Pulmozyme

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anonymous

New member
Just curious when you all do your Pulmozyme treatment. My daughter started a few months ago (she is only 5) to be proactive with her CF because she hasn't had many problems and we want to stay on top of things. I have noticed a difference and she is doing even better than before, but I am just wondering if there is a difference between morning and night treatments.

Thanks!!<img src="i/expressions/rose.gif" border="0">
 
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anonymous

New member
my boyfriend does his Pulmozyme twice a day. It used to be once daily until a year ago when the doc recommended twice daily therapy. So he does it with his vest treatments... anyone else?

~L~
 
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anonymous

New member
Thank you for replying! I had one mother tell me that it is better to do in the morning but I keep forgetting to ask my daughter's doctor because I have so many other questions.
All other replys are also welcomed!
 
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anonymous

New member
We do it 2x a day with CPT but our cf doc said to do it in the morning after her xopenex/intal so that way when she is up and moving it will loosen the mucus up thru out the day
 
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anonymous

New member
My 4 year old son always does his pulmozyme in the morning, right after his first breathing treatment with his vest.
 
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anonymous

New member
my son did it 2 x day but now does something else similar to pulmozyne but he did it oen in morning and one at night before bed . The new one I do just before the vest each time.
 
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kathiel

New member
Our doc said do in morning because it helps to loosen the mucous that accumulated during the night. I was doing it at night, but the doc said that it was not doing the best it could being given at night.
kathie
 
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NoDayButToday

New member
Q]I was doing it at night, but the doc said that it was not doing the best it could being given at night. <hr></blockquote>


Kathie, do you and Samantha both have CF?
 
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kathiel

New member
no just Samantha. But, I provide 99% of her care because her biological father has nothing to with her and my husband works so I can stay home with her. I have many of the symptoms, but i am only a carrier, but caring for samantha as much as i do sometimes makes me feel as though i do have just because i suffer with her.
 
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Anonymous1

New member
I do calebs pulmozyme at night after he falls asleep. i feel he gets all of it that way. durring the day he fights me doing it and keeps pulling the mask off. so after he goes to sleep i put the mask on him and do it that way, so i know he is getting it all.. its expensive stuff, so i dont want any to go to waste <img src="i/expressions/face-icon-small-tongue.gif" border="0">




melissa mom to dylan 6 no cf and caleb 4cf
 
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