preventative iv course?

[okok]

Personally, I would not do this. I'm not sure about IV antibiotics administered at home but i would be wary of putting my otherwise healthy child in the hospital where she would be more likely to actually get sick from some sort of noscomial infection. Not to mention the fact that broad spectrum antibiotics can have side effects of their own and may even have detrimental effects on the immune system. (Apparently 70% of your immune system is concentrated in your gut and antibiotics tend to disrupt the healthy, protective flora of the gut.)

So while i am completely uneducated about the research demonstrating this to be beneficial, if i were to even consider this technique i would insist that it would be at home NOT in the hospital.

Also i think emily made some good points about antibiotic resistince.

 

[sweetwhite30]

They have done tune ups on isaiah since birth until we moved to delaware.It seems the tune ups done yearly saves him about 60 days a year from being in there.We moved to delaware in 12-15-06 and since then he fell ill every 3 months and never had a tune up in a year and a few months.I suggested he have tune ups yearly and the doc says thats no longer necessary and i told him since coming to delaware he has been sicker because of not having his reg. tuneup yearly.So we are glad his regular yearly tune ups are back to being done...I feel it is a good thing!Yes i worry about him being resistant to the antibilotics but what about tobi you know antibiotic taken 28 on 28 off same thought there????So he has been culture free so i have nothing but good things to say about tuneups...

 

[sweetwhite30]

They have done tune ups on isaiah since birth until we moved to delaware.It seems the tune ups done yearly saves him about 60 days a year from being in there.We moved to delaware in 12-15-06 and since then he fell ill every 3 months and never had a tune up in a year and a few months.I suggested he have tune ups yearly and the doc says thats no longer necessary and i told him since coming to delaware he has been sicker because of not having his reg. tuneup yearly.So we are glad his regular yearly tune ups are back to being done...I feel it is a good thing!Yes i worry about him being resistant to the antibilotics but what about tobi you know antibiotic taken 28 on 28 off same thought there????So he has been culture free so i have nothing but good things to say about tuneups...

 

[sweetwhite30]

They have done tune ups on isaiah since birth until we moved to delaware.It seems the tune ups done yearly saves him about 60 days a year from being in there.We moved to delaware in 12-15-06 and since then he fell ill every 3 months and never had a tune up in a year and a few months.I suggested he have tune ups yearly and the doc says thats no longer necessary and i told him since coming to delaware he has been sicker because of not having his reg. tuneup yearly.So we are glad his regular yearly tune ups are back to being done...I feel it is a good thing!Yes i worry about him being resistant to the antibilotics but what about tobi you know antibiotic taken 28 on 28 off same thought there????So he has been culture free so i have nothing but good things to say about tuneups...

 

[LouLou]

If his pfts are on a downward trend I think a tune up is something to consider. If they are plateaued or on an upward trend, I would say it's not a good idea. The risks need to be assessed and one thing's for sure - if the body isn't fighting an infection, the harshness of the antibiotics and all the good things they will kill can have a detrimental effect on the patient.

Sort of extreme example here, a 17 year old girl went in for a 'tune up.' Her pfts were stable in the high 80s. The doctors felt she could be in the 90s and wanted to see if anti's could help get her there. She went into the hospital where she went on some IV meds (sorry don't know which). They did not have her on probiotics during this time (bad, bad, doctors - shame!). After 7-10 days on the IVs she had no good flora in her gut remaining and c. diff set in. Her immune system zapped by the heavy dose of IVs - she couldn't fight it. She died 2 weeks later after a 2 week battle against c.diff. In December I organized a gift wrapping fundraiser at my local Borders store. One of the ladies that volunteered was this girls mother. You could tell even though it's been 8 years (this happened in '99) she was still so shocked that her daughter died in this way. She expected it to be years later from a dreaded decline from cf. Not at the peak of her health - weeks before prom. So sad.

