Pulmonary Hypertension and CF

[Beowulf]

I have CF and PH and I find it is quite challenging. I've been to many CF events in which the keynote speakers have been CF patients. I hear several speakers share their stories particularly about some of their exercise routines, many of whom have FEV1 <35%-tile, to which I am surprised. I am at 40%-ile and I can do very little exercise even with O2. No way could I do anything without it.
How about you? How many of you have CF and PH and how does it impact your ADLs or your exercise routines?

Thanks.

 

[Beowulf]

I have CF and PH and I find it is quite challenging. I've been to many CF events in which the keynote speakers have been CF patients. I hear several speakers share their stories particularly about some of their exercise routines, many of whom have FEV1 <35%-tile, to which I am surprised. I am at 40%-ile and I can do very little exercise even with O2. No way could I do anything without it.
How about you? How many of you have CF and PH and how does it impact your ADLs or your exercise routines?

Thanks.