Pulmozyme Not refrigerated

harrabell

New member
We just got back from a trip in which our flights got horribly messed up, and resulted in my daughter's pulmozyme being left unrefrigerated for over 24 hours. Do I have to toss it?
 

Dizzy16

New member
Jessica, We just lost power for over 4 days and just our Dr. the same question. They said after 24 hrs that it was no longer good. We are military and they are swapping our meds all out. I just picked up his 3 month supply too.

Michele
 
M

Mommafirst

Guest
Yeah, with the heat as its been, I would think it is toast. If it were cooler out it might be ok.
 

ponytails

New member
The insert inside the pulmozyme says it cant be left unrefrigerated for 24hours. I wouldnt even let it go that long. Pulmozyme is so important for those with CF that if i think our home delivery pharmacy sent it any earlier than 12 hours after i get it I call to verify. Would hate to think I was doing all of my daughters meds only to have one not even be any good! Better safe than sorry.
 
K

katethekid

Guest
I just had to deal with this as UPS did not deliver my medication on the set date from Genentech and I missed it. It was delivered the next day, but by then it had spoiled. Genentech had me return the spoiled vials and they sent out new ones <img src="i/expressions/face-icon-small-smile.gif" border="0"> Definitely do not use it.
 

mikos25

New member
i for got to put my son Pulmozyme in the refrigerater one night after useing it found it the next moring left out and its ben so crazy hot this summer i just tost it out im glad that i had more for hem does any one know how long the toby can be left out of the refrigerater be for that goes bad planing a road trip in the end of augest and my son is on the toby i have a coler that we can use but i dont know how will the ice packs will last in the coler any help on this will be great thanks

one son with cf df508
 

Ratatosk

Administrator
Staff member
Those blue icepacks that one can get at any store for camping use never last very long. I've found that the ice packs that the pharmacy use tend to last really long. The brand I have from CF Services Pharmacy were polarpac and I use them for travel. I've put one in a lunch bag cooler really early in the morning, flown, travelled by car and reached our destination in the later afternoon, early evening and it's still frozen.
 
K

katethekid

Guest
I use the same ice packs my pulmozyme is delivered in to keep my meds cold. Just get a good cooler <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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