Pulmozyme

[Rickiesmom]

The short time Rickie's been on pulm, the results are amazing (of course he's not been treated for cf until recently) anyway, lung function is way up! I hope you feel better and it does the trick! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Rickiesmom]

The short time Rickie's been on pulm, the results are amazing (of course he's not been treated for cf until recently) anyway, lung function is way up! I hope you feel better and it does the trick! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Rickiesmom]

The short time Rickie's been on pulm, the results are amazing (of course he's not been treated for cf until recently) anyway, lung function is way up! I hope you feel better and it does the trick! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Rickiesmom]

The short time Rickie's been on pulm, the results are amazing (of course he's not been treated for cf until recently) anyway, lung function is way up! I hope you feel better and it does the trick! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Rickiesmom]

The short time Rickie's been on pulm, the results are amazing (of course he's not been treated for cf until recently) anyway, lung function is way up! I hope you feel better and it does the trick! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[TonyaH]

Hi Amy,

We have had the same experience as Jessi and Debbi. Andrew has been on pulmozyme for I think three years now, and has never had what I would call amazing results. It was not until he went on hts this summer that I even realized he had mucus in his lungs to cough up. I asked if we could stop the pulmozyme, but his doc wants us to keep it for now.

We upped his hts from 3% to 7% in the hospital. Last Monday night he started coughing up blood, so clinic told us to stop the 7% and do no hts for awhile. His lungs were obviously not doing well with the 7% because he has not bled since. However, now that we are back to doing just the pulmozyme, I am noticing that he is not coughing anything up again, he's coughing and I can hear it in there, but he's not getting it up easily. I think this weekend I'm going to go ahead and start his 3% back up and see what happens.

So, for us, HTS definitely works better. I would be so interested to find out why pulmozyme seems so ineffective for some, but so helpful for others. This thread is a great one!

Keep us posted on how you are doing with it when it comes in. I hope you are able to feel a difference and regain some of your energy! Good luck, Amy!

 

[TonyaH]

Hi Amy,

We have had the same experience as Jessi and Debbi. Andrew has been on pulmozyme for I think three years now, and has never had what I would call amazing results. It was not until he went on hts this summer that I even realized he had mucus in his lungs to cough up. I asked if we could stop the pulmozyme, but his doc wants us to keep it for now.

We upped his hts from 3% to 7% in the hospital. Last Monday night he started coughing up blood, so clinic told us to stop the 7% and do no hts for awhile. His lungs were obviously not doing well with the 7% because he has not bled since. However, now that we are back to doing just the pulmozyme, I am noticing that he is not coughing anything up again, he's coughing and I can hear it in there, but he's not getting it up easily. I think this weekend I'm going to go ahead and start his 3% back up and see what happens.

So, for us, HTS definitely works better. I would be so interested to find out why pulmozyme seems so ineffective for some, but so helpful for others. This thread is a great one!

Keep us posted on how you are doing with it when it comes in. I hope you are able to feel a difference and regain some of your energy! Good luck, Amy!

 

[TonyaH]

Hi Amy,

We have had the same experience as Jessi and Debbi. Andrew has been on pulmozyme for I think three years now, and has never had what I would call amazing results. It was not until he went on hts this summer that I even realized he had mucus in his lungs to cough up. I asked if we could stop the pulmozyme, but his doc wants us to keep it for now.

We upped his hts from 3% to 7% in the hospital. Last Monday night he started coughing up blood, so clinic told us to stop the 7% and do no hts for awhile. His lungs were obviously not doing well with the 7% because he has not bled since. However, now that we are back to doing just the pulmozyme, I am noticing that he is not coughing anything up again, he's coughing and I can hear it in there, but he's not getting it up easily. I think this weekend I'm going to go ahead and start his 3% back up and see what happens.

So, for us, HTS definitely works better. I would be so interested to find out why pulmozyme seems so ineffective for some, but so helpful for others. This thread is a great one!

Keep us posted on how you are doing with it when it comes in. I hope you are able to feel a difference and regain some of your energy! Good luck, Amy!

 

[TonyaH]

Hi Amy,

We have had the same experience as Jessi and Debbi. Andrew has been on pulmozyme for I think three years now, and has never had what I would call amazing results. It was not until he went on hts this summer that I even realized he had mucus in his lungs to cough up. I asked if we could stop the pulmozyme, but his doc wants us to keep it for now.

We upped his hts from 3% to 7% in the hospital. Last Monday night he started coughing up blood, so clinic told us to stop the 7% and do no hts for awhile. His lungs were obviously not doing well with the 7% because he has not bled since. However, now that we are back to doing just the pulmozyme, I am noticing that he is not coughing anything up again, he's coughing and I can hear it in there, but he's not getting it up easily. I think this weekend I'm going to go ahead and start his 3% back up and see what happens.

