Pulmozyme experiences....

[welshwitch]

HI y'all!

i wanted to hear people's experiences with Pulmozyme....in the past, my PFTs have been in the 100s and i rarely did any inhaled meds. but to keep them up there i have been more proactive. i recently tried doing pulmozyme for an entire week straight, sometimes 2 x/day, and i found the results a little disconcerting.

First of all, although it really cut down my mucus levels, i felt this sense of constant irritation in my lungs. Has anyone experienced this? I wasn't coughing at all, but rather, I felt like I needed to take an antihistamine to make this feeling go away. Also took some ibprofin to cut down on the inflammation.

It made me wonder if there is a possibility i could be allergic to pulmozyme. This week I'm off of it and I feel much better and more like "myself" again. However, I have read reports that when you first start taking pulmozyme it increases mucus temporarily and then things get back to normal. maybe this is the cause of the constant "irritation" feeling.

is there a way to get tested for pulmozyme allergy? i know it is made from a protein from hamster ovaries.

I'm going to talk w/ my doctor about this on Thurs, but I wanted to get some input from you folks. is an irritation and inflammation feeling from pulmozyme normal?

Thanks!

27 yr old female w/ CF

 

[welshwitch]

HI y'all!

i wanted to hear people's experiences with Pulmozyme....in the past, my PFTs have been in the 100s and i rarely did any inhaled meds. but to keep them up there i have been more proactive. i recently tried doing pulmozyme for an entire week straight, sometimes 2 x/day, and i found the results a little disconcerting.

First of all, although it really cut down my mucus levels, i felt this sense of constant irritation in my lungs. Has anyone experienced this? I wasn't coughing at all, but rather, I felt like I needed to take an antihistamine to make this feeling go away. Also took some ibprofin to cut down on the inflammation.

It made me wonder if there is a possibility i could be allergic to pulmozyme. This week I'm off of it and I feel much better and more like "myself" again. However, I have read reports that when you first start taking pulmozyme it increases mucus temporarily and then things get back to normal. maybe this is the cause of the constant "irritation" feeling.

is there a way to get tested for pulmozyme allergy? i know it is made from a protein from hamster ovaries.

I'm going to talk w/ my doctor about this on Thurs, but I wanted to get some input from you folks. is an irritation and inflammation feeling from pulmozyme normal?

Thanks!

27 yr old female w/ CF

 

[welshwitch]

HI y'all!

i wanted to hear people's experiences with Pulmozyme....in the past, my PFTs have been in the 100s and i rarely did any inhaled meds. but to keep them up there i have been more proactive. i recently tried doing pulmozyme for an entire week straight, sometimes 2 x/day, and i found the results a little disconcerting.

First of all, although it really cut down my mucus levels, i felt this sense of constant irritation in my lungs. Has anyone experienced this? I wasn't coughing at all, but rather, I felt like I needed to take an antihistamine to make this feeling go away. Also took some ibprofin to cut down on the inflammation.

It made me wonder if there is a possibility i could be allergic to pulmozyme. This week I'm off of it and I feel much better and more like "myself" again. However, I have read reports that when you first start taking pulmozyme it increases mucus temporarily and then things get back to normal. maybe this is the cause of the constant "irritation" feeling.

is there a way to get tested for pulmozyme allergy? i know it is made from a protein from hamster ovaries.

I'm going to talk w/ my doctor about this on Thurs, but I wanted to get some input from you folks. is an irritation and inflammation feeling from pulmozyme normal?

Thanks!

27 yr old female w/ CF

 

[welshwitch]

HI y'all!

i wanted to hear people's experiences with Pulmozyme....in the past, my PFTs have been in the 100s and i rarely did any inhaled meds. but to keep them up there i have been more proactive. i recently tried doing pulmozyme for an entire week straight, sometimes 2 x/day, and i found the results a little disconcerting.

First of all, although it really cut down my mucus levels, i felt this sense of constant irritation in my lungs. Has anyone experienced this? I wasn't coughing at all, but rather, I felt like I needed to take an antihistamine to make this feeling go away. Also took some ibprofin to cut down on the inflammation.

It made me wonder if there is a possibility i could be allergic to pulmozyme. This week I'm off of it and I feel much better and more like "myself" again. However, I have read reports that when you first start taking pulmozyme it increases mucus temporarily and then things get back to normal. maybe this is the cause of the constant "irritation" feeling.

is there a way to get tested for pulmozyme allergy? i know it is made from a protein from hamster ovaries.

I'm going to talk w/ my doctor about this on Thurs, but I wanted to get some input from you folks. is an irritation and inflammation feeling from pulmozyme normal?

Thanks!

27 yr old female w/ CF

 

[welshwitch]

HI y'all!

i wanted to hear people's experiences with Pulmozyme....in the past, my PFTs have been in the 100s and i rarely did any inhaled meds. but to keep them up there i have been more proactive. i recently tried doing pulmozyme for an entire week straight, sometimes 2 x/day, and i found the results a little disconcerting.

First of all, although it really cut down my mucus levels, i felt this sense of constant irritation in my lungs. Has anyone experienced this? I wasn't coughing at all, but rather, I felt like I needed to take an antihistamine to make this feeling go away. Also took some ibprofin to cut down on the inflammation.

