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Question about the sweat test.
- Thread starter anonymous
- Start date
You will have the results before you leave there. Is the testing being done by a recognized CF Center or Lab? Or is it being done by a local facility? Its very important that it be done properly because false results can occur from lack of training, knowledge etc. Good Luck! <img src="i/expressions/face-icon-small-wink.gif" border="0">
I suppose that it depends on where you are having the test done. MAKE SURE THAT IT IS AT A CF CENTER NOT JUST THE LOCAL HOSPITAL. The CF centers have much better rate of correct results. You wouldn't want a false positive or false negative. The CF center where we had our daughter tested had the results to the pediatrician by the next morning. Our daughter was admitted just over 24 hrs after she was tested (she was quite sick)You can read her story and get some really basic info (aimed at people who are new to CF) and the genetics of CF at http://groups.msn.com/teamRachelJane This is our site about our daughter, CF and the CFFwalk.Good luck, I hope it's not CF but if it is-check out the links on that site-2 really good support sites.Andrea
Thanks for the info. I live in Upstate South Carolina . I called the local Cf Center this morning. The lab I am going to is the only one that they deal with when doing a sweat test. I appreciate it. I am very new to the Cf community. We just found out recently that our youngest daughter' s doctor suspects CF. Hopefully this is just a false alarm. The more that find out about it the more I see why she suspects it. She has chronic sinusitis and rhinitis. She is on anitbiotics constantly to no avail. She had her adenoids removed 2 months ago and has gotten no relief from that. She cultured for a staph infections during her surgery, and after constant antibiotics since then she cultured for haemophilis influenza last week. She has a constant cough that gets better sometimes but never goes away. Her weight is okay, but she is a good bit shorter than most of the other children her same age at our church. Our son also shows many of the symptoms. He uses the bathroom constantly, he has been hospitalized 2 with croup and. He has been in the emergency room several times with it. HE also has had his adenoids out, but continues to have problems. He is also on anitbiotics for constantly for chronic sinusitis and rhinitis. They both have coughs that get better for a time, but they never fully recover from. I pray that this is just a precaution and that they will not have CF, but if not we will deal with it head on. Thanks!Melissa- mother of Hannah 6, Riley 3, and Gillian 20 months
Just remember if it is CF that they have had it since birth. Sometimes when you are given a name to an illness it makes it seem worse when really nothing has changed. If it is CF then with diagnosis your children should feel much better and be much healthier because they will be given proper treatments. No matter what everything will work out. God bless.
Basically, one of your daughter's arms tested as normal and the other arm tested as "abnormal." 40 and below is normal and 40-60 is questionable. Anything over 60 is considered diagnostic for CF. Since you have two different readings, I would talk to your doctor and ask him why he considered your daughter "normal" with one normal result and one "questionable" result. Also ask him how much sweat was collected and was there adequate sweat to test. I hope he is right and I hope your daughter does not have CF, but if I were you, I would want to be absolutely sure. As parents, you have every right to have him walk you though his thought process so that you understand his conclusions. P.S. Also make sure you had the test done at a CF center. I personally know of five people who had false negatives/abnormal results from non-CF centers. Good luck!Katrina - mother of Sean (5) w/cf, Carolyn 3.5 w/o cf, and Allison (1.5) w/o cf