Hi all,
Has anyone been diagnosed with PTLD? About two weeks ago I started to have difficulty swallowing. I had a Barium swallow test done and they saw something on my esophagus. After that I went to a GI doctor and had an endoscopy. They found and ulcer and the pathology report showed that it was caused by PTLD associated with the EBV Virus. Has anyone experienced this? Any stories, advice, anything is helpful.
Right now we lowered my immunosuppression. I'm trying to schedule a CT Scan of my chest to make sure there is no lung or abdomen involvement. Then I have an appointment with a PTLD specialist on Thursday.
Thanks guys!
Has anyone been diagnosed with PTLD? About two weeks ago I started to have difficulty swallowing. I had a Barium swallow test done and they saw something on my esophagus. After that I went to a GI doctor and had an endoscopy. They found and ulcer and the pathology report showed that it was caused by PTLD associated with the EBV Virus. Has anyone experienced this? Any stories, advice, anything is helpful.
Right now we lowered my immunosuppression. I'm trying to schedule a CT Scan of my chest to make sure there is no lung or abdomen involvement. Then I have an appointment with a PTLD specialist on Thursday.
Thanks guys!