Question for the runners out there

duke1234

New member
I'm under hospice care now, and I don't see my cf doctors or get admitted for tune-ups anymore, so I'm not sure what my options are but I'll talk to the hospice nurse and doctor and see if pulmonary rehab is an option.
 

duke1234

New member
I'm under hospice care now, and I don't see my cf doctors or get admitted for tune-ups anymore, so I'm not sure what my options are but I'll talk to the hospice nurse and doctor and see if pulmonary rehab is an option.
 

duke1234

New member
I'm under hospice care now, and I don't see my cf doctors or get admitted for tune-ups anymore, so I'm not sure what my options are but I'll talk to the hospice nurse and doctor and see if pulmonary rehab is an option.
 

mmurray0702

New member
It's so encouraging to see everyone talking about exercise and running! I also recently started the Couch to 5k app but I am taking it slow. My FEV1 is 81-84% so it's still pretty normal but my heart rate is fast..even resting I sit around 90 so when I start exercising, my heart rate shoots up and it worries me to keep pushing myself. Breathing wise, I could probably keep going but my anxiety over my heart gets the best of me. At the end of the 2nd week of the Couch to 5k, I am definitely feeling a little winded (but I haven't done ANY exercise in about 8 years now so I'm thinking that plays a big part of it). I also have a dream to do a 5k...but ulimately, I just want to be healthier.

Duke1234, I would definitely consult your CF team and ask them for their advice. They should be able to give you some activities that will help? I wish I had some help for you, but I genuinely am unsure of what to tell you. I would definitely consult your doctor.
 

mmurray0702

New member
It's so encouraging to see everyone talking about exercise and running! I also recently started the Couch to 5k app but I am taking it slow. My FEV1 is 81-84% so it's still pretty normal but my heart rate is fast..even resting I sit around 90 so when I start exercising, my heart rate shoots up and it worries me to keep pushing myself. Breathing wise, I could probably keep going but my anxiety over my heart gets the best of me. At the end of the 2nd week of the Couch to 5k, I am definitely feeling a little winded (but I haven't done ANY exercise in about 8 years now so I'm thinking that plays a big part of it). I also have a dream to do a 5k...but ulimately, I just want to be healthier.

Duke1234, I would definitely consult your CF team and ask them for their advice. They should be able to give you some activities that will help? I wish I had some help for you, but I genuinely am unsure of what to tell you. I would definitely consult your doctor.
 

mmurray0702

New member
It's so encouraging to see everyone talking about exercise and running! I also recently started the Couch to 5k app but I am taking it slow. My FEV1 is 81-84% so it's still pretty normal but my heart rate is fast..even resting I sit around 90 so when I start exercising, my heart rate shoots up and it worries me to keep pushing myself. Breathing wise, I could probably keep going but my anxiety over my heart gets the best of me. At the end of the 2nd week of the Couch to 5k, I am definitely feeling a little winded (but I haven't done ANY exercise in about 8 years now so I'm thinking that plays a big part of it). I also have a dream to do a 5k...but ulimately, I just want to be healthier.
<br />
<br />Duke1234, I would definitely consult your CF team and ask them for their advice. They should be able to give you some activities that will help? I wish I had some help for you, but I genuinely am unsure of what to tell you. I would definitely consult your doctor.
 

jdmd

New member
Becki,<div>I can completely relate to absolutely everything.  Don't panic!  I'm 50 now, and although I'm not currently running, I've done a lot in the past.  First, listen to your body and don't let yourself get to the point where you are so winded, you need to stop.  Stop before that, and walk until you can jog again.  Don't worry about speed in the beginning...that will come.</div><div>There is a principal in exercise  physiology called the SAID principle..."specific adaptation to imposed demand."  Basically that means that you get really good at what you do.  So even though you may be incredibly fit doing other types of exercise, it takes awhile for your body to adapt to jogging...but it will</div><div>I coach a lot of people with CF, and the main thing is to make sure you are enjoying what you do...if you dread it, you are pushing too hard.  That doesn't mean don't push yourself, but do it in  small increments.  It sounds like you are doing the C25K program?  That's for people with normal lung function, so adapt it to you...repeat weeks as you need to...slowly progress...and enjoy yourself.</div><div>Cheers!</div><div>Julie</div>
 

