Question For Those Post-Transplant

[Lilith]

Thanks, everyone, for sharing your experiences! I very much appreciate it. It helps to talk to people who have been through this. I've decided not to just sit around by the phone with baited breath. That's pretty pointless and, above all, nerve wracking. My sides are still aching from the surgeries, and I'm on O2 constantly now, so those are pretty big reminders for me that I need this transplant. But I just have to learn to adapt, I guess. Thank god for my family and for Rick...I'd never get through this without them!

Again, thanks for the advice. Love you guys!

 

[Lilith]

Thanks, everyone, for sharing your experiences! I very much appreciate it. It helps to talk to people who have been through this. I've decided not to just sit around by the phone with baited breath. That's pretty pointless and, above all, nerve wracking. My sides are still aching from the surgeries, and I'm on O2 constantly now, so those are pretty big reminders for me that I need this transplant. But I just have to learn to adapt, I guess. Thank god for my family and for Rick...I'd never get through this without them!

Again, thanks for the advice. Love you guys!

 

[Lilith]

Thanks, everyone, for sharing your experiences! I very much appreciate it. It helps to talk to people who have been through this. I've decided not to just sit around by the phone with baited breath. That's pretty pointless and, above all, nerve wracking. My sides are still aching from the surgeries, and I'm on O2 constantly now, so those are pretty big reminders for me that I need this transplant. But I just have to learn to adapt, I guess. Thank god for my family and for Rick...I'd never get through this without them!

Again, thanks for the advice. Love you guys!

 

[Lilith]

Thanks, everyone, for sharing your experiences! I very much appreciate it. It helps to talk to people who have been through this. I've decided not to just sit around by the phone with baited breath. That's pretty pointless and, above all, nerve wracking. My sides are still aching from the surgeries, and I'm on O2 constantly now, so those are pretty big reminders for me that I need this transplant. But I just have to learn to adapt, I guess. Thank god for my family and for Rick...I'd never get through this without them!

Again, thanks for the advice. Love you guys!

 

[Lilith]

Thanks, everyone, for sharing your experiences! I very much appreciate it. It helps to talk to people who have been through this. I've decided not to just sit around by the phone with baited breath. That's pretty pointless and, above all, nerve wracking. My sides are still aching from the surgeries, and I'm on O2 constantly now, so those are pretty big reminders for me that I need this transplant. But I just have to learn to adapt, I guess. Thank god for my family and for Rick...I'd never get through this without them!

Again, thanks for the advice. Love you guys!

 

[johannaleigh]

Hey Lilith, I am a few weeks from being on the transplant list myself. The reason I'm not on there now is because I have to get 2 cavities filled first. MY doctor said as soon as that gets taken care of I will be good to go. Like everyone else has said, don't worry too much about the "death sentence" you have been given. My doctor said about a year ago he thought I might live 2 years like I am. I'ts just an estimate, no one knows. There are many people who far outlive thier medical death sentence. I'm worried about the surgery too, everyone is. I believe its important to be realistic about the fact that this could be the end of my life. But it also could be the beginning. When I first started learning about transplant all I was told by the doctors and nurses was the statistics, a 50% chance of survival of the surgery, and 50% chance of living 5 years, and they told me 10 years was not common. So I thought great, I have 5 years left, big fu%&ing deal. But then I went to a transplant meeting. A lady there said she met someone who had a double lung transplant 10 years ago and is doing fine. At the meeting they told us to make longe term plans for our life, that people were living longer now days and medicine is getting better all the time. I felt much better about everything after I left. I go to Birmingham Alabama to my cf center and there have been at least 6 or seven lung transplants done there this year and they all survived. 5 were cf patients and they are doing fine.

Yes you should do something to preoccupie yourself. I'm still going to school. I'm only taking two classes now but this summer I just sat around and it made my anxiety about the surgery and my health worse. So find a hobbie, go to school if you can, but do something. And make sure you do something fun. Do something you always wanted to do so if it is the end you'll be able to say, I did such and such that i've always wanted to do and it was great. I don't mean spend all your savings on a sports car or doing something dangerous, because there,s a good chance your going to live. You know what I mean, just something good.
I have hope that this is the beginning of my life with a healthier body. I also know it could be the end or could be just a very short life. I distract myself but I also think about the reality of it. I'm afraid and am depressed sometimes. But I get through it and realize that what ever happens happens and I will deal with whatever happens and I believe God will get me through this. I don't know if you believe in God, if not that's ok,I believe you will get through this just as well as I do. People with cf are tough. I also have a friend who is a couselor that I talk to sometimes. Or you could talk to a friend. If you ever need someone to talk to send me a message. Hope this helped.

