After the inhaled Aztreonam didnt come out on the market as planned my Dr. encouraged me to get back on the AZLI study. I quit the study months before due to the mist being <b>so</b> dense thru the eflow that i had a hard time inhaling it at all. I got back on it the 26th of Dec. and on the 29th i coughed up blood immediately after doing the AZLI.(small amount) Next day same thing. Since then i have had streaks every day and episodes of hemoptysis either shortly after the treatment or randomly after coughing hard.
I am no stranger to hemnoptysis ( 3 embolizations ) so some hemoptysis here and there isnt all too uncommon, but i was actually hemoptysis free for a good run there (a few months) so i know this is caused by the AZLI, maybe not the medicine itself but the density of the mist thru the eflow.
My question is.... has anyone else experienced this? Did you have to stop using it? Has anyone tried it in a regular nebulizer?
I am waiting for a call back from my Dr. to let me know if he wants me to continue the AZLI.
I am no stranger to hemnoptysis ( 3 embolizations ) so some hemoptysis here and there isnt all too uncommon, but i was actually hemoptysis free for a good run there (a few months) so i know this is caused by the AZLI, maybe not the medicine itself but the density of the mist thru the eflow.
My question is.... has anyone else experienced this? Did you have to stop using it? Has anyone tried it in a regular nebulizer?
I am waiting for a call back from my Dr. to let me know if he wants me to continue the AZLI.