Pulmozyme and Tobi questions, and a quick intro

B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i> heya fellow perthie.
norway might be a 'snowy hell' but at least they wont stand by and
watch you die. dont count on perth saving you if you get very sick.
as someone who is bashing my head against a brick wall begging for
someone to take notice of my failing health and to treat me with
some god damn respect, count yourself lucky you are moving away
from here! <img src="i/expressions/face-icon-small-smile.gif" border="0"> im getting this close to going into the cf clinic and
waving a freaking machette around.</end quote></div><br>
<br>
Mate, that sucks. I didn't know it was that bad down here. I guess
I've been lucky living in my own little bubble, with everything
supplied from Norway free of charge.<br>
<br>
Well, at least the climate isn't as bad as in Norway. I've only
been to se Dr Ryan at Charlie Gardner a couple of times, he seems
cool. The hospital, especially the respiratory department, reminds
me of the clinics they had when we went on CF camp in yugoslavia
back in the day (before the war).<br>
<br>
It would be really interesting to hear more about CF treatment in
Oz, more than the little I've been told by the doctor down here...
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

I used to use Pulmozyme daily when I was younger, but pretty much
stopped because I'm a lazy *****. Lately I've been feeling a bit
worse and want to start again, I have quite a bit in my fridge, but
it has all expired (the pharmacy gave me almost expired product the
last time I got some). </end quote></div>


By feeling worse, do you mean more short of breath or something? You could try albuterol, which is much cheaper that Pulmozyme if you're just short of breath--it would help to open things up. It probably would be better than nothing.
I don't think I would use inhaled meds that have expired, that's just my opinion.
As for the cold climate....do you think you actually felt better in the cooler climate? When I was younger we lived in a much colder State then where I live now and my sister & myself actually did better w/ our CF there where it was colder....as crazy as that sounds. It could have all been coincidence I suppose.
Welcome to the forums<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

I used to use Pulmozyme daily when I was younger, but pretty much
stopped because I'm a lazy *****. Lately I've been feeling a bit
worse and want to start again, I have quite a bit in my fridge, but
it has all expired (the pharmacy gave me almost expired product the
last time I got some). </end quote></div>


By feeling worse, do you mean more short of breath or something? You could try albuterol, which is much cheaper that Pulmozyme if you're just short of breath--it would help to open things up. It probably would be better than nothing.
I don't think I would use inhaled meds that have expired, that's just my opinion.
As for the cold climate....do you think you actually felt better in the cooler climate? When I was younger we lived in a much colder State then where I live now and my sister & myself actually did better w/ our CF there where it was colder....as crazy as that sounds. It could have all been coincidence I suppose.
Welcome to the forums<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BoardkilL</b></i>

I used to use Pulmozyme daily when I was younger, but pretty much
stopped because I'm a lazy *****. Lately I've been feeling a bit
worse and want to start again, I have quite a bit in my fridge, but
it has all expired (the pharmacy gave me almost expired product the
last time I got some). </end quote></div>


By feeling worse, do you mean more short of breath or something? You could try albuterol, which is much cheaper that Pulmozyme if you're just short of breath--it would help to open things up. It probably would be better than nothing.
I don't think I would use inhaled meds that have expired, that's just my opinion.
As for the cold climate....do you think you actually felt better in the cooler climate? When I was younger we lived in a much colder State then where I live now and my sister & myself actually did better w/ our CF there where it was colder....as crazy as that sounds. It could have all been coincidence I suppose.
Welcome to the forums<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
C

coltsfan715

New member
I personally wouldn't use the meds, but that is just me. I have been known to use meds that have an expiration date of like a month past .. but a year is a long time when dealing with some meds.

As for pulmozyme ... I definitely would not use it if it has NOT been refrigerated the ENTIRE time you have had it. Also don't use it if it is ANY color other than clear. I don't know just the fact that you are inhaling that stuff right into your lungs make me wary of using it after the expiration date.


Take Care and hope you start feeling better soon.

Also an idea - if someone already mentioned this sorry - but could you get a script for Saline or Hypertonic saline to do as a neb treatment. It is much much cheaper than pulmozyme and essentially does the same thing (thins mucus so you can clear it easier).

Just a thought.

Lindsey
 
C

coltsfan715

New member
I personally wouldn't use the meds, but that is just me. I have been known to use meds that have an expiration date of like a month past .. but a year is a long time when dealing with some meds.

As for pulmozyme ... I definitely would not use it if it has NOT been refrigerated the ENTIRE time you have had it. Also don't use it if it is ANY color other than clear. I don't know just the fact that you are inhaling that stuff right into your lungs make me wary of using it after the expiration date.


Take Care and hope you start feeling better soon.

Also an idea - if someone already mentioned this sorry - but could you get a script for Saline or Hypertonic saline to do as a neb treatment. It is much much cheaper than pulmozyme and essentially does the same thing (thins mucus so you can clear it easier).

Just a thought.