 

[johannaleigh]

Hey Lilith, I am a few weeks from being on the transplant list myself. The reason I'm not on there now is because I have to get 2 cavities filled first. MY doctor said as soon as that gets taken care of I will be good to go. Like everyone else has said, don't worry too much about the "death sentence" you have been given. My doctor said about a year ago he thought I might live 2 years like I am. I'ts just an estimate, no one knows. There are many people who far outlive thier medical death sentence. I'm worried about the surgery too, everyone is. I believe its important to be realistic about the fact that this could be the end of my life. But it also could be the beginning. When I first started learning about transplant all I was told by the doctors and nurses was the statistics, a 50% chance of survival of the surgery, and 50% chance of living 5 years, and they told me 10 years was not common. So I thought great, I have 5 years left, big fu%&ing deal. But then I went to a transplant meeting. A lady there said she met someone who had a double lung transplant 10 years ago and is doing fine. At the meeting they told us to make longe term plans for our life, that people were living longer now days and medicine is getting better all the time. I felt much better about everything after I left. I go to Birmingham Alabama to my cf center and there have been at least 6 or seven lung transplants done there this year and they all survived. 5 were cf patients and they are doing fine.

Yes you should do something to preoccupie yourself. I'm still going to school. I'm only taking two classes now but this summer I just sat around and it made my anxiety about the surgery and my health worse. So find a hobbie, go to school if you can, but do something. And make sure you do something fun. Do something you always wanted to do so if it is the end you'll be able to say, I did such and such that i've always wanted to do and it was great. I don't mean spend all your savings on a sports car or doing something dangerous, because there,s a good chance your going to live. You know what I mean, just something good.
I have hope that this is the beginning of my life with a healthier body. I also know it could be the end or could be just a very short life. I distract myself but I also think about the reality of it. I'm afraid and am depressed sometimes. But I get through it and realize that what ever happens happens and I will deal with whatever happens and I believe God will get me through this. I don't know if you believe in God, if not that's ok,I believe you will get through this just as well as I do. People with cf are tough. I also have a friend who is a couselor that I talk to sometimes. Or you could talk to a friend. If you ever need someone to talk to send me a message. Hope this helped.

 

[johannaleigh]

Hey Lilith, I am a few weeks from being on the transplant list myself. The reason I'm not on there now is because I have to get 2 cavities filled first. MY doctor said as soon as that gets taken care of I will be good to go. Like everyone else has said, don't worry too much about the "death sentence" you have been given. My doctor said about a year ago he thought I might live 2 years like I am. I'ts just an estimate, no one knows. There are many people who far outlive thier medical death sentence. I'm worried about the surgery too, everyone is. I believe its important to be realistic about the fact that this could be the end of my life. But it also could be the beginning. When I first started learning about transplant all I was told by the doctors and nurses was the statistics, a 50% chance of survival of the surgery, and 50% chance of living 5 years, and they told me 10 years was not common. So I thought great, I have 5 years left, big fu%&ing deal. But then I went to a transplant meeting. A lady there said she met someone who had a double lung transplant 10 years ago and is doing fine. At the meeting they told us to make longe term plans for our life, that people were living longer now days and medicine is getting better all the time. I felt much better about everything after I left. I go to Birmingham Alabama to my cf center and there have been at least 6 or seven lung transplants done there this year and they all survived. 5 were cf patients and they are doing fine.

Yes you should do something to preoccupie yourself. I'm still going to school. I'm only taking two classes now but this summer I just sat around and it made my anxiety about the surgery and my health worse. So find a hobbie, go to school if you can, but do something. And make sure you do something fun. Do something you always wanted to do so if it is the end you'll be able to say, I did such and such that i've always wanted to do and it was great. I don't mean spend all your savings on a sports car or doing something dangerous, because there,s a good chance your going to live. You know what I mean, just something good.
I have hope that this is the beginning of my life with a healthier body. I also know it could be the end or could be just a very short life. I distract myself but I also think about the reality of it. I'm afraid and am depressed sometimes. But I get through it and realize that what ever happens happens and I will deal with whatever happens and I believe God will get me through this. I don't know if you believe in God, if not that's ok,I believe you will get through this just as well as I do. People with cf are tough. I also have a friend who is a couselor that I talk to sometimes. Or you could talk to a friend. If you ever need someone to talk to send me a message. Hope this helped.

