<blockquote>Quote<br><hr><i>Originally posted by: <b>littledebbie</b></i><br>Also, when did having to Pseudo starting meaning that you were automatically on antibiodicts? Pseudo is not a death sentence. Most of the time with breathing treatments and lung clearance with good physical activity you can stay quite healthy even with Pseudo. I think more dangerous than pseudo is drug resistance. Even doing tobi on and off eventually you have an exacerbation and need iv antibiodicts etc. It seems dangerous to me to have already gone for the heavy artillerary at such an early stage of the battle. Again these are just my thoughts I'm not trying to criticize although I do think maybe these are questions it may be worth asking Dr.'s, heck maybe there is some great plan here that I'm not seeing. I agree with Liz though tobi is one of the best they've come up with and I can vouch for 26 years. Great drugs are really few and far between and often they come in the form of improved versions of what we already had..hence the transition form tobramyacin to tobi.....you hate to be building resistance to these unnecessarily. I guess I think you have to look at it like this and say if this <i>is</i> all they come up with, nothing else is coming down the pike and there will be no cure. Is this how you want to have played your hand? Mixed analogies is this post...he he...sorry<hr></blockquote>
Yes @ littledebbie. You can have pseudo and use good lung clearance and exercise, and proper supplements and stay pretty healthy for a long time. I have no idea how long I have had pseudo, probably in my mid to late teens maybe, and im about to be 35. Even without the oregano oil I have been doing, I was at about 83% PFT after my last clean out. Of course everyone is different with their different mutations, so who knows. I find that the vest + what I am doing now makes me feel even better than I do without the vest. I'm gonna try the accapella thingy here soon and see how that feels, and the hypertonic.
It's a hard call when it comes to being the parent of a real young child that has cultured pseudo. The problem with pseudo is that you will ALWAYS get it back. You might "eradicate it" now after a year or two of tobi use at a real young age, but it's guaranteed to get you later on down the line at some age, just because pseudo is EVERYWHERE in our environment and social circles, even if you 100% avoid all other CF patients. Pseudo is in our water, our soil, and on nearly every surface we interact with. About the only way to not contract it would be to stick a child into one of those sterile bubbleboy environments for their entire life, and then i'd bet it would STILL get to them somehow. Pseudo is just a part of having CF, in my opinion, just accept that eventually you will get it for good, and live the best lifestyle you can with exercise, good clearance techniques, and proper supplementation to keep yourself healthy, and you could still live a very long time.