So, for us, HTS definitely works better. I would be so interested to find out why pulmozyme seems so ineffective for some, but so helpful for others. This thread is a great one!

Keep us posted on how you are doing with it when it comes in. I hope you are able to feel a difference and regain some of your energy! Good luck, Amy!

 

[TonyaH]

Hi Amy,

We have had the same experience as Jessi and Debbi. Andrew has been on pulmozyme for I think three years now, and has never had what I would call amazing results. It was not until he went on hts this summer that I even realized he had mucus in his lungs to cough up. I asked if we could stop the pulmozyme, but his doc wants us to keep it for now.

We upped his hts from 3% to 7% in the hospital. Last Monday night he started coughing up blood, so clinic told us to stop the 7% and do no hts for awhile. His lungs were obviously not doing well with the 7% because he has not bled since. However, now that we are back to doing just the pulmozyme, I am noticing that he is not coughing anything up again, he's coughing and I can hear it in there, but he's not getting it up easily. I think this weekend I'm going to go ahead and start his 3% back up and see what happens.

So, for us, HTS definitely works better. I would be so interested to find out why pulmozyme seems so ineffective for some, but so helpful for others. This thread is a great one!

Keep us posted on how you are doing with it when it comes in. I hope you are able to feel a difference and regain some of your energy! Good luck, Amy!

 

[Alyssa]

I know some people don't like pulmozyme, but for us it has been wonderful. No side effects and it works very well - thins the mucus right away. I asked the doctor when my son started it if it was possible that I was seeing results in just 5 days and he said yes, I'm sure you are, it pretty much works right away.

Just to clarify too, hypertonic saline does not do the same thing as pulmozyme - even though some people do choose one over the other, they do have two distinctly different purposes:

Pulmozyme thins the mucus
Saline draws in more water to the lining of the lungs to facilitate better movement of the mucus

Both my kids comment that they notice a difference in how they feel if they skip either of these meds.

 

[Alyssa]

I know some people don't like pulmozyme, but for us it has been wonderful. No side effects and it works very well - thins the mucus right away. I asked the doctor when my son started it if it was possible that I was seeing results in just 5 days and he said yes, I'm sure you are, it pretty much works right away.

Just to clarify too, hypertonic saline does not do the same thing as pulmozyme - even though some people do choose one over the other, they do have two distinctly different purposes:

Pulmozyme thins the mucus
Saline draws in more water to the lining of the lungs to facilitate better movement of the mucus

Both my kids comment that they notice a difference in how they feel if they skip either of these meds.

 

[Alyssa]

I know some people don't like pulmozyme, but for us it has been wonderful. No side effects and it works very well - thins the mucus right away. I asked the doctor when my son started it if it was possible that I was seeing results in just 5 days and he said yes, I'm sure you are, it pretty much works right away.

Just to clarify too, hypertonic saline does not do the same thing as pulmozyme - even though some people do choose one over the other, they do have two distinctly different purposes:

Pulmozyme thins the mucus
Saline draws in more water to the lining of the lungs to facilitate better movement of the mucus

Both my kids comment that they notice a difference in how they feel if they skip either of these meds.

 

[Alyssa]

I know some people don't like pulmozyme, but for us it has been wonderful. No side effects and it works very well - thins the mucus right away. I asked the doctor when my son started it if it was possible that I was seeing results in just 5 days and he said yes, I'm sure you are, it pretty much works right away.

Just to clarify too, hypertonic saline does not do the same thing as pulmozyme - even though some people do choose one over the other, they do have two distinctly different purposes:

Pulmozyme thins the mucus
Saline draws in more water to the lining of the lungs to facilitate better movement of the mucus

Both my kids comment that they notice a difference in how they feel if they skip either of these meds.

 

[Alyssa]

I know some people don't like pulmozyme, but for us it has been wonderful. No side effects and it works very well - thins the mucus right away. I asked the doctor when my son started it if it was possible that I was seeing results in just 5 days and he said yes, I'm sure you are, it pretty much works right away.

Just to clarify too, hypertonic saline does not do the same thing as pulmozyme - even though some people do choose one over the other, they do have two distinctly different purposes:

Pulmozyme thins the mucus
Saline draws in more water to the lining of the lungs to facilitate better movement of the mucus

Both my kids comment that they notice a difference in how they feel if they skip either of these meds.

 

[Aka2007]

I also use Pulozyme and can tell when I have gone with out.

 

[Aka2007]

I also use Pulozyme and can tell when I have gone with out.

 

[Aka2007]

I also use Pulozyme and can tell when I have gone with out.

 

[Aka2007]

I also use Pulozyme and can tell when I have gone with out.

 

[Aka2007]

I also use Pulozyme and can tell when I have gone with out.