i have purposely taken the tough road to get a higher education so that i could be more selective with my employment options (with good health insurance) and to open up more employment opportunities should it become harder for me to work as the disease progresses.
i realize CF parents are in a very different situation than CFer's themselves, as CFer's can plan their live with CF whereas for most parents of CFer's the kid with CF was a surprise. But for CFer's, putting all energy, time, resources and effort into gaining an education to open job opportunities is one of the best ways to stay in control of the insurance situation.