 

[johannaleigh]

Hey Lilith, I am a few weeks from being on the transplant list myself. The reason I'm not on there now is because I have to get 2 cavities filled first. MY doctor said as soon as that gets taken care of I will be good to go. Like everyone else has said, don't worry too much about the "death sentence" you have been given. My doctor said about a year ago he thought I might live 2 years like I am. I'ts just an estimate, no one knows. There are many people who far outlive thier medical death sentence. I'm worried about the surgery too, everyone is. I believe its important to be realistic about the fact that this could be the end of my life. But it also could be the beginning. When I first started learning about transplant all I was told by the doctors and nurses was the statistics, a 50% chance of survival of the surgery, and 50% chance of living 5 years, and they told me 10 years was not common. So I thought great, I have 5 years left, big fu%&ing deal. But then I went to a transplant meeting. A lady there said she met someone who had a double lung transplant 10 years ago and is doing fine. At the meeting they told us to make longe term plans for our life, that people were living longer now days and medicine is getting better all the time. I felt much better about everything after I left. I go to Birmingham Alabama to my cf center and there have been at least 6 or seven lung transplants done there this year and they all survived. 5 were cf patients and they are doing fine.

Yes you should do something to preoccupie yourself. I'm still going to school. I'm only taking two classes now but this summer I just sat around and it made my anxiety about the surgery and my health worse. So find a hobbie, go to school if you can, but do something. And make sure you do something fun. Do something you always wanted to do so if it is the end you'll be able to say, I did such and such that i've always wanted to do and it was great. I don't mean spend all your savings on a sports car or doing something dangerous, because there,s a good chance your going to live. You know what I mean, just something good.
I have hope that this is the beginning of my life with a healthier body. I also know it could be the end or could be just a very short life. I distract myself but I also think about the reality of it. I'm afraid and am depressed sometimes. But I get through it and realize that what ever happens happens and I will deal with whatever happens and I believe God will get me through this. I don't know if you believe in God, if not that's ok,I believe you will get through this just as well as I do. People with cf are tough. I also have a friend who is a couselor that I talk to sometimes. Or you could talk to a friend. If you ever need someone to talk to send me a message. Hope this helped.

 

[johannaleigh]

Hey Lilith, I am a few weeks from being on the transplant list myself. The reason I'm not on there now is because I have to get 2 cavities filled first. MY doctor said as soon as that gets taken care of I will be good to go. Like everyone else has said, don't worry too much about the "death sentence" you have been given. My doctor said about a year ago he thought I might live 2 years like I am. I'ts just an estimate, no one knows. There are many people who far outlive thier medical death sentence. I'm worried about the surgery too, everyone is. I believe its important to be realistic about the fact that this could be the end of my life. But it also could be the beginning. When I first started learning about transplant all I was told by the doctors and nurses was the statistics, a 50% chance of survival of the surgery, and 50% chance of living 5 years, and they told me 10 years was not common. So I thought great, I have 5 years left, big fu%&ing deal. But then I went to a transplant meeting. A lady there said she met someone who had a double lung transplant 10 years ago and is doing fine. At the meeting they told us to make longe term plans for our life, that people were living longer now days and medicine is getting better all the time. I felt much better about everything after I left. I go to Birmingham Alabama to my cf center and there have been at least 6 or seven lung transplants done there this year and they all survived. 5 were cf patients and they are doing fine.

Yes you should do something to preoccupie yourself. I'm still going to school. I'm only taking two classes now but this summer I just sat around and it made my anxiety about the surgery and my health worse. So find a hobbie, go to school if you can, but do something. And make sure you do something fun. Do something you always wanted to do so if it is the end you'll be able to say, I did such and such that i've always wanted to do and it was great. I don't mean spend all your savings on a sports car or doing something dangerous, because there,s a good chance your going to live. You know what I mean, just something good.
I have hope that this is the beginning of my life with a healthier body. I also know it could be the end or could be just a very short life. I distract myself but I also think about the reality of it. I'm afraid and am depressed sometimes. But I get through it and realize that what ever happens happens and I will deal with whatever happens and I believe God will get me through this. I don't know if you believe in God, if not that's ok,I believe you will get through this just as well as I do. People with cf are tough. I also have a friend who is a couselor that I talk to sometimes. Or you could talk to a friend. If you ever need someone to talk to send me a message. Hope this helped.

