question for my future

laulau555

New member
Hey this is for CF moms/soon to be CF moms. I'm 18 and obviously not thinking about having a child any time soon, but I have thought about whether or not I will have children when i'm out of college and married. I've always just had it in my head that I wouldn't have kids, that I would get too sick and also (i hate to say it) that i would hate to pass my CF burden on my kids and i wouldn't want to have kids only to leave them when they are teenagers. I know that's morbidly negative but its always been in the back of my head. what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? please share your stories with me! i would love to hear them.
 

laulau555

New member
Hey this is for CF moms/soon to be CF moms. I'm 18 and obviously not thinking about having a child any time soon, but I have thought about whether or not I will have children when i'm out of college and married. I've always just had it in my head that I wouldn't have kids, that I would get too sick and also (i hate to say it) that i would hate to pass my CF burden on my kids and i wouldn't want to have kids only to leave them when they are teenagers. I know that's morbidly negative but its always been in the back of my head. what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? please share your stories with me! i would love to hear them.
 

laulau555

New member
Hey this is for CF moms/soon to be CF moms. I'm 18 and obviously not thinking about having a child any time soon, but I have thought about whether or not I will have children when i'm out of college and married. I've always just had it in my head that I wouldn't have kids, that I would get too sick and also (i hate to say it) that i would hate to pass my CF burden on my kids and i wouldn't want to have kids only to leave them when they are teenagers. I know that's morbidly negative but its always been in the back of my head. what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? please share your stories with me! i would love to hear them.
 

laulau555

New member
Hey this is for CF moms/soon to be CF moms. I'm 18 and obviously not thinking about having a child any time soon, but I have thought about whether or not I will have children when i'm out of college and married. I've always just had it in my head that I wouldn't have kids, that I would get too sick and also (i hate to say it) that i would hate to pass my CF burden on my kids and i wouldn't want to have kids only to leave them when they are teenagers. I know that's morbidly negative but its always been in the back of my head. what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? please share your stories with me! i would love to hear them.
 

laulau555

New member
Hey this is for CF moms/soon to be CF moms. I'm 18 and obviously not thinking about having a child any time soon, but I have thought about whether or not I will have children when i'm out of college and married. I've always just had it in my head that I wouldn't have kids, that I would get too sick and also (i hate to say it) that i would hate to pass my CF burden on my kids and i wouldn't want to have kids only to leave them when they are teenagers. I know that's morbidly negative but its always been in the back of my head. what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? please share your stories with me! i would love to hear them.
 

PedsNP2007

New member
welcome to this thread. I am considering being a single mom with CF because I want to enjoy as much time with a child that I can. I know I could find someone in the future, but the big looming question is "just how much time will that take?" I would rather have 2-3 years with a child on my own than wait 2-3 years to be in an established relationship with someone and then try at that time (my health could not be where I would feel comfortable carrying a pregnancy).

There are single moms with kids out there who find a significant other post child... I need to focus on my dreams which is to have a child to enjoy while I can. My sister's due (via surrogate) in December and I would love to have our children be around the same age to grow up together.

Hope you find what you're looking for :)

Jenn
30 y/o cf, cfrd, maybe going to be pregnant in 1-2 months (scary and exciting!) :)
 

PedsNP2007

New member
welcome to this thread. I am considering being a single mom with CF because I want to enjoy as much time with a child that I can. I know I could find someone in the future, but the big looming question is "just how much time will that take?" I would rather have 2-3 years with a child on my own than wait 2-3 years to be in an established relationship with someone and then try at that time (my health could not be where I would feel comfortable carrying a pregnancy).

There are single moms with kids out there who find a significant other post child... I need to focus on my dreams which is to have a child to enjoy while I can. My sister's due (via surrogate) in December and I would love to have our children be around the same age to grow up together.

Hope you find what you're looking for :)

Jenn
30 y/o cf, cfrd, maybe going to be pregnant in 1-2 months (scary and exciting!) :)
 

PedsNP2007

New member
welcome to this thread. I am considering being a single mom with CF because I want to enjoy as much time with a child that I can. I know I could find someone in the future, but the big looming question is "just how much time will that take?" I would rather have 2-3 years with a child on my own than wait 2-3 years to be in an established relationship with someone and then try at that time (my health could not be where I would feel comfortable carrying a pregnancy).

There are single moms with kids out there who find a significant other post child... I need to focus on my dreams which is to have a child to enjoy while I can. My sister's due (via surrogate) in December and I would love to have our children be around the same age to grow up together.

