Pulmozyme not delivered...

A

AnD

New member
<div class="FTQUOTE"><begin quote>Information for Patients
<b>Pulmozyme must be stored in the refrigerator at 2-8°C (36-46°F) and protected from strong light. It should be kept refrigerated during transport and <i>should not be exposed to room temperatures for a total time of 24 hours</i>.</b> The solution should be discarded if it is cloudy or discolored. Pulmozyme contains no preservative and, once opened, the entire contents of the ampule must be used or discarded. Patients should be instructed in the proper use and maintenance of the nebulizer and compressor system used in its delivery.

Pulmozyme should not be diluted or mixed with other drugs in the nebulizer. Mixing of Pulmozyme with other drugs could lead to adverse physicochemical and/or functional changes in Pulmozyme or the admixed compound.

</end quote></div>

From the patient insert from the makers of Pulmozyme, Genentech:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.gene.com/gene/products/information/opportunistic/pulmozyme/insert.jsp
">http://www.gene.com/gene/produ.../pulmozyme/insert.jsp
</a>
(bold and italics mine)
 
A

AnD

New member
<div class="FTQUOTE"><begin quote>Information for Patients
<b>Pulmozyme must be stored in the refrigerator at 2-8°C (36-46°F) and protected from strong light. It should be kept refrigerated during transport and <i>should not be exposed to room temperatures for a total time of 24 hours</i>.</b> The solution should be discarded if it is cloudy or discolored. Pulmozyme contains no preservative and, once opened, the entire contents of the ampule must be used or discarded. Patients should be instructed in the proper use and maintenance of the nebulizer and compressor system used in its delivery.

Pulmozyme should not be diluted or mixed with other drugs in the nebulizer. Mixing of Pulmozyme with other drugs could lead to adverse physicochemical and/or functional changes in Pulmozyme or the admixed compound.

</end quote></div>

From the patient insert from the makers of Pulmozyme, Genentech:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.gene.com/gene/products/information/opportunistic/pulmozyme/insert.jsp
">http://www.gene.com/gene/produ.../pulmozyme/insert.jsp
</a>
(bold and italics mine)
 
A

AnD

New member
<div class="FTQUOTE"><begin quote>Information for Patients
<b>Pulmozyme must be stored in the refrigerator at 2-8°C (36-46°F) and protected from strong light. It should be kept refrigerated during transport and <i>should not be exposed to room temperatures for a total time of 24 hours</i>.</b> The solution should be discarded if it is cloudy or discolored. Pulmozyme contains no preservative and, once opened, the entire contents of the ampule must be used or discarded. Patients should be instructed in the proper use and maintenance of the nebulizer and compressor system used in its delivery.

Pulmozyme should not be diluted or mixed with other drugs in the nebulizer. Mixing of Pulmozyme with other drugs could lead to adverse physicochemical and/or functional changes in Pulmozyme or the admixed compound.

</end quote></div>

From the patient insert from the makers of Pulmozyme, Genentech:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.gene.com/gene/products/information/opportunistic/pulmozyme/insert.jsp
">http://www.gene.com/gene/produ.../pulmozyme/insert.jsp
</a>
(bold and italics mine)
 
A

AnD

New member
<div class="FTQUOTE"><begin quote>Information for Patients
<b>Pulmozyme must be stored in the refrigerator at 2-8°C (36-46°F) and protected from strong light. It should be kept refrigerated during transport and <i>should not be exposed to room temperatures for a total time of 24 hours</i>.</b> The solution should be discarded if it is cloudy or discolored. Pulmozyme contains no preservative and, once opened, the entire contents of the ampule must be used or discarded. Patients should be instructed in the proper use and maintenance of the nebulizer and compressor system used in its delivery.

Pulmozyme should not be diluted or mixed with other drugs in the nebulizer. Mixing of Pulmozyme with other drugs could lead to adverse physicochemical and/or functional changes in Pulmozyme or the admixed compound.

</end quote>

From the patient insert from the makers of Pulmozyme, Genentech:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.gene.com/gene/products/information/opportunistic/pulmozyme/insert.jsp
">http://www.gene.com/gene/produ.../pulmozyme/insert.jsp
</a>
(bold and italics mine)
 
A

AnD

New member
<div class="FTQUOTE"><begin quote>Information for Patients
<br /><b>Pulmozyme must be stored in the refrigerator at 2-8°C (36-46°F) and protected from strong light. It should be kept refrigerated during transport and <i>should not be exposed to room temperatures for a total time of 24 hours</i>.</b> The solution should be discarded if it is cloudy or discolored. Pulmozyme contains no preservative and, once opened, the entire contents of the ampule must be used or discarded. Patients should be instructed in the proper use and maintenance of the nebulizer and compressor system used in its delivery.
<br />
<br />Pulmozyme should not be diluted or mixed with other drugs in the nebulizer. Mixing of Pulmozyme with other drugs could lead to adverse physicochemical and/or functional changes in Pulmozyme or the admixed compound.
<br />
<br /></end quote>
<br />
<br />From the patient insert from the makers of Pulmozyme, Genentech:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.gene.com/gene/products/information/opportunistic/pulmozyme/insert.jsp
">http://www.gene.com/gene/produ.../pulmozyme/insert.jsp
</a><br />
<br />(bold and italics mine)
<br />
<br />
 
J

JazzysMom

New member
What pharmacy is this btw?

CF Services GAURANTEES prompty & safe delivery of meds so I would contact them even IF the med seems ok & tell them you want another delivery.