 

[Liza]

Hi, Even though I am not the one that is post transplant, I went through the agonizing wait with my daughter just recently. I believe that it is the most difficult part but you have to have faith that HE will do what is right for you. I know that it is hard sometimes, most especially when it seems like it will never come.

I have to think the doctors must really think your wait should not be long if they tell you that. You have to use some common sense though, no one knows when your lungs will come. They can only tell you what they feel, compare it to how quick others of your size and blood type have waited. The first thing Anna's doctor said was I don't hand out the lungs BUT I wouldn't be surprised if you got your transplant within 2 months. Sure it made us feel good, gave us hope, but it didn't happen. The average wait time for our center was 4 months. That came and went. We were getting tired as the 6 month mark approached. Anna was ready to take a break from the list and go home. We had re-located, to wait, home is almost 1500 miles away.

One of the things we did and so looked forward to was attend the transplant support group meetings. A chance to speak to people that had already gone through it and others that were waiting was so wonderful. You can get so much hope and encouragement from them just like you get here. And honestly, you may even meet someone that makes you think... my wait hasn't been so bad. We met a young man who had relocated with his mom three years ago, he was waiting for a heart/lung. They were all they had, no one else. At one particular meeting Anna was really frustrated and feeling ready to just give up. This young man, having been waiting soooo much longer than Anna was amazing at renewing our hope. It seemed everyone was getting their transplant and here we were still, waiting. And even though you are happy for everyone getting their transplant you feel guilty for feeling the "why haven't I been called yet?" Ask if there is a support group that you can attend and go. It really helps, if only taking up a couple of hours of one day a month.

Everything else, we just mostly piddled around. Bookstores, movies, Target. We tried crafts but just couldn't concentrate for more than one small project. Anna was lucky enough to not be on oxygen during the day and was able to take riding lessons while she waited. Her doctors had told her to work on her leg strength. Riding english really builds up your leg strength and doesn't tire you out, except your leg muscles. But it really helped.

I believe Anna thought of this as a new beginning. All the things she was going to be able to do after she got her new lungs. When the transplant doctor told her that essentially her "clock" would be reset. She took that as "I get two birthdays!" He agreed. Again, going back to support group, one wise young lady (who happens to be a twin w/CF that now plays the BAGPIPES! and hikes) recommended to have a goal board of all the things you want to do and KEEP adding to it.

Lisa, don't give up. The call will come when you least expect it. We hated hearing that, but it's true. Just remember they are waiting for the perfect lungs for you, you don't want anything less. Try to keep your chin up.

 

[Liza]

Hi, Even though I am not the one that is post transplant, I went through the agonizing wait with my daughter just recently. I believe that it is the most difficult part but you have to have faith that HE will do what is right for you. I know that it is hard sometimes, most especially when it seems like it will never come.

I have to think the doctors must really think your wait should not be long if they tell you that. You have to use some common sense though, no one knows when your lungs will come. They can only tell you what they feel, compare it to how quick others of your size and blood type have waited. The first thing Anna's doctor said was I don't hand out the lungs BUT I wouldn't be surprised if you got your transplant within 2 months. Sure it made us feel good, gave us hope, but it didn't happen. The average wait time for our center was 4 months. That came and went. We were getting tired as the 6 month mark approached. Anna was ready to take a break from the list and go home. We had re-located, to wait, home is almost 1500 miles away.

One of the things we did and so looked forward to was attend the transplant support group meetings. A chance to speak to people that had already gone through it and others that were waiting was so wonderful. You can get so much hope and encouragement from them just like you get here. And honestly, you may even meet someone that makes you think... my wait hasn't been so bad. We met a young man who had relocated with his mom three years ago, he was waiting for a heart/lung. They were all they had, no one else. At one particular meeting Anna was really frustrated and feeling ready to just give up. This young man, having been waiting soooo much longer than Anna was amazing at renewing our hope. It seemed everyone was getting their transplant and here we were still, waiting. And even though you are happy for everyone getting their transplant you feel guilty for feeling the "why haven't I been called yet?" Ask if there is a support group that you can attend and go. It really helps, if only taking up a couple of hours of one day a month.

