problems with social worker?

R

Ratatosk

Administrator
Staff member
I swear Carrie and I must go to the same clinic <img src="i/expressions/face-icon-small-smile.gif" border="0"> Except I've actually gotten along with our nutritionist.

When we first met the social worker, she wanted to talk about how we as parents were doing emotionally. She's kind of a know it all busy body and kept trying to tell us that DS was slow because he didn't crawl. Couldn't offer us any information on programs because she said we apparently made too much money, we got on the tobi foundation program on our own. She was supposedly going to let us know about vest financing because orginally our insurance was going to have us pay 20% of the cost -- never heard back from her.

We later found out that in our state CFers are automatically eligible for Medical Assistance until they're 3 years old. NO finanical guidelines. We found this out after DS turned 3 after a parent of a new CFer switched to a clinic in the City because she was unhappy with the care their child received.
 
R

Ratatosk

Administrator
Staff member
I swear Carrie and I must go to the same clinic <img src="i/expressions/face-icon-small-smile.gif" border="0"> Except I've actually gotten along with our nutritionist.

When we first met the social worker, she wanted to talk about how we as parents were doing emotionally. She's kind of a know it all busy body and kept trying to tell us that DS was slow because he didn't crawl. Couldn't offer us any information on programs because she said we apparently made too much money, we got on the tobi foundation program on our own. She was supposedly going to let us know about vest financing because orginally our insurance was going to have us pay 20% of the cost -- never heard back from her.

We later found out that in our state CFers are automatically eligible for Medical Assistance until they're 3 years old. NO finanical guidelines. We found this out after DS turned 3 after a parent of a new CFer switched to a clinic in the City because she was unhappy with the care their child received.
 
R

Ratatosk

Administrator
Staff member
I swear Carrie and I must go to the same clinic <img src="i/expressions/face-icon-small-smile.gif" border="0"> Except I've actually gotten along with our nutritionist.

When we first met the social worker, she wanted to talk about how we as parents were doing emotionally. She's kind of a know it all busy body and kept trying to tell us that DS was slow because he didn't crawl. Couldn't offer us any information on programs because she said we apparently made too much money, we got on the tobi foundation program on our own. She was supposedly going to let us know about vest financing because orginally our insurance was going to have us pay 20% of the cost -- never heard back from her.

We later found out that in our state CFers are automatically eligible for Medical Assistance until they're 3 years old. NO finanical guidelines. We found this out after DS turned 3 after a parent of a new CFer switched to a clinic in the City because she was unhappy with the care their child received.
 
R

Ratatosk

Administrator
Staff member
I swear Carrie and I must go to the same clinic <img src="i/expressions/face-icon-small-smile.gif" border="0"> Except I've actually gotten along with our nutritionist.

When we first met the social worker, she wanted to talk about how we as parents were doing emotionally. She's kind of a know it all busy body and kept trying to tell us that DS was slow because he didn't crawl. Couldn't offer us any information on programs because she said we apparently made too much money, we got on the tobi foundation program on our own. She was supposedly going to let us know about vest financing because orginally our insurance was going to have us pay 20% of the cost -- never heard back from her.

We later found out that in our state CFers are automatically eligible for Medical Assistance until they're 3 years old. NO finanical guidelines. We found this out after DS turned 3 after a parent of a new CFer switched to a clinic in the City because she was unhappy with the care their child received.
 
R

Ratatosk

Administrator
Staff member
I swear Carrie and I must go to the same clinic <img src="i/expressions/face-icon-small-smile.gif" border="0"> Except I've actually gotten along with our nutritionist.
<br />
<br />When we first met the social worker, she wanted to talk about how we as parents were doing emotionally. She's kind of a know it all busy body and kept trying to tell us that DS was slow because he didn't crawl. Couldn't offer us any information on programs because she said we apparently made too much money, we got on the tobi foundation program on our own. She was supposedly going to let us know about vest financing because orginally our insurance was going to have us pay 20% of the cost -- never heard back from her.
<br />
<br />We later found out that in our state CFers are automatically eligible for Medical Assistance until they're 3 years old. NO finanical guidelines. We found this out after DS turned 3 after a parent of a new CFer switched to a clinic in the City because she was unhappy with the care their child received.
 