Hope you find what you're looking for :)

Jenn
30 y/o cf, cfrd, maybe going to be pregnant in 1-2 months (scary and exciting!) :)
 

PedsNP2007

New member
welcome to this thread. I am considering being a single mom with CF because I want to enjoy as much time with a child that I can. I know I could find someone in the future, but the big looming question is "just how much time will that take?" I would rather have 2-3 years with a child on my own than wait 2-3 years to be in an established relationship with someone and then try at that time (my health could not be where I would feel comfortable carrying a pregnancy).

There are single moms with kids out there who find a significant other post child... I need to focus on my dreams which is to have a child to enjoy while I can. My sister's due (via surrogate) in December and I would love to have our children be around the same age to grow up together.

Hope you find what you're looking for :)

Jenn
30 y/o cf, cfrd, maybe going to be pregnant in 1-2 months (scary and exciting!) :)
 

PedsNP2007

New member
welcome to this thread. I am considering being a single mom with CF because I want to enjoy as much time with a child that I can. I know I could find someone in the future, but the big looming question is "just how much time will that take?" I would rather have 2-3 years with a child on my own than wait 2-3 years to be in an established relationship with someone and then try at that time (my health could not be where I would feel comfortable carrying a pregnancy).
<br />
<br />There are single moms with kids out there who find a significant other post child... I need to focus on my dreams which is to have a child to enjoy while I can. My sister's due (via surrogate) in December and I would love to have our children be around the same age to grow up together.
<br />
<br />Hope you find what you're looking for :)
<br />
<br />Jenn
<br />30 y/o cf, cfrd, maybe going to be pregnant in 1-2 months (scary and exciting!) :)
 
H

hopesiris

Guest
Hi Lauren. I'm 37, a stay at home mom and have a 10 month old baby. My CF is mild still. Even with my good health and only doing one treatment a day, I have to say motherhood is quite the challenge. Still, I exercise every single day even if it is only a 30 minute stroller walk.

If your health is still good with PFT's above 70% then a pregnancy shouldn't be too hard, it's taking care of the baby that is the hard part. A lot depends on how your partner feels too since that person could become a single parent. My husband accepts that and wants me to have one more child. He doesn't know about a third child but that could be the case for anybody! In my case I could live for many more years so for us it's hard to justify not having the family we planned on. But the realities of CF hold true for me just as much as any other CFer. We just don't know.

When deciding to have kids you also need to consider how much help you will get aside from what your spouse does. Will your family or friends help out? Do you have enough money to hire help if you don't have much of a support system? Will you be able to stay at home? Will you be able to work all day and care for a baby at night? Etc... There's a lot to think about and everyone's situation is different.

For me, I have almost no outside help so I do all of the cleaning, laundry, etc. plus care for my baby 12 hours a day alone while DH is at work. Not easy but I let go of the idea of things being perfectly clean and neat! I just do what I can and don't worry about the rest. I hope this helps. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Bonnie
 
H

hopesiris

Guest
Hi Lauren. I'm 37, a stay at home mom and have a 10 month old baby. My CF is mild still. Even with my good health and only doing one treatment a day, I have to say motherhood is quite the challenge. Still, I exercise every single day even if it is only a 30 minute stroller walk.

If your health is still good with PFT's above 70% then a pregnancy shouldn't be too hard, it's taking care of the baby that is the hard part. A lot depends on how your partner feels too since that person could become a single parent. My husband accepts that and wants me to have one more child. He doesn't know about a third child but that could be the case for anybody! In my case I could live for many more years so for us it's hard to justify not having the family we planned on. But the realities of CF hold true for me just as much as any other CFer. We just don't know.

When deciding to have kids you also need to consider how much help you will get aside from what your spouse does. Will your family or friends help out? Do you have enough money to hire help if you don't have much of a support system? Will you be able to stay at home? Will you be able to work all day and care for a baby at night? Etc... There's a lot to think about and everyone's situation is different.

For me, I have almost no outside help so I do all of the cleaning, laundry, etc. plus care for my baby 12 hours a day alone while DH is at work. Not easy but I let go of the idea of things being perfectly clean and neat! I just do what I can and don't worry about the rest. I hope this helps. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Bonnie
 
H

hopesiris

Guest
Hi Lauren. I'm 37, a stay at home mom and have a 10 month old baby. My CF is mild still. Even with my good health and only doing one treatment a day, I have to say motherhood is quite the challenge. Still, I exercise every single day even if it is only a 30 minute stroller walk.

