Are you the person that posted anonymously on Jan 28th and said you had the 4 year old with the sweat test of 45 and 46?
I'm going to assume yes is the answer. You can look at the post I listed later that day under it about sweat test "borderline" numbers -- basically you should still be cautious when a doctor says borderline because I have living proof that people with CF can have very low borderline and even "normal" numbers and still have two known CF genes.
39 and below is normal
40-60 is borderline
61 & up is positive for CF
Genetic blood tests have confirmed my kids both have Delta F508 & R117H gene mutations. Their sweat test numbers are 38 and 41. Write this information down and show it to your doctor.
Keep pursuing the most thorough genetic testing (there area several different test -- some look for far more genes than others -- ask what test you are getting and if it will look for ALL known gene types)
CF effects people differently -- there is no way to tell you exactly what to expect -- some things many people experience, others never have a problem with, some people have much better health than others, some people go for years without needing a single hospital stay, others are there every couple of months -- however there are some GENERAL COMMON PROBLEMS that many people experience such as:
Lung infections -- needing one or more of the following: oral antibiotics, IV antibiotics, inhaled antibiotics.
Excess lung mucus/cough
Airway clearance needed-- use of a some form of lung vibration to help clear out the extra mucus -- a vest (machine that fills a vest with air to vibrate the torso), flutter or acapella (small plastic "pipe" looking things) or manual chest physical therapy (the parent uses their hands to pound on the torso -- but in a loving way <img src="i/expressions/face-icon-small-smile.gif" border="0">
Digestive/weight gain issues -- many people have problems with the pancreas and are unable to get the enzymes into the digestive track via the "normal" way so they have to take the enzymes (pills) with most foods/meals so the nutrients can get absorbed.
Liver issues -- I am not familiar with this, but I think others have discussed this -- I'm not sure if it is directly related to the CF or a secondary problem that develops because of the use of many CF related drugs for many years???
Infertility in both men and women, however more prominent in the men.
If you have found this site you have done a good job at taping into a lot of information -- you should start a new thread with a new topic that describes your specific question -- you will get more results/info from others -- also keep searching the internet for information but keep in mind a lot of it sounds worse than it really is -- things are changing for treatment and many lives are being extended with better quality of living now -- much of the information is out dated and/or just not accurate for a more mild case of CF.
Hope this info helps -- keep at it until you know for sure what the diagnosis is -- just like the other woman posted about her child -- the doctors cannot say for sure if it is CF or not but they will treat it like it is until they know otherwise -- this usually is the best way to go about it because the children usually get much better care and treatment.