M

Mommafirst

Guest
Cee Cee,

I am so sorry that your social worker was so rude. It is not acceptable at ALL! You need compassion and actually aid to move your situation forward, not snide remarks.

But I don't think that all social workers are like this. Ours is terrific. But its a job and they have real lives too. My sister is a social worker, not for CF, but for children. Its a pretty thankless job, a burnout job, and they get paid very little for all their hours they put in.

While it is unacceptable the way your social worker answered you, she is probably bitter that she works hard and is still "poor".

In the end, you need someone to help you find the services you need. If not the social worker, then who? I know there are amazing people with great knowledge around here. Hopefully someone can point you in the direction of some other programs, but in the meantime you might check with the CFF to see if any of your sons meds have patient assistance programs to help.

Hang in there!!
 
M

Mommafirst

Guest
Cee Cee,

I am so sorry that your social worker was so rude. It is not acceptable at ALL! You need compassion and actually aid to move your situation forward, not snide remarks.

But I don't think that all social workers are like this. Ours is terrific. But its a job and they have real lives too. My sister is a social worker, not for CF, but for children. Its a pretty thankless job, a burnout job, and they get paid very little for all their hours they put in.

While it is unacceptable the way your social worker answered you, she is probably bitter that she works hard and is still "poor".

In the end, you need someone to help you find the services you need. If not the social worker, then who? I know there are amazing people with great knowledge around here. Hopefully someone can point you in the direction of some other programs, but in the meantime you might check with the CFF to see if any of your sons meds have patient assistance programs to help.

Hang in there!!
 
M

Mommafirst

Guest
Cee Cee,

I am so sorry that your social worker was so rude. It is not acceptable at ALL! You need compassion and actually aid to move your situation forward, not snide remarks.

But I don't think that all social workers are like this. Ours is terrific. But its a job and they have real lives too. My sister is a social worker, not for CF, but for children. Its a pretty thankless job, a burnout job, and they get paid very little for all their hours they put in.

While it is unacceptable the way your social worker answered you, she is probably bitter that she works hard and is still "poor".

In the end, you need someone to help you find the services you need. If not the social worker, then who? I know there are amazing people with great knowledge around here. Hopefully someone can point you in the direction of some other programs, but in the meantime you might check with the CFF to see if any of your sons meds have patient assistance programs to help.

Hang in there!!
 
M

Mommafirst

Guest
Cee Cee,

I am so sorry that your social worker was so rude. It is not acceptable at ALL! You need compassion and actually aid to move your situation forward, not snide remarks.

But I don't think that all social workers are like this. Ours is terrific. But its a job and they have real lives too. My sister is a social worker, not for CF, but for children. Its a pretty thankless job, a burnout job, and they get paid very little for all their hours they put in.

While it is unacceptable the way your social worker answered you, she is probably bitter that she works hard and is still "poor".

In the end, you need someone to help you find the services you need. If not the social worker, then who? I know there are amazing people with great knowledge around here. Hopefully someone can point you in the direction of some other programs, but in the meantime you might check with the CFF to see if any of your sons meds have patient assistance programs to help.

Hang in there!!
 