jdmd

New member
Becki,I can completely relate to absolutely everything. Don't panic! I'm 50 now, and although I'm not currently running, I've done a lot in the past. First, listen to your body and don't let yourself get to the point where you are so winded, you need to stop. Stop before that, and walk until you can jog again. Don't worry about speed in the beginning...that will come.There is a principal in exercise physiology called the SAID principle..."specific adaptation to imposed demand." Basically that means that you get really good at what you do. So even though you may be incredibly fit doing other types of exercise, it takes awhile for your body to adapt to jogging...but it willI coach a lot of people with CF, and the main thing is to make sure you are enjoying what you do...if you dread it, you are pushing too hard. That doesn't mean don't push yourself, but do it in small increments. It sounds like you are doing the C25K program? That's for people with normal lung function, so adapt it to you...repeat weeks as you need to...slowly progress...and enjoy yourself.Cheers!Julie
 

jdmd

New member
Becki,I can completely relate to absolutely everything. Don't panic! I'm 50 now, and although I'm not currently running, I've done a lot in the past. First, listen to your body and don't let yourself get to the point where you are so winded, you need to stop. Stop before that, and walk until you can jog again. Don't worry about speed in the beginning...that will come.There is a principal in exercise physiology called the SAID principle..."specific adaptation to imposed demand." Basically that means that you get really good at what you do. So even though you may be incredibly fit doing other types of exercise, it takes awhile for your body to adapt to jogging...but it willI coach a lot of people with CF, and the main thing is to make sure you are enjoying what you do...if you dread it, you are pushing too hard. That doesn't mean don't push yourself, but do it in small increments. It sounds like you are doing the C25K program? That's for people with normal lung function, so adapt it to you...repeat weeks as you need to...slowly progress...and enjoy yourself.Cheers!Julie
 

kwcf50

New member
Becki,<br>It may be that you just need to work up to it.  But, sounds like you have speed too high on treadmill to start.  If I ever run on treadmill, which I try to avoid, I would only have it on about 4.5.  Better to just go at what feels right on the road or path.  I'd suggest at starting with 10-15 minutes of jogging with same of walking and then increase from there.<br><br>You could have your oxygen level tested to make sure it's holding to acceptable level, check with your Doctor about this.   I am 49 with FEV 44 and recently, after learning about jogging with O2 from Jerry Cahill (a CFer and volunteer with the Boomer Esiason Foundation), discovered that my O2 level was dropping too low during that 1/4 mile jog/1/4 mile walk routine I was doing...so have been jogging with a small O2 tank in backpack since May and just completed my first 10k with O2!  Time 1:20:48!!  You may not need it as you have a great FEV1 right now, but always good to check with your Doctor.  It's different for everyone.<br><br>Congrats on starting!  Its the hardest part.  Persevere....the rewards are great....not just for your CF but for your life....running and getting out there to participate in this stuff is so very positive!<br><br>Best, Kay<br>
 

kwcf50

New member
Becki,<br>It may be that you just need to work up to it. But, sounds like you have speed too high on treadmill to start. If I ever run on treadmill, which I try to avoid, I would only have it on about 4.5. Better to just go at what feels right on the road or path. I'd suggest at starting with 10-15 minutes of jogging with same of walking and then increase from there.<br><br>You could have your oxygen level tested to make sure it's holding to acceptable level, check with your Doctor about this. I am 49 with FEV 44 and recently, after learning about jogging with O2 from Jerry Cahill (a CFer and volunteer with the Boomer Esiason Foundation), discovered that my O2 level was dropping too low during that 1/4 mile jog/1/4 mile walk routine I was doing...so have been jogging with a small O2 tank in backpack since May and just completed my first 10k with O2! Time 1:20:48!! You may not need it as you have a great FEV1 right now, but always good to check with your Doctor. It's different for everyone.<br><br>Congrats on starting! Its the hardest part. Persevere....the rewards are great....not just for your CF but for your life....running and getting out there to participate in this stuff is so very positive!<br><br>Best, Kay<br>
 

kwcf50

New member
Becki,<br>It may be that you just need to work up to it. But, sounds like you have speed too high on treadmill to start. If I ever run on treadmill, which I try to avoid, I would only have it on about 4.5. Better to just go at what feels right on the road or path. I'd suggest at starting with 10-15 minutes of jogging with same of walking and then increase from there.<br><br>You could have your oxygen level tested to make sure it's holding to acceptable level, check with your Doctor about this. I am 49 with FEV 44 and recently, after learning about jogging with O2 from Jerry Cahill (a CFer and volunteer with the Boomer Esiason Foundation), discovered that my O2 level was dropping too low during that 1/4 mile jog/1/4 mile walk routine I was doing...so have been jogging with a small O2 tank in backpack since May and just completed my first 10k with O2! Time 1:20:48!! You may not need it as you have a great FEV1 right now, but always good to check with your Doctor. It's different for everyone.<br><br>Congrats on starting! Its the hardest part. Persevere....the rewards are great....not just for your CF but for your life....running and getting out there to participate in this stuff is so very positive!<br><br>Best, Kay<br>
 
