had our meeting with the doctors today. We had already pretty much made our decision before we went with much deliberation, heartache and tears. We have decided to keep our wee boy and deal with what life throws at us. At least we have plenty of time to prepare and adjust for this huge change that is going to happen in our lives. By the by, he is the df580 mutation, which the doctor said was the most common, but said nothing about the "worst" and after already reading posts about this point, I wasn't going to take much notice of what mutation he had anyway. The doctor was really positive and I'm so glad I met with her. We will now meet the CF nurse in our area and a family to help get some of our questions answered. I don't live in the US so our healthcare system is hugely different, but I know that a lot of medications are funded by the government. I will need to research some of the other stuff.
 
 As everyone has said, how serious he will be is anyone's guess is it is very individual apparently - just luck of the draw. We will deal with these sorts of things when they happen.
 
 I really appreciate everyone's kind words and thoughts. It is the support that we receive that is going to make all the difference...

Prenatal diagnosis

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