Lindsey
 
C

coltsfan715

New member
I personally wouldn't use the meds, but that is just me. I have been known to use meds that have an expiration date of like a month past .. but a year is a long time when dealing with some meds.

As for pulmozyme ... I definitely would not use it if it has NOT been refrigerated the ENTIRE time you have had it. Also don't use it if it is ANY color other than clear. I don't know just the fact that you are inhaling that stuff right into your lungs make me wary of using it after the expiration date.


Take Care and hope you start feeling better soon.

Also an idea - if someone already mentioned this sorry - but could you get a script for Saline or Hypertonic saline to do as a neb treatment. It is much much cheaper than pulmozyme and essentially does the same thing (thins mucus so you can clear it easier).

Just a thought.

Lindsey
 
E

Ender

New member
Ya I dunno...

Enzymes ya sure...the least they can do is digest less..I've even had bad batches of non expired enzymes (why are they not regulated! biotches)

I wouldn't for the antibiotics. When things expire, it usually means it has lost some of it's integrity, and therefor some of it's function. Is it 90%, 80% 50% good? If you are taking antibiotics that are 50% effective, it won't kill the bugs. However, it will create a great place for resistance.

Pulmozyme is 50/50 for me. I don't think it can hurt you. And if ALL it does is lose it's function a bit, some of it will help. Try googleing "pulmozyme expired" and see what happens

If australia is anything like canada, you can buy the 5% saline bags at a hospital for about 5 dollars, and draw it with a needle. Take 4cc's of that twice a day, and it may help.

Or you can try and get a script for mucomyst. It's not overly expensive.

Good luck dude

Oh and welcome. I'm Kiel <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
E

Ender

New member
Ya I dunno...

Enzymes ya sure...the least they can do is digest less..I've even had bad batches of non expired enzymes (why are they not regulated! biotches)

I wouldn't for the antibiotics. When things expire, it usually means it has lost some of it's integrity, and therefor some of it's function. Is it 90%, 80% 50% good? If you are taking antibiotics that are 50% effective, it won't kill the bugs. However, it will create a great place for resistance.

Pulmozyme is 50/50 for me. I don't think it can hurt you. And if ALL it does is lose it's function a bit, some of it will help. Try googleing "pulmozyme expired" and see what happens

If australia is anything like canada, you can buy the 5% saline bags at a hospital for about 5 dollars, and draw it with a needle. Take 4cc's of that twice a day, and it may help.

Or you can try and get a script for mucomyst. It's not overly expensive.

Good luck dude

Oh and welcome. I'm Kiel <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
E

Ender

New member
Ya I dunno...

Enzymes ya sure...the least they can do is digest less..I've even had bad batches of non expired enzymes (why are they not regulated! biotches)

I wouldn't for the antibiotics. When things expire, it usually means it has lost some of it's integrity, and therefor some of it's function. Is it 90%, 80% 50% good? If you are taking antibiotics that are 50% effective, it won't kill the bugs. However, it will create a great place for resistance.

Pulmozyme is 50/50 for me. I don't think it can hurt you. And if ALL it does is lose it's function a bit, some of it will help. Try googleing "pulmozyme expired" and see what happens

If australia is anything like canada, you can buy the 5% saline bags at a hospital for about 5 dollars, and draw it with a needle. Take 4cc's of that twice a day, and it may help.

Or you can try and get a script for mucomyst. It's not overly expensive.

Good luck dude

Oh and welcome. I'm Kiel <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>


Also an idea - if someone already mentioned this sorry - but could you get a script for Saline or Hypertonic saline to do as a neb treatment. It is much much cheaper than pulmozyme and essentially does the same thing (thins mucus so you can clear it easier).

</end quote></div>


Just to clarify - Hypertonic saline and Pulmozyme do not do the same thing.

Hypertonic Saline creates an overly salty environment in the airways and creates an environment in which the body secretes more water. This increased aqueous environment allows the airways to function better and carry the existing mucus out of the airways when you cough.

Pulmozyme breaks down the strands of DNA in sputum - which is very viscous - and actually change the properties of the sputum. The sputum becomes thinner.

Sputum does NOT become thinner with Hypertonic Salene. The airways simply become my aqueous. Sputum content, texture are not changed.

And Pulmozyme is not meant to make you cough... its meant to thin the mucus. The High Frequency Chest Compression is meant to make you cough.

The two drugs have drastically different mechanisms of action and different results and this is why many of us are on both medications at the same time.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>


Also an idea - if someone already mentioned this sorry - but could you get a script for Saline or Hypertonic saline to do as a neb treatment. It is much much cheaper than pulmozyme and essentially does the same thing (thins mucus so you can clear it easier).

</end quote></div>


Just to clarify - Hypertonic saline and Pulmozyme do not do the same thing.

Hypertonic Saline creates an overly salty environment in the airways and creates an environment in which the body secretes more water. This increased aqueous environment allows the airways to function better and carry the existing mucus out of the airways when you cough.