M

Mommafirst

Guest
Cee Cee,
<br />
<br />I am so sorry that your social worker was so rude. It is not acceptable at ALL! You need compassion and actually aid to move your situation forward, not snide remarks.
<br />
<br />But I don't think that all social workers are like this. Ours is terrific. But its a job and they have real lives too. My sister is a social worker, not for CF, but for children. Its a pretty thankless job, a burnout job, and they get paid very little for all their hours they put in.
<br />
<br />While it is unacceptable the way your social worker answered you, she is probably bitter that she works hard and is still "poor".
<br />
<br />In the end, you need someone to help you find the services you need. If not the social worker, then who? I know there are amazing people with great knowledge around here. Hopefully someone can point you in the direction of some other programs, but in the meantime you might check with the CFF to see if any of your sons meds have patient assistance programs to help.
<br />
<br />Hang in there!!
<br />
 
T

Terry

Guest
Hi Cee Cee,

I totally understand your frustration. Our social worker has never been able to help us with any of the financial stuff. I have made a PITA out of myself and done a lot of "squeaking" to get oiled.

My suggestion to you would be to look up the local Children's Medical Services office in your area. It is a federal program that helps children with genetic diseases get their meds. You can have it even if you have health insurance, the way it works is they pick up the tab after your prescription insuance is maxed out. You don't even have to go into an office to apply here in Maryland, they mail or fax you a package, which you fill out and mail or fax back with the usual proof of income, residence, and need papers. We don't qualify for medical assistance because of income, but it is easier to get this. (And you get an answer from them QUICKLY as to whether or not you qualify).

The way I got this information originally was to send letters to all the politicians that represent my state, and even threaten to stand out in front of the governor's mansion with a poster that said: "Governor Ehrlich doesn't think children need to breathe!" I know that sounds whacko, but it was because at the time I, like you, was suddenly thrown into a situation where not only Marissa, but my son who was taking $1300.00 worth of asthma meds a month, were kicked off of MCHIP because we had kept our insurance, and was only using MCHIP to help with prescriptions. We at the time qualified financially, but he signed a bill kicking all kids with private insurance off, to save the state money.

We were told by the SW that if we dropped our insurance we would be able to get MCHIP again in 6 months, at which time they would pay three months back, leaving us only to cover 3 months out of pocket. This same day I heard on the radio how the governor was wanting to pay criminals $25.00 a month to not reoffend when they get out of jail. So I called his office to complain about how their "plan" would not and could not save the state money, as I was only asking for help with RX's, but if they made me drop my insurance, the state would pay for DR visits as well. The kind gentleman taking the message suggested I "move some place cheaper." I went off on him about how even moving some place free would not help with these enormous med bills, and he hung up on me. So I made a sign, took a picture of it, and e-mailed it to the governor's office with a note stating what time I expected to be arriving in front of his mansion. Long story short, his office called me within the hour, gave me the number for CMS, and the next day we were approved for CMS. (Of course we did all the paper work as soon as we got it).

Point to that LONG story: You are only beaten when you quit. We elect and pay those people to do what is right, and letting kids suffer while paying criminals, or giving out free methodone to people is not right. Get out your boxing gloves and go get those politicians. (Just be careful that you don't act TOO scary, lol).

Good Luck,
Terry
 
T

Terry

Guest
Hi Cee Cee,

I totally understand your frustration. Our social worker has never been able to help us with any of the financial stuff. I have made a PITA out of myself and done a lot of "squeaking" to get oiled.

My suggestion to you would be to look up the local Children's Medical Services office in your area. It is a federal program that helps children with genetic diseases get their meds. You can have it even if you have health insurance, the way it works is they pick up the tab after your prescription insuance is maxed out. You don't even have to go into an office to apply here in Maryland, they mail or fax you a package, which you fill out and mail or fax back with the usual proof of income, residence, and need papers. We don't qualify for medical assistance because of income, but it is easier to get this. (And you get an answer from them QUICKLY as to whether or not you qualify).

The way I got this information originally was to send letters to all the politicians that represent my state, and even threaten to stand out in front of the governor's mansion with a poster that said: "Governor Ehrlich doesn't think children need to breathe!" I know that sounds whacko, but it was because at the time I, like you, was suddenly thrown into a situation where not only Marissa, but my son who was taking $1300.00 worth of asthma meds a month, were kicked off of MCHIP because we had kept our insurance, and was only using MCHIP to help with prescriptions. We at the time qualified financially, but he signed a bill kicking all kids with private insurance off, to save the state money.

