lovemygirl
New member
I spoke to our clinic nurse today and feel much more reassured. She also briefly talked to me about a pseudomonas vaccine. Has anyone tried this or heard anything about it?
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Pseudomonas
- Thread starter lovemygirl
- Start date
lovemygirl
New member
I spoke to our clinic nurse today and feel much more reassured. She also briefly talked to me about a pseudomonas vaccine. Has anyone tried this or heard anything about it?
Emily65Roses
New member
There is a thread about this vaccine in the adult section. Go here:
http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=1550
http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=1550
Emily65Roses
New member
There is a thread about this vaccine in the adult section. Go here:
http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=1550
http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=1550
I am an Australian mother of a 4yo girl with CF. She has just tested positively for pseudomonas for the second time this year. I feel frazzled as well.
I want more information about where pseudomonas breeds, how to prevent it etc, and stumbled across this site while searching the Internet with no luck. I know the usual, like sinks etc and that it is in water, dirt. Is it airborn?? I didn't think so.
Can you carry it in the house on shoes etc. I am a real clean freak in the house, and she still has it. I realise that I can't control her environment outside the house, and most people I observe are not hygienic at all!!! So, am I just wasting my time and causing myself anxiety??
Kellie
I want more information about where pseudomonas breeds, how to prevent it etc, and stumbled across this site while searching the Internet with no luck. I know the usual, like sinks etc and that it is in water, dirt. Is it airborn?? I didn't think so.
Can you carry it in the house on shoes etc. I am a real clean freak in the house, and she still has it. I realise that I can't control her environment outside the house, and most people I observe are not hygienic at all!!! So, am I just wasting my time and causing myself anxiety??
Kellie
My daughter first cultured it when she was only 4 months....I was a nervous reck! I thought, ok, my daughter has the worst of CF, but even though she has cultured many more times, she is doing awesome! She is now 4 years old and has more energy than any other 4 year old I know. Just keep doing what the docs say to do and don't ever give up hope! I truly believe that our kids will live to find a cure...they are so young and look at what has already been done! Please keep hope and faith!
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<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/rose.gif" border="0">
Many years ago, when CF kids were cultured with pseudomonas,parents were told to start planning a funeral. BOY has that changed over the years. Now, it is not a big deal. Every kid, at some point, gets it. Throw away your bath "poofies". Pseudomonas loves those things. Anywhere there is warmth or moisture, it grows, so just keep a reasonably clean house and you should be okay. You won't be able to keep it away forever. ;o)