Can anyone tell me what is psuedomonas and has anyone had a young child diagnosed with this?My 5 year old is having his second tune up in 7 months and they told us today he has pseudomonas? I cannot find any info on it, perhaps I am spelling it wrong? I would appreicate any response!
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Psedomonas????
- Thread starter Murgie
- Start date
Can anyone tell me what is psuedomonas and has anyone had a young child diagnosed with this?My 5 year old is having his second tune up in 7 months and they told us today he has pseudomonas? I cannot find any info on it, perhaps I am spelling it wrong? I would appreicate any response!
murgie,my 2 yr old son has cultured twice for Pseudomonas. the main medicine for him was Tobi for 28 days, and cipro for 2 weeks , more vest time. this is the web sight for Tobi www.abouttobi.com, they sent us a pamplet explaining Pseudomonas. by age 5: 35% ,age 10 :56% and 79% by age 20 so its a bacteria we find fairly common in cf.true nam is pseudomonas aeruginosa. correct spelling.if that helps you research more. it is also refered to as P.A. it can be treated and managed. he hasnt cultured it again for 5 months now. any more questions just ask.take care and good luck
Pseudomonas A is a gram stain negative bacteria that is often found in the lungs of CF patients. Once it colonizes (sets up shop for awhile) it is considered nearly impossible to eradicate. Aggressive treatment can eradicate it if it is discovered early. Our daughter had it in her lungs, blood, kidneys, bladder and urine at 4 months. She has not cultured it since that time. Pseudomonas is resistant to almost every oral anti biotic. Pseudomonas is usually fought with IV Tobramycin and Fortaz/Ceftazidine which are highly effective when administered together.It is generally assumed CF patients will eventually become colonized with pseudomonas at some point in their lives. The later this happens, the better. Hope this helps.. Don PDon.patin@gte.net
HI Don, Thank you ever so much for responding! Have you also heard of Malaysia? Not the country of course. Sam had a bronchoscope done Monday and his Pulm..said he showed signs of malaysia which hinders his ability to spit up and out his mucus. I beleive that could cause this psedomonas to grow. I cannot find any info on this one, but thanks to this awesome resource network I have found the information on Psedomonas. I hope your family is well!
hi - my son had tracheamalasia when he had his bronch at 18 mos. They said he would outgrow it. Originally as an infant, he was diagnosed with laryngomalasia - He had reflux and always sounded like he had croup. He doesn't have reflux anymore and it appears as though he did outgrow or develop a more normal shaped trachea. He also tested pos. for pseud. It was when he was dx. with cf at 18 mos. He was on iv antibiotics and TOBI. He has not cultured pos. for pseud. since. Hope this helps. We were at clinic yesterday and I inquired about zithromax. I was told the study was done on an older population and it was a short study. My son just turned 5 and at this time his dr. does not suggest it. It is used for indiv. with pseud. and has shown to improve lung function for some patients. Hope this helps.
HI JoanneThank you for ALL that info. Sam is 5 and on the zithromax? I did hear the study started at 12, but Sam's doctor suggested he start a 6 month trial?How very interesting about the trachmalasia.. That is what Sam has, but at age ^ will he outgrow this?I will inquire with his doctor.One more question... Could psedomonas be caused from an environmental issue? Like if mold was in our home somewhere? Could I have odne anything to avoid him getting this? He is on 4 weeks of toby, fortaz, and CIPRO, as well as the zithromax. I am frightened that he will exhause all future resourses for antibiotics.Thanks so much,
It is my understanding that unfortunately pseud. is and can be in many places around us. That is what make it so difficult for the people with cf. We can try and be as clean and tidy as possible. Other than common sense avoidance I don't think we can do more. We, as parents, need to make and help our children make good, safe choices; yet not make them live in a bubble. There is that quality of life balancing act that is just so difficult.Jo Ann
HELP. Hi there, My son Sam has been diagnosed with MRSA for over a month and we just experienced the trip of our lifes with his make a wish trip! Awesome!!!!Now Sam has Psedomonas again and they say it hides MRSA that is probably still there.He has not been able to see his Grandma in over a month due to her low immune system, yet I am about to send him to school ??????????????????I am so worried about this things that cannot and have not been erradicated, can anyone give me information? I have been applying MANY homeopathic remedies for the glyco nutrient areas, and Ifind NO success or change. I feel anxious and helpless as I watch my now 7 year old deteriorate.Murgeie
AbsintheSorrow
New member
Murgeie.. let me give you a small piece of advice. MRSA and pseudomonas are pretty permanent things. I have them both. So keeping him out of school now really makes no sense. You'd have to keep him out of school forever for that to pan out. And school is totally worth it. He needs to build up an immune system to small stuff like colds and what have you anyway. Trust me, it will be much better for him to build up an immune system as much as possible. I've heard of people before whose mothers homeschooled and whatever, and the kids got pseudomonas at a young age. I was in public schools and wasn't hospitalized once for IV meds until I was almost 17. Just something to think about.