M

moxie1

Guest
<P>Thanks everyone for the comments and advice.  I am now at 25 minutes of running with no break.  That is unless I need to cough and I only step off for a few seconds.  I am doing 5.0 mph and last session I bumped it up to 5.3 mph for 10 minutes.</P>
<P> </P>
<P>My winded feeling is getting better.  Sometimes I feel like stopping, but I can easily push through it because I'm not gasping for air or anything.  I can't hold a conversation or anything but  I could push out a few phrases if needed.  <img src="i/expressions/face-icon-small-smile.gif" border="0"></P>
<P> </P>
<P>What I am really loving is that I get so junky for the rest of the afternoon after I finish.  That is really good and makes me very happy.  </P>
 
M

moxie1

Guest
<P>Thanks everyone for the comments and advice. I am now at 25 minutes of running with no break. That is unless I need to cough and I only step off for a few seconds. I am doing 5.0 mph and last session I bumped it up to 5.3 mph for 10 minutes.</P>
<P></P>
<P>My winded feeling is getting better. Sometimes I feel like stopping, but I can easily push through it because I'm not gasping for air or anything. I can't hold a conversation or anything but I could push out a few phrases if needed. <img src="i/expressions/face-icon-small-smile.gif" border="0"></P>
<P></P>
<P>What I am really loving is that I get so junky for the rest of the afternoon after I finish. That is really good and makes me very happy. </P>
 
M

moxie1

Guest
<P><BR>Thanks everyone for the comments and advice. I am now at 25 minutes of running with no break. That is unless I need to cough and I only step off for a few seconds. I am doing 5.0 mph and last session I bumped it up to 5.3 mph for 10 minutes.</P>
<P></P>
<P>My winded feeling is getting better. Sometimes I feel like stopping, but I can easily push through it because I'm not gasping for air or anything. I can't hold a conversation or anything but I could push out a few phrases if needed. <img src="i/expressions/face-icon-small-smile.gif" border="0"></P>
<P></P>
<P>What I am really loving is that I get so junky for the rest of the afternoon after I finish. That is really good and makes me very happy. </P>
 

saveferris2009

New member
Nice work for 25 minutes! I tried to run my 1st mile today straight, and ended up doing 2.06 miles!!!!

I seriously couldn't not run more than 1 block (if that) about 4 weeks ago - can't believe it.
 

saveferris2009

New member
Nice work for 25 minutes! I tried to run my 1st mile today straight, and ended up doing 2.06 miles!!!!

I seriously couldn't not run more than 1 block (if that) about 4 weeks ago - can't believe it.
 

saveferris2009

New member
Nice work for 25 minutes! I tried to run my 1st mile today straight, and ended up doing 2.06 miles!!!!
<br />
<br />I seriously couldn't not run more than 1 block (if that) about 4 weeks ago - can't believe it.
 

Madsmith

New member
If your goal is to run a long distance because you enjoy it, then I would not worry about speed or distance, but instead focus on heart rate. I had zero success running until I learned about heart rate zone training, and bought myself a heart monitor. You spend a couple of months running slow as can be to build up your base, and then move up to the slightly higher zone for a while, and etc. Following this style training allowed me to build distance and speed over a 6 month period - far beyond what I had ever accomplished before.

If your goal is fitness, then I'd recommend some sort of higher intensity circuit training such as CrossFit.

I've done the distance thing, and the intensity thing separately, and enjoyed them both. I found they had different benefits, and if I had the time and dedication, I'd combine the two - as they do at <A HREF="http://www.crossfitendurance.com/">http://www.crossfitendurance.com/</A>

Good luck, anything helps (I say from my couch!).
 

Madsmith

New member
If your goal is to run a long distance because you enjoy it, then I would not worry about speed or distance, but instead focus on heart rate. I had zero success running until I learned about heart rate zone training, and bought myself a heart monitor. You spend a couple of months running slow as can be to build up your base, and then move up to the slightly higher zone for a while, and etc. Following this style training allowed me to build distance and speed over a 6 month period - far beyond what I had ever accomplished before.

If your goal is fitness, then I'd recommend some sort of higher intensity circuit training such as CrossFit.

I've done the distance thing, and the intensity thing separately, and enjoyed them both. I found they had different benefits, and if I had the time and dedication, I'd combine the two - as they do at <A HREF="http://www.crossfitendurance.com/">http://www.crossfitendurance.com/</A>

Good luck, anything helps (I say from my couch!).
 
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