Pulmozyme breaks down the strands of DNA in sputum - which is very viscous - and actually change the properties of the sputum. The sputum becomes thinner.

Sputum does NOT become thinner with Hypertonic Salene. The airways simply become my aqueous. Sputum content, texture are not changed.

And Pulmozyme is not meant to make you cough... its meant to thin the mucus. The High Frequency Chest Compression is meant to make you cough.

The two drugs have drastically different mechanisms of action and different results and this is why many of us are on both medications at the same time.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>


Also an idea - if someone already mentioned this sorry - but could you get a script for Saline or Hypertonic saline to do as a neb treatment. It is much much cheaper than pulmozyme and essentially does the same thing (thins mucus so you can clear it easier).

</end quote></div>


Just to clarify - Hypertonic saline and Pulmozyme do not do the same thing.

Hypertonic Saline creates an overly salty environment in the airways and creates an environment in which the body secretes more water. This increased aqueous environment allows the airways to function better and carry the existing mucus out of the airways when you cough.

Pulmozyme breaks down the strands of DNA in sputum - which is very viscous - and actually change the properties of the sputum. The sputum becomes thinner.

Sputum does NOT become thinner with Hypertonic Salene. The airways simply become my aqueous. Sputum content, texture are not changed.

And Pulmozyme is not meant to make you cough... its meant to thin the mucus. The High Frequency Chest Compression is meant to make you cough.

The two drugs have drastically different mechanisms of action and different results and this is why many of us are on both medications at the same time.
 
C

coltsfan715

New member
I know they do not do the same things in the same ways .. but they are both used to help us clear that junk out of our lungs. The pulmo helps break it down some so we can clear it out a bit easier and the saline helps add moisture to it to make it thinner and easier to move. They work in different ways but I have always taken them both as meds that are supposed to help us clear the mucus from our lungs - or make it easier to clear.

I was thinking if he wanted something to just make the stuff thinner and/or easier to move it would be worth his trying it maybe. I know for me Pulmozyme does NOT make me cough really at all and I am not able to get anything up with it (though it is supposed to help with that) whereas with the saline I get a bunch of stuff up.

Anyhow - if you want something to help get the stuff up saline may be something you could look into. As it is much cheaper than pulmozyme.

Lindsey
 
C

coltsfan715

New member
I know they do not do the same things in the same ways .. but they are both used to help us clear that junk out of our lungs. The pulmo helps break it down some so we can clear it out a bit easier and the saline helps add moisture to it to make it thinner and easier to move. They work in different ways but I have always taken them both as meds that are supposed to help us clear the mucus from our lungs - or make it easier to clear.

I was thinking if he wanted something to just make the stuff thinner and/or easier to move it would be worth his trying it maybe. I know for me Pulmozyme does NOT make me cough really at all and I am not able to get anything up with it (though it is supposed to help with that) whereas with the saline I get a bunch of stuff up.

Anyhow - if you want something to help get the stuff up saline may be something you could look into. As it is much cheaper than pulmozyme.

Lindsey
 
C

coltsfan715

New member
I know they do not do the same things in the same ways .. but they are both used to help us clear that junk out of our lungs. The pulmo helps break it down some so we can clear it out a bit easier and the saline helps add moisture to it to make it thinner and easier to move. They work in different ways but I have always taken them both as meds that are supposed to help us clear the mucus from our lungs - or make it easier to clear.

I was thinking if he wanted something to just make the stuff thinner and/or easier to move it would be worth his trying it maybe. I know for me Pulmozyme does NOT make me cough really at all and I am not able to get anything up with it (though it is supposed to help with that) whereas with the saline I get a bunch of stuff up.

Anyhow - if you want something to help get the stuff up saline may be something you could look into. As it is much cheaper than pulmozyme.

Lindsey
 
B

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i> I personally
wouldn't use the meds, but that is just me. I have been known to
use meds that have an expiration date of like a month past .. but a
year is a long time when dealing with some meds. As for pulmozyme
... I definitely would not use it if it has NOT been refrigerated
the ENTIRE time you have had it. Also don't use it if it is ANY
color other than clear. I don't know just the fact that you are
inhaling that stuff right into your lungs make me wary of using it
after the expiration date. Take Care and hope you start feeling
better soon. Also an idea - if someone already mentioned this sorry
- but could you get a script for Saline or Hypertonic saline to do
as a neb treatment. It is much much cheaper than pulmozyme and
essentially does the same thing (thins mucus so you can clear it
easier). Just a thought. Lindsey</end quote></div><br>
<br>
That was my problem with it too, straight to the lungs. I'm already
inhaling mucomyst anv ventoline with saline, it works quite well,
but Pulmozyme on top of that works even better. I also use quite a
lot of Mucomyst tablets (the stuff you mix with water) along with
my ventoline inhaler. I guess I'll just up the use of that until I
get back home. Would be good to know if expired pulmozyme was bad
though, or just weaker, that I could live with <img src="i/expressions/face-icon-small-wink.gif" border="0">.
 
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