It made me wonder if there is a possibility i could be allergic to pulmozyme. This week I'm off of it and I feel much better and more like "myself" again. However, I have read reports that when you first start taking pulmozyme it increases mucus temporarily and then things get back to normal. maybe this is the cause of the constant "irritation" feeling.

is there a way to get tested for pulmozyme allergy? i know it is made from a protein from hamster ovaries.

I'm going to talk w/ my doctor about this on Thurs, but I wanted to get some input from you folks. is an irritation and inflammation feeling from pulmozyme normal?

Thanks!

27 yr old female w/ CF

 

[Ratatosk]

The only things I noticed with DS right away was his nose ran. I'd never seen his nose run before in my life. And a couple times he sounded kinda hoarse -- frog in his throat. Otherwise I didn't notice any difference at all and was beginning to wonder if he needed to be on it -- I know, I know preventative care, but sometimes I just hate it when yet another med is added to the mix.

He's on it once a day, we give it to him in the evenings.

 

[Ratatosk]

The only things I noticed with DS right away was his nose ran. I'd never seen his nose run before in my life. And a couple times he sounded kinda hoarse -- frog in his throat. Otherwise I didn't notice any difference at all and was beginning to wonder if he needed to be on it -- I know, I know preventative care, but sometimes I just hate it when yet another med is added to the mix.

He's on it once a day, we give it to him in the evenings.

 

[Ratatosk]

The only things I noticed with DS right away was his nose ran. I'd never seen his nose run before in my life. And a couple times he sounded kinda hoarse -- frog in his throat. Otherwise I didn't notice any difference at all and was beginning to wonder if he needed to be on it -- I know, I know preventative care, but sometimes I just hate it when yet another med is added to the mix.

He's on it once a day, we give it to him in the evenings.

 

[Ratatosk]

The only things I noticed with DS right away was his nose ran. I'd never seen his nose run before in my life. And a couple times he sounded kinda hoarse -- frog in his throat. Otherwise I didn't notice any difference at all and was beginning to wonder if he needed to be on it -- I know, I know preventative care, but sometimes I just hate it when yet another med is added to the mix.

He's on it once a day, we give it to him in the evenings.

 

[Ratatosk]

The only things I noticed with DS right away was his nose ran. I'd never seen his nose run before in my life. And a couple times he sounded kinda hoarse -- frog in his throat. Otherwise I didn't notice any difference at all and was beginning to wonder if he needed to be on it -- I know, I know preventative care, but sometimes I just hate it when yet another med is added to the mix.

He's on it once a day, we give it to him in the evenings.

 

[Alyssa]

both of my kids took to it like a duck to water, with no problems and we felt it definitely helps them both .... but that isn't to say everyone has the same experience.

I'm pretty sure I've heard of a few people who do not tolerate it well. I'm also pretty sure it is Dr. Warwick in Minneapolis who does not prescribe pulmozyme at all because of side effects and expense -- If I have my facts correct, he puts everyone on mucomyst? Can anyone else confirm this... I'm just pulling that out of my head at the moment....

 

[Alyssa]

both of my kids took to it like a duck to water, with no problems and we felt it definitely helps them both .... but that isn't to say everyone has the same experience.

I'm pretty sure I've heard of a few people who do not tolerate it well. I'm also pretty sure it is Dr. Warwick in Minneapolis who does not prescribe pulmozyme at all because of side effects and expense -- If I have my facts correct, he puts everyone on mucomyst? Can anyone else confirm this... I'm just pulling that out of my head at the moment....

 

[Alyssa]

both of my kids took to it like a duck to water, with no problems and we felt it definitely helps them both .... but that isn't to say everyone has the same experience.

I'm pretty sure I've heard of a few people who do not tolerate it well. I'm also pretty sure it is Dr. Warwick in Minneapolis who does not prescribe pulmozyme at all because of side effects and expense -- If I have my facts correct, he puts everyone on mucomyst? Can anyone else confirm this... I'm just pulling that out of my head at the moment....

 

[Alyssa]

both of my kids took to it like a duck to water, with no problems and we felt it definitely helps them both .... but that isn't to say everyone has the same experience.

I'm pretty sure I've heard of a few people who do not tolerate it well. I'm also pretty sure it is Dr. Warwick in Minneapolis who does not prescribe pulmozyme at all because of side effects and expense -- If I have my facts correct, he puts everyone on mucomyst? Can anyone else confirm this... I'm just pulling that out of my head at the moment....

 

[Alyssa]

both of my kids took to it like a duck to water, with no problems and we felt it definitely helps them both .... but that isn't to say everyone has the same experience.

I'm pretty sure I've heard of a few people who do not tolerate it well. I'm also pretty sure it is Dr. Warwick in Minneapolis who does not prescribe pulmozyme at all because of side effects and expense -- If I have my facts correct, he puts everyone on mucomyst? Can anyone else confirm this... I'm just pulling that out of my head at the moment....

 

[hbollotte]

hamster ovaries? <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[hbollotte]

hamster ovaries? <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[hbollotte]

hamster ovaries? <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[hbollotte]

hamster ovaries? <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[hbollotte]

hamster ovaries? <img src="i/expressions/face-icon-small-smile.gif" border="0">