Everything else, we just mostly piddled around. Bookstores, movies, Target. We tried crafts but just couldn't concentrate for more than one small project. Anna was lucky enough to not be on oxygen during the day and was able to take riding lessons while she waited. Her doctors had told her to work on her leg strength. Riding english really builds up your leg strength and doesn't tire you out, except your leg muscles. But it really helped.

I believe Anna thought of this as a new beginning. All the things she was going to be able to do after she got her new lungs. When the transplant doctor told her that essentially her "clock" would be reset. She took that as "I get two birthdays!" He agreed. Again, going back to support group, one wise young lady (who happens to be a twin w/CF that now plays the BAGPIPES! and hikes) recommended to have a goal board of all the things you want to do and KEEP adding to it.

Lisa, don't give up. The call will come when you least expect it. We hated hearing that, but it's true. Just remember they are waiting for the perfect lungs for you, you don't want anything less. Try to keep your chin up.

 

[Liza]

Hi, Even though I am not the one that is post transplant, I went through the agonizing wait with my daughter just recently. I believe that it is the most difficult part but you have to have faith that HE will do what is right for you. I know that it is hard sometimes, most especially when it seems like it will never come.

I have to think the doctors must really think your wait should not be long if they tell you that. You have to use some common sense though, no one knows when your lungs will come. They can only tell you what they feel, compare it to how quick others of your size and blood type have waited. The first thing Anna's doctor said was I don't hand out the lungs BUT I wouldn't be surprised if you got your transplant within 2 months. Sure it made us feel good, gave us hope, but it didn't happen. The average wait time for our center was 4 months. That came and went. We were getting tired as the 6 month mark approached. Anna was ready to take a break from the list and go home. We had re-located, to wait, home is almost 1500 miles away.

One of the things we did and so looked forward to was attend the transplant support group meetings. A chance to speak to people that had already gone through it and others that were waiting was so wonderful. You can get so much hope and encouragement from them just like you get here. And honestly, you may even meet someone that makes you think... my wait hasn't been so bad. We met a young man who had relocated with his mom three years ago, he was waiting for a heart/lung. They were all they had, no one else. At one particular meeting Anna was really frustrated and feeling ready to just give up. This young man, having been waiting soooo much longer than Anna was amazing at renewing our hope. It seemed everyone was getting their transplant and here we were still, waiting. And even though you are happy for everyone getting their transplant you feel guilty for feeling the "why haven't I been called yet?" Ask if there is a support group that you can attend and go. It really helps, if only taking up a couple of hours of one day a month.

Everything else, we just mostly piddled around. Bookstores, movies, Target. We tried crafts but just couldn't concentrate for more than one small project. Anna was lucky enough to not be on oxygen during the day and was able to take riding lessons while she waited. Her doctors had told her to work on her leg strength. Riding english really builds up your leg strength and doesn't tire you out, except your leg muscles. But it really helped.

I believe Anna thought of this as a new beginning. All the things she was going to be able to do after she got her new lungs. When the transplant doctor told her that essentially her "clock" would be reset. She took that as "I get two birthdays!" He agreed. Again, going back to support group, one wise young lady (who happens to be a twin w/CF that now plays the BAGPIPES! and hikes) recommended to have a goal board of all the things you want to do and KEEP adding to it.

Lisa, don't give up. The call will come when you least expect it. We hated hearing that, but it's true. Just remember they are waiting for the perfect lungs for you, you don't want anything less. Try to keep your chin up.

 

[Liza]

Hi, Even though I am not the one that is post transplant, I went through the agonizing wait with my daughter just recently. I believe that it is the most difficult part but you have to have faith that HE will do what is right for you. I know that it is hard sometimes, most especially when it seems like it will never come.

I have to think the doctors must really think your wait should not be long if they tell you that. You have to use some common sense though, no one knows when your lungs will come. They can only tell you what they feel, compare it to how quick others of your size and blood type have waited. The first thing Anna's doctor said was I don't hand out the lungs BUT I wouldn't be surprised if you got your transplant within 2 months. Sure it made us feel good, gave us hope, but it didn't happen. The average wait time for our center was 4 months. That came and went. We were getting tired as the 6 month mark approached. Anna was ready to take a break from the list and go home. We had re-located, to wait, home is almost 1500 miles away.