We were told by the SW that if we dropped our insurance we would be able to get MCHIP again in 6 months, at which time they would pay three months back, leaving us only to cover 3 months out of pocket. This same day I heard on the radio how the governor was wanting to pay criminals $25.00 a month to not reoffend when they get out of jail. So I called his office to complain about how their "plan" would not and could not save the state money, as I was only asking for help with RX's, but if they made me drop my insurance, the state would pay for DR visits as well. The kind gentleman taking the message suggested I "move some place cheaper." I went off on him about how even moving some place free would not help with these enormous med bills, and he hung up on me. So I made a sign, took a picture of it, and e-mailed it to the governor's office with a note stating what time I expected to be arriving in front of his mansion. Long story short, his office called me within the hour, gave me the number for CMS, and the next day we were approved for CMS. (Of course we did all the paper work as soon as we got it).

Point to that LONG story: You are only beaten when you quit. We elect and pay those people to do what is right, and letting kids suffer while paying criminals, or giving out free methodone to people is not right. Get out your boxing gloves and go get those politicians. (Just be careful that you don't act TOO scary, lol).

Good Luck,
Terry
 
T

Terry

Guest
Hi Cee Cee,

I totally understand your frustration. Our social worker has never been able to help us with any of the financial stuff. I have made a PITA out of myself and done a lot of "squeaking" to get oiled.

My suggestion to you would be to look up the local Children's Medical Services office in your area. It is a federal program that helps children with genetic diseases get their meds. You can have it even if you have health insurance, the way it works is they pick up the tab after your prescription insuance is maxed out. You don't even have to go into an office to apply here in Maryland, they mail or fax you a package, which you fill out and mail or fax back with the usual proof of income, residence, and need papers. We don't qualify for medical assistance because of income, but it is easier to get this. (And you get an answer from them QUICKLY as to whether or not you qualify).

The way I got this information originally was to send letters to all the politicians that represent my state, and even threaten to stand out in front of the governor's mansion with a poster that said: "Governor Ehrlich doesn't think children need to breathe!" I know that sounds whacko, but it was because at the time I, like you, was suddenly thrown into a situation where not only Marissa, but my son who was taking $1300.00 worth of asthma meds a month, were kicked off of MCHIP because we had kept our insurance, and was only using MCHIP to help with prescriptions. We at the time qualified financially, but he signed a bill kicking all kids with private insurance off, to save the state money.

We were told by the SW that if we dropped our insurance we would be able to get MCHIP again in 6 months, at which time they would pay three months back, leaving us only to cover 3 months out of pocket. This same day I heard on the radio how the governor was wanting to pay criminals $25.00 a month to not reoffend when they get out of jail. So I called his office to complain about how their "plan" would not and could not save the state money, as I was only asking for help with RX's, but if they made me drop my insurance, the state would pay for DR visits as well. The kind gentleman taking the message suggested I "move some place cheaper." I went off on him about how even moving some place free would not help with these enormous med bills, and he hung up on me. So I made a sign, took a picture of it, and e-mailed it to the governor's office with a note stating what time I expected to be arriving in front of his mansion. Long story short, his office called me within the hour, gave me the number for CMS, and the next day we were approved for CMS. (Of course we did all the paper work as soon as we got it).

Point to that LONG story: You are only beaten when you quit. We elect and pay those people to do what is right, and letting kids suffer while paying criminals, or giving out free methodone to people is not right. Get out your boxing gloves and go get those politicians. (Just be careful that you don't act TOO scary, lol).

Good Luck,
Terry
 
T

Terry

Guest
Hi Cee Cee,

I totally understand your frustration. Our social worker has never been able to help us with any of the financial stuff. I have made a PITA out of myself and done a lot of "squeaking" to get oiled.

