PTC 124 ?

Z

zoeg

New member
I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials starting soon.... I'll have to try and get Kate in that. My daughter is only two, so this is just thrilling stuff!!!

Zoe, mom to Kate wCF
 
Z

zoeg

New member
I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials starting soon.... I'll have to try and get Kate in that. My daughter is only two, so this is just thrilling stuff!!!

Zoe, mom to Kate wCF
 
Z

zoeg

New member
I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials starting soon.... I'll have to try and get Kate in that. My daughter is only two, so this is just thrilling stuff!!!

Zoe, mom to Kate wCF
 
Z

zoeg

New member
I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials starting soon.... I'll have to try and get Kate in that. My daughter is only two, so this is just thrilling stuff!!!

Zoe, mom to Kate wCF
 
Z

zoeg

New member
I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials starting soon.... I'll have to try and get Kate in that. My daughter is only two, so this is just thrilling stuff!!!

Zoe, mom to Kate wCF
 
L

LilMaevesMom

New member
Kinda off the subject.....well really, LOL I just wanted to say we too go to STL Childrens <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maeve sees Dr. Cannon.
 
L

LilMaevesMom

New member
Kinda off the subject.....well really, LOL I just wanted to say we too go to STL Childrens <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maeve sees Dr. Cannon.
 
L

LilMaevesMom

New member
Kinda off the subject.....well really, LOL I just wanted to say we too go to STL Childrens <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maeve sees Dr. Cannon.
 
L

LilMaevesMom

New member
Kinda off the subject.....well really, LOL I just wanted to say we too go to STL Childrens <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maeve sees Dr. Cannon.
 
L

LilMaevesMom

New member
Kinda off the subject.....well really, LOL I just wanted to say we too go to STL Childrens <img src="i/expressions/face-icon-small-smile.gif" border="0"> Maeve sees Dr. Cannon.
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Darinsmom</b></i>

You can go to PTCbio.com for updates. I read where they want to try it for pediatrics this year. My son has an X mutation so I'm hoping to get him into a trial. I believe one is going to be done at John Hopkins. 50 sites in the US all together. We go to DuPont in DE and his Dr. said if they don't participate and another site near us will we can get him into that clinic for the clinical trials. I'm excited for this!



laurie</end quote></div>



Great information on the site (www.PTCbio.com). Thank you!!!
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Darinsmom</b></i>

You can go to PTCbio.com for updates. I read where they want to try it for pediatrics this year. My son has an X mutation so I'm hoping to get him into a trial. I believe one is going to be done at John Hopkins. 50 sites in the US all together. We go to DuPont in DE and his Dr. said if they don't participate and another site near us will we can get him into that clinic for the clinical trials. I'm excited for this!



laurie</end quote></div>



Great information on the site (www.PTCbio.com). Thank you!!!
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Darinsmom</b></i>

You can go to PTCbio.com for updates. I read where they want to try it for pediatrics this year. My son has an X mutation so I'm hoping to get him into a trial. I believe one is going to be done at John Hopkins. 50 sites in the US all together. We go to DuPont in DE and his Dr. said if they don't participate and another site near us will we can get him into that clinic for the clinical trials. I'm excited for this!



laurie</end quote></div>



Great information on the site (www.PTCbio.com). Thank you!!!
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Darinsmom</b></i>

You can go to PTCbio.com for updates. I read where they want to try it for pediatrics this year. My son has an X mutation so I'm hoping to get him into a trial. I believe one is going to be done at John Hopkins. 50 sites in the US all together. We go to DuPont in DE and his Dr. said if they don't participate and another site near us will we can get him into that clinic for the clinical trials. I'm excited for this!



laurie</end quote>



Great information on the site (www.PTCbio.com). Thank you!!!
 
M

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Darinsmom</b></i>

You can go to PTCbio.com for updates. I read where they want to try it for pediatrics this year. My son has an X mutation so I'm hoping to get him into a trial. I believe one is going to be done at John Hopkins. 50 sites in the US all together. We go to DuPont in DE and his Dr. said if they don't participate and another site near us will we can get him into that clinic for the clinical trials. I'm excited for this!



laurie</end quote>



Great information on the site (www.PTCbio.com). Thank you!!!
 
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