One of the things we did and so looked forward to was attend the transplant support group meetings. A chance to speak to people that had already gone through it and others that were waiting was so wonderful. You can get so much hope and encouragement from them just like you get here. And honestly, you may even meet someone that makes you think... my wait hasn't been so bad. We met a young man who had relocated with his mom three years ago, he was waiting for a heart/lung. They were all they had, no one else. At one particular meeting Anna was really frustrated and feeling ready to just give up. This young man, having been waiting soooo much longer than Anna was amazing at renewing our hope. It seemed everyone was getting their transplant and here we were still, waiting. And even though you are happy for everyone getting their transplant you feel guilty for feeling the "why haven't I been called yet?" Ask if there is a support group that you can attend and go. It really helps, if only taking up a couple of hours of one day a month.

Everything else, we just mostly piddled around. Bookstores, movies, Target. We tried crafts but just couldn't concentrate for more than one small project. Anna was lucky enough to not be on oxygen during the day and was able to take riding lessons while she waited. Her doctors had told her to work on her leg strength. Riding english really builds up your leg strength and doesn't tire you out, except your leg muscles. But it really helped.

I believe Anna thought of this as a new beginning. All the things she was going to be able to do after she got her new lungs. When the transplant doctor told her that essentially her "clock" would be reset. She took that as "I get two birthdays!" He agreed. Again, going back to support group, one wise young lady (who happens to be a twin w/CF that now plays the BAGPIPES! and hikes) recommended to have a goal board of all the things you want to do and KEEP adding to it.

Lisa, don't give up. The call will come when you least expect it. We hated hearing that, but it's true. Just remember they are waiting for the perfect lungs for you, you don't want anything less. Try to keep your chin up.

 

[Liza]

Hi, Even though I am not the one that is post transplant, I went through the agonizing wait with my daughter just recently. I believe that it is the most difficult part but you have to have faith that HE will do what is right for you. I know that it is hard sometimes, most especially when it seems like it will never come.

I have to think the doctors must really think your wait should not be long if they tell you that. You have to use some common sense though, no one knows when your lungs will come. They can only tell you what they feel, compare it to how quick others of your size and blood type have waited. The first thing Anna's doctor said was I don't hand out the lungs BUT I wouldn't be surprised if you got your transplant within 2 months. Sure it made us feel good, gave us hope, but it didn't happen. The average wait time for our center was 4 months. That came and went. We were getting tired as the 6 month mark approached. Anna was ready to take a break from the list and go home. We had re-located, to wait, home is almost 1500 miles away.

One of the things we did and so looked forward to was attend the transplant support group meetings. A chance to speak to people that had already gone through it and others that were waiting was so wonderful. You can get so much hope and encouragement from them just like you get here. And honestly, you may even meet someone that makes you think... my wait hasn't been so bad. We met a young man who had relocated with his mom three years ago, he was waiting for a heart/lung. They were all they had, no one else. At one particular meeting Anna was really frustrated and feeling ready to just give up. This young man, having been waiting soooo much longer than Anna was amazing at renewing our hope. It seemed everyone was getting their transplant and here we were still, waiting. And even though you are happy for everyone getting their transplant you feel guilty for feeling the "why haven't I been called yet?" Ask if there is a support group that you can attend and go. It really helps, if only taking up a couple of hours of one day a month.

Everything else, we just mostly piddled around. Bookstores, movies, Target. We tried crafts but just couldn't concentrate for more than one small project. Anna was lucky enough to not be on oxygen during the day and was able to take riding lessons while she waited. Her doctors had told her to work on her leg strength. Riding english really builds up your leg strength and doesn't tire you out, except your leg muscles. But it really helped.

I believe Anna thought of this as a new beginning. All the things she was going to be able to do after she got her new lungs. When the transplant doctor told her that essentially her "clock" would be reset. She took that as "I get two birthdays!" He agreed. Again, going back to support group, one wise young lady (who happens to be a twin w/CF that now plays the BAGPIPES! and hikes) recommended to have a goal board of all the things you want to do and KEEP adding to it.

Lisa, don't give up. The call will come when you least expect it. We hated hearing that, but it's true. Just remember they are waiting for the perfect lungs for you, you don't want anything less. Try to keep your chin up.