Onederfulmakr
New member
Hello everyone! Although i have never written on the Forum i have been reading it for a few years now. My name is Anna, im 22 and i was diagnosed with cf 2 years ago.
I am working on finishing up my degree in Public Health and I have decided to plan a program for Adults recently diagnosed with cf. Although i wont actually implement it, (at least not yet) it is something that i think about often.
Although i had been sick my whole life and missed many years of school and lots of hospital visits, a cf diagnosis still came as a shock to me. Since i went in and asked my Dr. to test me, i thought handling the diagnosis would be easier. I am an extremely mild case compared to many but i know the mental process you go through after diagnosis is very similar.
SO, i wanted to ask you all.. Is there anything that you wish the care center or your Dr.'s would have done differently when you were diagnosed. For example, i could have really enjoyed having a group of people who were also diagnosed to talk to. Also, all my social worker did was make sure i had resources, no one really offered any emotional support, especially for a 20 yr. old. So, anything that you wish the center would offer or could have done differently in your adult dignosis?
thank you so much for your help. My hopes are someday to fix what is missing.
i wish you all the best.. and good health!
-Anna, 22 w/cf
I am working on finishing up my degree in Public Health and I have decided to plan a program for Adults recently diagnosed with cf. Although i wont actually implement it, (at least not yet) it is something that i think about often.
Although i had been sick my whole life and missed many years of school and lots of hospital visits, a cf diagnosis still came as a shock to me. Since i went in and asked my Dr. to test me, i thought handling the diagnosis would be easier. I am an extremely mild case compared to many but i know the mental process you go through after diagnosis is very similar.
SO, i wanted to ask you all.. Is there anything that you wish the care center or your Dr.'s would have done differently when you were diagnosed. For example, i could have really enjoyed having a group of people who were also diagnosed to talk to. Also, all my social worker did was make sure i had resources, no one really offered any emotional support, especially for a 20 yr. old. So, anything that you wish the center would offer or could have done differently in your adult dignosis?
thank you so much for your help. My hopes are someday to fix what is missing.
i wish you all the best.. and good health!
-Anna, 22 w/cf