Hi there,I just wanted to ask Murgeie, has he only now cultured the Pseudomonas again recently?Becuase I know many kids that have cultured on and off and they always try to eradicate them each time they do, until the unfortunate happens and they consider them chronically infected.My son cultured Pseudomonas at 10 months old on a Throat swab and then after a cough suction it was discovered that he was growing Staph, Haemophilis and Pseudomonas.He was fortunately well at the time so we got to it early.He was on a 2 week course of TOBI, and others for the other bacteria.Followed by 2 months of Nebulized TOBI at home.Upon completion of treatment he had a clean culture.That was in June and he has been in well health since, we are having another culture done soon but I think that he will still be ok.I really recommend looking at the TOBI site as it is really informative and this drug has been quite successful at eradicating Pseudomonas in many young people when they have cultured it for the first time or a recurrance after that.I hope that helps.I know it is really scary and I freaked out when I found out, I thought it was going to mean that his CF would be more severe.But his doctor assured me that it was very common and highly likely that they would eradicate them.They fortunately were right this time.RebekahMother to Matt 16mths w/CF
Thanks for responding.. Emily I do agree with school and I thank you for that confirmation. I feel bad sending him if he can infect other children with low immune systems though. I have been advised to keep him away from anyone with a compromised immune system. If these 2 bugs never go away, does that mean you must do permament tobi/cipro/augmentin or whatever works????Rebekah, thank you also!!!! I think Sam has had the psedomonas off and on for almost a year. This is his second culture that showed it. last time it was clear but he had MRSA.STaph is really what the MRSA is and I know you mentioned your son had it. Was he hospitalized??? I am surpirsed they are not putting Sam on iv's but with MRSA they do want him isolated at clininc etc.. He had to wear a mask and gloves last visit, so others would not get it!. Sam appears quite healthy on the outside, but WHAT IS HAPPENING INSIDE?. We have done TOBI many times, I think I will suggest it for this one too....I also thought that worked miracles!!!!
Hi, my grandson also contracted the pseudomonas and staph.They also say that they caught it at a early stage and put him on the TOBI inhaler.This was about 1yr6mths.This visit that he had with his doctor he just did the swab to check his progress with the two viruses.We won't know how he tested for another 2 months.But like they say they always will contract these 2 forms of viruses,it just depends on when.The longer it takes for them to contract them is better than sooner.But the TOBI has kept them under control.You will very seldomly clear it from your system,it will remain there dormaint until something wakes again.I'm not going to fib on what was told to me because all you is cover up what is facts on the viruses.You can't keep a child home from school,like the one person said what put your child in a bubble.What little life our children and grandchildren will have with cf I would like him to enjoy.And beleve me he is enjoying it at 3yrs,he is are little dare devil.He fishes,boats,swims,trampoline,motorcycle,hockey,baseball,soccer Well as you can see he will do it all.Have faith in god and everything seems to work out.
Hello Murgeie,Rebekah Here!My son has never been hospitalized for Staph as it has never caused him to have any symptoms.It hasn't been the MRSA though so I think that may be a different story.I know everyone says that once you get Pseudomonas they are there permanently and it will not go away.I have had a very long discusson with a very well respected CF doctor on this matter, as I was told by others that it wouldn't go away ever and it will constantly reappear.This was really worrying to me but the doctor says that 80% of the time they can eradicate until such time it is considered Chronically infected which is 6 continuous cultures.This may be different in another country but where we live this is the advice I had been given.I have been told that Matthew may not culture Pseudomonas again for years, and that is the expectation from his doctor.I may sound like I am living in a dream land of wishful thinking but I am just passing on what I have been told by our CF Doc.Murgeie I really wish you the best and let me know how you go!RebekahMother to Matt 16mths w/CF
I know your fear of him spreading stuff to other children. My Dr told me to just wash my hands often (which I realize you won't have control of this at school) and to cover my mouth with something other than my hand when I cough. And like you mentioned, only kids w/ compromised immune systems are at risk of catching something from him.It's true, you can't keep them in a bubble, so just let him live as normally as possible.<img src="i/expressions/face-icon-small-smile.gif" border="0">
HollyCatheryn
New member
Pseudomonas is found all over the place (ponds, water faucets, people, animals). Environment definitely plays a part. We had to get rid of one dog we had because she got colonized by pseudomonas and we kept getting each other sick!? Bizarre I know. Truth IS stranger than fiction. I've had pseudomonas for as long as I can remember - literally - but my lung function has not been affected. Over the years they've used numerous antibiotics in different combinations to combat it. Pseudomonas is really tricky and it does adapt. I have found that I have the best results when I have Dr.s who aren't overeager to always prescibe antibiotics, but when they do determine antibiotics are necessary, they bring out the big guns right away. It took only a few years to develope resistance to several antibiotics because the Dr I had would put me on a wimpy one or a good one at too low a dose.Within the Pseudomonas Aerigenosa (sp, sorry) I recently found there are other strains, like florescens (it's aerigenosa that glows in the dark - which, if you've gotta have this bug, that's kind of cool).Two things to keep in mind. Keep your child's immune system as strong as possible (I've had great results with Reliv) and fight aggresively any infection that warrants antibiotics.PS - Those heavy duty antibiotics that are so necessary really can mess up a person's gut and mouth/throat with yeast and thrush. Administer loads of acidophilus - it is impossible to take too much - serve yogurt and keep it up from the first dose of antibiotics until about 2 weeks after the treatment has ended. If you quit too soon or don't use enough, you'll still end up with yeast/thrush though not as badly as if you'd not used any at all. This is a life-saver.Also, be very careful to hydrate more than usual as antibiotics - especially strong ones - really dry out the body. Lots of Gatorade and water!