My suggestion to you would be to look up the local Children's Medical Services office in your area. It is a federal program that helps children with genetic diseases get their meds. You can have it even if you have health insurance, the way it works is they pick up the tab after your prescription insuance is maxed out. You don't even have to go into an office to apply here in Maryland, they mail or fax you a package, which you fill out and mail or fax back with the usual proof of income, residence, and need papers. We don't qualify for medical assistance because of income, but it is easier to get this. (And you get an answer from them QUICKLY as to whether or not you qualify).

The way I got this information originally was to send letters to all the politicians that represent my state, and even threaten to stand out in front of the governor's mansion with a poster that said: "Governor Ehrlich doesn't think children need to breathe!" I know that sounds whacko, but it was because at the time I, like you, was suddenly thrown into a situation where not only Marissa, but my son who was taking $1300.00 worth of asthma meds a month, were kicked off of MCHIP because we had kept our insurance, and was only using MCHIP to help with prescriptions. We at the time qualified financially, but he signed a bill kicking all kids with private insurance off, to save the state money.

We were told by the SW that if we dropped our insurance we would be able to get MCHIP again in 6 months, at which time they would pay three months back, leaving us only to cover 3 months out of pocket. This same day I heard on the radio how the governor was wanting to pay criminals $25.00 a month to not reoffend when they get out of jail. So I called his office to complain about how their "plan" would not and could not save the state money, as I was only asking for help with RX's, but if they made me drop my insurance, the state would pay for DR visits as well. The kind gentleman taking the message suggested I "move some place cheaper." I went off on him about how even moving some place free would not help with these enormous med bills, and he hung up on me. So I made a sign, took a picture of it, and e-mailed it to the governor's office with a note stating what time I expected to be arriving in front of his mansion. Long story short, his office called me within the hour, gave me the number for CMS, and the next day we were approved for CMS. (Of course we did all the paper work as soon as we got it).

Point to that LONG story: You are only beaten when you quit. We elect and pay those people to do what is right, and letting kids suffer while paying criminals, or giving out free methodone to people is not right. Get out your boxing gloves and go get those politicians. (Just be careful that you don't act TOO scary, lol).

Good Luck,
Terry
 
T

Terry

Guest
Hi Cee Cee,
<br />
<br />I totally understand your frustration. Our social worker has never been able to help us with any of the financial stuff. I have made a PITA out of myself and done a lot of "squeaking" to get oiled.
<br />
<br />My suggestion to you would be to look up the local Children's Medical Services office in your area. It is a federal program that helps children with genetic diseases get their meds. You can have it even if you have health insurance, the way it works is they pick up the tab after your prescription insuance is maxed out. You don't even have to go into an office to apply here in Maryland, they mail or fax you a package, which you fill out and mail or fax back with the usual proof of income, residence, and need papers. We don't qualify for medical assistance because of income, but it is easier to get this. (And you get an answer from them QUICKLY as to whether or not you qualify).
<br />
<br />The way I got this information originally was to send letters to all the politicians that represent my state, and even threaten to stand out in front of the governor's mansion with a poster that said: "Governor Ehrlich doesn't think children need to breathe!" I know that sounds whacko, but it was because at the time I, like you, was suddenly thrown into a situation where not only Marissa, but my son who was taking $1300.00 worth of asthma meds a month, were kicked off of MCHIP because we had kept our insurance, and was only using MCHIP to help with prescriptions. We at the time qualified financially, but he signed a bill kicking all kids with private insurance off, to save the state money.
<br />
<br />We were told by the SW that if we dropped our insurance we would be able to get MCHIP again in 6 months, at which time they would pay three months back, leaving us only to cover 3 months out of pocket. This same day I heard on the radio how the governor was wanting to pay criminals $25.00 a month to not reoffend when they get out of jail. So I called his office to complain about how their "plan" would not and could not save the state money, as I was only asking for help with RX's, but if they made me drop my insurance, the state would pay for DR visits as well. The kind gentleman taking the message suggested I "move some place cheaper." I went off on him about how even moving some place free would not help with these enormous med bills, and he hung up on me. So I made a sign, took a picture of it, and e-mailed it to the governor's office with a note stating what time I expected to be arriving in front of his mansion. Long story short, his office called me within the hour, gave me the number for CMS, and the next day we were approved for CMS. (Of course we did all the paper work as soon as we got it).
<br />
<br />Point to that LONG story: You are only beaten when you quit. We elect and pay those people to do what is right, and letting kids suffer while paying criminals, or giving out free methodone to people is not right. Get out your boxing gloves and go get those politicians. (Just be careful that you don't act TOO scary, lol).
<br />
<br />Good Luck,
<br />Terry
<br />
<br />
 