If your health is still good with PFT's above 70% then a pregnancy shouldn't be too hard, it's taking care of the baby that is the hard part. A lot depends on how your partner feels too since that person could become a single parent. My husband accepts that and wants me to have one more child. He doesn't know about a third child but that could be the case for anybody! In my case I could live for many more years so for us it's hard to justify not having the family we planned on. But the realities of CF hold true for me just as much as any other CFer. We just don't know.

When deciding to have kids you also need to consider how much help you will get aside from what your spouse does. Will your family or friends help out? Do you have enough money to hire help if you don't have much of a support system? Will you be able to stay at home? Will you be able to work all day and care for a baby at night? Etc... There's a lot to think about and everyone's situation is different.

For me, I have almost no outside help so I do all of the cleaning, laundry, etc. plus care for my baby 12 hours a day alone while DH is at work. Not easy but I let go of the idea of things being perfectly clean and neat! I just do what I can and don't worry about the rest. I hope this helps. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Bonnie
 
H

hopesiris

Guest
Hi Lauren. I'm 37, a stay at home mom and have a 10 month old baby. My CF is mild still. Even with my good health and only doing one treatment a day, I have to say motherhood is quite the challenge. Still, I exercise every single day even if it is only a 30 minute stroller walk.

If your health is still good with PFT's above 70% then a pregnancy shouldn't be too hard, it's taking care of the baby that is the hard part. A lot depends on how your partner feels too since that person could become a single parent. My husband accepts that and wants me to have one more child. He doesn't know about a third child but that could be the case for anybody! In my case I could live for many more years so for us it's hard to justify not having the family we planned on. But the realities of CF hold true for me just as much as any other CFer. We just don't know.

When deciding to have kids you also need to consider how much help you will get aside from what your spouse does. Will your family or friends help out? Do you have enough money to hire help if you don't have much of a support system? Will you be able to stay at home? Will you be able to work all day and care for a baby at night? Etc... There's a lot to think about and everyone's situation is different.

For me, I have almost no outside help so I do all of the cleaning, laundry, etc. plus care for my baby 12 hours a day alone while DH is at work. Not easy but I let go of the idea of things being perfectly clean and neat! I just do what I can and don't worry about the rest. I hope this helps. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Bonnie
 
H

hopesiris

Guest
Hi Lauren. I'm 37, a stay at home mom and have a 10 month old baby. My CF is mild still. Even with my good health and only doing one treatment a day, I have to say motherhood is quite the challenge. Still, I exercise every single day even if it is only a 30 minute stroller walk.
<br />
<br />If your health is still good with PFT's above 70% then a pregnancy shouldn't be too hard, it's taking care of the baby that is the hard part. A lot depends on how your partner feels too since that person could become a single parent. My husband accepts that and wants me to have one more child. He doesn't know about a third child but that could be the case for anybody! In my case I could live for many more years so for us it's hard to justify not having the family we planned on. But the realities of CF hold true for me just as much as any other CFer. We just don't know.
<br />
<br />When deciding to have kids you also need to consider how much help you will get aside from what your spouse does. Will your family or friends help out? Do you have enough money to hire help if you don't have much of a support system? Will you be able to stay at home? Will you be able to work all day and care for a baby at night? Etc... There's a lot to think about and everyone's situation is different.
<br />
<br />For me, I have almost no outside help so I do all of the cleaning, laundry, etc. plus care for my baby 12 hours a day alone while DH is at work. Not easy but I let go of the idea of things being perfectly clean and neat! I just do what I can and don't worry about the rest. I hope this helps. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Bonnie
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>laulau555</b></i>
what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? q]

I was not diagnosed until my two sons were older. Yes, it's been hard raising kids while sick so much. My first child also has a form of CF and I threw up for 8 months with that pregnancy and didn't gain enough weight while pregnant. I became severely anemic and was put on high doses of iron at about 7 months along. I weighed about 15 less after he was born than when I got pregnant. There were a lot of foods I had to give up while pregnant because they made me throw up. Some foods made me feel like throwing up from just smelling them. I tooke me about two hours most days to get breakfast into me. My second pregnancy was easier but still not really easy. I only threw up for about 3 months but for most of my pregnancy I could hardly eat between 2pm and 10pm.

On the up side, being so sick with my first pregnancy forced me to clean up my diet to an extreme degree, which undoubtedly helped me stay healthier without a diagnosis. With a diagnosis, I have improved on that. And children have helped me get well when no one else really stood by me. My oldest son (who has atypical CF) has not been on antibiotics in over 10 years. He and I work on figuring out how to keep improving on my health. So for me, I think having kids literally helped save my life.