Of course....you have to receive it first to say its bad, but even without delivery you should get another delivery. This is ridiculous!
 
J

JazzysMom

New member
What pharmacy is this btw?

CF Services GAURANTEES prompty & safe delivery of meds so I would contact them even IF the med seems ok & tell them you want another delivery.

Of course....you have to receive it first to say its bad, but even without delivery you should get another delivery. This is ridiculous!
 
J

JazzysMom

New member
What pharmacy is this btw?

CF Services GAURANTEES prompty & safe delivery of meds so I would contact them even IF the med seems ok & tell them you want another delivery.

Of course....you have to receive it first to say its bad, but even without delivery you should get another delivery. This is ridiculous!
 
J

JazzysMom

New member
What pharmacy is this btw?

CF Services GAURANTEES prompty & safe delivery of meds so I would contact them even IF the med seems ok & tell them you want another delivery.

Of course....you have to receive it first to say its bad, but even without delivery you should get another delivery. This is ridiculous!
 
J

JazzysMom

New member
What pharmacy is this btw?
<br />
<br />CF Services GAURANTEES prompty & safe delivery of meds so I would contact them even IF the med seems ok & tell them you want another delivery.
<br />
<br />Of course....you have to receive it first to say its bad, but even without delivery you should get another delivery. This is ridiculous!
 
R

reagansmom

New member
The pulmozyme came this morning. The freezer bags weren't even cool, they were HOT. The pharmacy is supposed to call us back as to when they will ship more. They have actually been pretty good, UPS is the one that dropped the ball. From now on we will only be getting shipments in the beginning of the week though. I'm also going to ask them to add some stickers to the box-- Urgent, temp. sensitive...something, there was nothing.

We use CF Services for everything except the pulmozyme. The insurance (United Healthcare) makes us use this pharmacy.

Overall though this is a very good day. Reagans yearly was last week and the doctor called to tell us she needs more vitamin D, but that she is not culturing anything now. She has always cultured Staph. I know that it likely is still there, but it was nice to cry happy tears for a change.

Thanks for all your responses, I always find a wealth of knowledge here.

Wishing you all some happy tears,
 
R

reagansmom

New member
The pulmozyme came this morning. The freezer bags weren't even cool, they were HOT. The pharmacy is supposed to call us back as to when they will ship more. They have actually been pretty good, UPS is the one that dropped the ball. From now on we will only be getting shipments in the beginning of the week though. I'm also going to ask them to add some stickers to the box-- Urgent, temp. sensitive...something, there was nothing.

We use CF Services for everything except the pulmozyme. The insurance (United Healthcare) makes us use this pharmacy.

Overall though this is a very good day. Reagans yearly was last week and the doctor called to tell us she needs more vitamin D, but that she is not culturing anything now. She has always cultured Staph. I know that it likely is still there, but it was nice to cry happy tears for a change.

Thanks for all your responses, I always find a wealth of knowledge here.

Wishing you all some happy tears,
 
R

reagansmom

New member
The pulmozyme came this morning. The freezer bags weren't even cool, they were HOT. The pharmacy is supposed to call us back as to when they will ship more. They have actually been pretty good, UPS is the one that dropped the ball. From now on we will only be getting shipments in the beginning of the week though. I'm also going to ask them to add some stickers to the box-- Urgent, temp. sensitive...something, there was nothing.

We use CF Services for everything except the pulmozyme. The insurance (United Healthcare) makes us use this pharmacy.

Overall though this is a very good day. Reagans yearly was last week and the doctor called to tell us she needs more vitamin D, but that she is not culturing anything now. She has always cultured Staph. I know that it likely is still there, but it was nice to cry happy tears for a change.

Thanks for all your responses, I always find a wealth of knowledge here.

Wishing you all some happy tears,
 
R

reagansmom

New member
The pulmozyme came this morning. The freezer bags weren't even cool, they were HOT. The pharmacy is supposed to call us back as to when they will ship more. They have actually been pretty good, UPS is the one that dropped the ball. From now on we will only be getting shipments in the beginning of the week though. I'm also going to ask them to add some stickers to the box-- Urgent, temp. sensitive...something, there was nothing.

We use CF Services for everything except the pulmozyme. The insurance (United Healthcare) makes us use this pharmacy.

Overall though this is a very good day. Reagans yearly was last week and the doctor called to tell us she needs more vitamin D, but that she is not culturing anything now. She has always cultured Staph. I know that it likely is still there, but it was nice to cry happy tears for a change.

Thanks for all your responses, I always find a wealth of knowledge here.

Wishing you all some happy tears,
 
R

reagansmom

New member
The pulmozyme came this morning. The freezer bags weren't even cool, they were HOT. The pharmacy is supposed to call us back as to when they will ship more. They have actually been pretty good, UPS is the one that dropped the ball. From now on we will only be getting shipments in the beginning of the week though. I'm also going to ask them to add some stickers to the box-- Urgent, temp. sensitive...something, there was nothing.
<br />
<br />We use CF Services for everything except the pulmozyme. The insurance (United Healthcare) makes us use this pharmacy.
<br />
<br />Overall though this is a very good day. Reagans yearly was last week and the doctor called to tell us she needs more vitamin D, but that she is not culturing anything now. She has always cultured Staph. I know that it likely is still there, but it was nice to cry happy tears for a change.
<br />
<br />Thanks for all your responses, I always find a wealth of knowledge here.
<br />
<br />Wishing you all some happy tears,
<br />
<br />
<br />
<br />
 
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