M

MomOfMiles

New member
I'm sorry you're having such a bad experience!

I'm a social worker...an out of work one ;-) I'm a stay at home mom, casually working on my MSW...I'll finish it sometime!

I agree with the others that CF SWs should have special training and possibly even have personal experience with a CF patient. If it turns out my son has CF and I ever finish my MSW I'd love to work at our local CF clinic...Heck, even if he doesn't have it, I feel like my eyes have really been opened to this community and some of the needs.

I don't really have any advice, since I've not worked with a CF worker, but I just wanted to encourage you to push for the best thing for your child!
 
M

MomOfMiles

New member
I'm sorry you're having such a bad experience!

I'm a social worker...an out of work one ;-) I'm a stay at home mom, casually working on my MSW...I'll finish it sometime!

I agree with the others that CF SWs should have special training and possibly even have personal experience with a CF patient. If it turns out my son has CF and I ever finish my MSW I'd love to work at our local CF clinic...Heck, even if he doesn't have it, I feel like my eyes have really been opened to this community and some of the needs.

I don't really have any advice, since I've not worked with a CF worker, but I just wanted to encourage you to push for the best thing for your child!
 
M

MomOfMiles

New member
I'm sorry you're having such a bad experience!

I'm a social worker...an out of work one ;-) I'm a stay at home mom, casually working on my MSW...I'll finish it sometime!

I agree with the others that CF SWs should have special training and possibly even have personal experience with a CF patient. If it turns out my son has CF and I ever finish my MSW I'd love to work at our local CF clinic...Heck, even if he doesn't have it, I feel like my eyes have really been opened to this community and some of the needs.

I don't really have any advice, since I've not worked with a CF worker, but I just wanted to encourage you to push for the best thing for your child!
 
M

MomOfMiles

New member
I'm sorry you're having such a bad experience!

I'm a social worker...an out of work one ;-) I'm a stay at home mom, casually working on my MSW...I'll finish it sometime!

I agree with the others that CF SWs should have special training and possibly even have personal experience with a CF patient. If it turns out my son has CF and I ever finish my MSW I'd love to work at our local CF clinic...Heck, even if he doesn't have it, I feel like my eyes have really been opened to this community and some of the needs.

I don't really have any advice, since I've not worked with a CF worker, but I just wanted to encourage you to push for the best thing for your child!
 
M

MomOfMiles

New member
I'm sorry you're having such a bad experience!
<br />
<br />I'm a social worker...an out of work one ;-) I'm a stay at home mom, casually working on my MSW...I'll finish it sometime!
<br />
<br />I agree with the others that CF SWs should have special training and possibly even have personal experience with a CF patient. If it turns out my son has CF and I ever finish my MSW I'd love to work at our local CF clinic...Heck, even if he doesn't have it, I feel like my eyes have really been opened to this community and some of the needs.
<br />
<br />I don't really have any advice, since I've not worked with a CF worker, but I just wanted to encourage you to push for the best thing for your child!
 
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