 

[LouLou]

If his pfts are on a downward trend I think a tune up is something to consider. If they are plateaued or on an upward trend, I would say it's not a good idea. The risks need to be assessed and one thing's for sure - if the body isn't fighting an infection, the harshness of the antibiotics and all the good things they will kill can have a detrimental effect on the patient.

Sort of extreme example here, a 17 year old girl went in for a 'tune up.' Her pfts were stable in the high 80s. The doctors felt she could be in the 90s and wanted to see if anti's could help get her there. She went into the hospital where she went on some IV meds (sorry don't know which). They did not have her on probiotics during this time (bad, bad, doctors - shame!). After 7-10 days on the IVs she had no good flora in her gut remaining and c. diff set in. Her immune system zapped by the heavy dose of IVs - she couldn't fight it. She died 2 weeks later after a 2 week battle against c.diff. In December I organized a gift wrapping fundraiser at my local Borders store. One of the ladies that volunteered was this girls mother. You could tell even though it's been 8 years (this happened in '99) she was still so shocked that her daughter died in this way. She expected it to be years later from a dreaded decline from cf. Not at the peak of her health - weeks before prom. So sad.

 

[LouLou]

If his pfts are on a downward trend I think a tune up is something to consider. If they are plateaued or on an upward trend, I would say it's not a good idea. The risks need to be assessed and one thing's for sure - if the body isn't fighting an infection, the harshness of the antibiotics and all the good things they will kill can have a detrimental effect on the patient.

Sort of extreme example here, a 17 year old girl went in for a 'tune up.' Her pfts were stable in the high 80s. The doctors felt she could be in the 90s and wanted to see if anti's could help get her there. She went into the hospital where she went on some IV meds (sorry don't know which). They did not have her on probiotics during this time (bad, bad, doctors - shame!). After 7-10 days on the IVs she had no good flora in her gut remaining and c. diff set in. Her immune system zapped by the heavy dose of IVs - she couldn't fight it. She died 2 weeks later after a 2 week battle against c.diff. In December I organized a gift wrapping fundraiser at my local Borders store. One of the ladies that volunteered was this girls mother. You could tell even though it's been 8 years (this happened in '99) she was still so shocked that her daughter died in this way. She expected it to be years later from a dreaded decline from cf. Not at the peak of her health - weeks before prom. So sad.

 

[sweetwhite30]

you also have to look at it from the good points for the ones who do need it yearly for health maintenace too....everyones point of view will be different on this issue.

 

[sweetwhite30]

you also have to look at it from the good points for the ones who do need it yearly for health maintenace too....everyones point of view will be different on this issue.

 

[sweetwhite30]

you also have to look at it from the good points for the ones who do need it yearly for health maintenace too....everyones point of view will be different on this issue.

 

[LouLou]

sweetwhite,

When you say 'need it for health maintanance,' is the patient's health regularly declining each year? I'm imagining so and this is why it's being suggested. Just as I started my post out 'if the pft's are on a downward trend a tune up is something to consider.'

To me if a child is getting worse and worse each year other measures than a tune up need to be evaluated for his/her care. A tune up is a 'bandaid.' Likely what should be happening day in day out for his/her health needs an adjustment.

 

[LouLou]

sweetwhite,

When you say 'need it for health maintanance,' is the patient's health regularly declining each year? I'm imagining so and this is why it's being suggested. Just as I started my post out 'if the pft's are on a downward trend a tune up is something to consider.'

To me if a child is getting worse and worse each year other measures than a tune up need to be evaluated for his/her care. A tune up is a 'bandaid.' Likely what should be happening day in day out for his/her health needs an adjustment.

 

[LouLou]

sweetwhite,

When you say 'need it for health maintanance,' is the patient's health regularly declining each year? I'm imagining so and this is why it's being suggested. Just as I started my post out 'if the pft's are on a downward trend a tune up is something to consider.'

To me if a child is getting worse and worse each year other measures than a tune up need to be evaluated for his/her care. A tune up is a 'bandaid.' Likely what should be happening day in day out for his/her health needs an adjustment.