That's a bit of my story.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>laulau555</b></i>
what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? q]

I was not diagnosed until my two sons were older. Yes, it's been hard raising kids while sick so much. My first child also has a form of CF and I threw up for 8 months with that pregnancy and didn't gain enough weight while pregnant. I became severely anemic and was put on high doses of iron at about 7 months along. I weighed about 15 less after he was born than when I got pregnant. There were a lot of foods I had to give up while pregnant because they made me throw up. Some foods made me feel like throwing up from just smelling them. I tooke me about two hours most days to get breakfast into me. My second pregnancy was easier but still not really easy. I only threw up for about 3 months but for most of my pregnancy I could hardly eat between 2pm and 10pm.

On the up side, being so sick with my first pregnancy forced me to clean up my diet to an extreme degree, which undoubtedly helped me stay healthier without a diagnosis. With a diagnosis, I have improved on that. And children have helped me get well when no one else really stood by me. My oldest son (who has atypical CF) has not been on antibiotics in over 10 years. He and I work on figuring out how to keep improving on my health. So for me, I think having kids literally helped save my life.

That's a bit of my story.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>laulau555</b></i>
what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? q]

I was not diagnosed until my two sons were older. Yes, it's been hard raising kids while sick so much. My first child also has a form of CF and I threw up for 8 months with that pregnancy and didn't gain enough weight while pregnant. I became severely anemic and was put on high doses of iron at about 7 months along. I weighed about 15 less after he was born than when I got pregnant. There were a lot of foods I had to give up while pregnant because they made me throw up. Some foods made me feel like throwing up from just smelling them. I tooke me about two hours most days to get breakfast into me. My second pregnancy was easier but still not really easy. I only threw up for about 3 months but for most of my pregnancy I could hardly eat between 2pm and 10pm.

On the up side, being so sick with my first pregnancy forced me to clean up my diet to an extreme degree, which undoubtedly helped me stay healthier without a diagnosis. With a diagnosis, I have improved on that. And children have helped me get well when no one else really stood by me. My oldest son (who has atypical CF) has not been on antibiotics in over 10 years. He and I work on figuring out how to keep improving on my health. So for me, I think having kids literally helped save my life.

That's a bit of my story.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>laulau555</b></i>
what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? q]

I was not diagnosed until my two sons were older. Yes, it's been hard raising kids while sick so much. My first child also has a form of CF and I threw up for 8 months with that pregnancy and didn't gain enough weight while pregnant. I became severely anemic and was put on high doses of iron at about 7 months along. I weighed about 15 less after he was born than when I got pregnant. There were a lot of foods I had to give up while pregnant because they made me throw up. Some foods made me feel like throwing up from just smelling them. I tooke me about two hours most days to get breakfast into me. My second pregnancy was easier but still not really easy. I only threw up for about 3 months but for most of my pregnancy I could hardly eat between 2pm and 10pm.

On the up side, being so sick with my first pregnancy forced me to clean up my diet to an extreme degree, which undoubtedly helped me stay healthier without a diagnosis. With a diagnosis, I have improved on that. And children have helped me get well when no one else really stood by me. My oldest son (who has atypical CF) has not been on antibiotics in over 10 years. He and I work on figuring out how to keep improving on my health. So for me, I think having kids literally helped save my life.

That's a bit of my story.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>laulau555</b></i>
<br /> what have been your thoughts about this/ how did your pregnancy go? was it complicated and were you sick? was it hard with antibiotics and medicine? is it hard to raise children with a sick mother? q]
<br />
<br />I was not diagnosed until my two sons were older. Yes, it's been hard raising kids while sick so much. My first child also has a form of CF and I threw up for 8 months with that pregnancy and didn't gain enough weight while pregnant. I became severely anemic and was put on high doses of iron at about 7 months along. I weighed about 15 less after he was born than when I got pregnant. There were a lot of foods I had to give up while pregnant because they made me throw up. Some foods made me feel like throwing up from just smelling them. I tooke me about two hours most days to get breakfast into me. My second pregnancy was easier but still not really easy. I only threw up for about 3 months but for most of my pregnancy I could hardly eat between 2pm and 10pm.
<br />
<br />On the up side, being so sick with my first pregnancy forced me to clean up my diet to an extreme degree, which undoubtedly helped me stay healthier without a diagnosis. With a diagnosis, I have improved on that. And children have helped me get well when no one else really stood by me. My oldest son (who has atypical CF) has not been on antibiotics in over 10 years. He and I work on figuring out how to keep improving on my health. So for me, I think having kids literally helped save my life.
<br />
<br />That's a bit of my story.
 
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