Question for Women Only

anonymous

New member
I'm 25 with CF. I started menstruating when I was 12. My question is - are there any other CF women out there who have extremely painful periods? Mine are horrible. The only thing that gets me through each month is IB Profen and lots of it! My doctor says my reproductive organs are fine (ie - no endometriosis, cysts, or anything like that). So this makes me wonder if it has something to do with the CF. Any other women in extreme pain every month?
 

Emeraldmirror

New member
Every month is very different for me.. but yes my periods seem to be pretty painful.. i hate it.. like really hate it it sucks... you're not the only one out there who is like that

Ashley 21 w/cf
 
I too had severe lower back pain when I had my period. Once I got on my birth control I hardly have any problems at all. Its quite nice actually. When I went off birth control to get pregnant the pain started again adn when I started labor my pain was exactly where the pain is when I have my period.

Emilee
 

thelizardqueen

New member
Every month is different for me. If I'm late or early, I get really bad cramps. If I'm on time, then the only problems I ever have are bloating or swelling. I really don't think it has anything to do with CF.
 

kybert

New member
on the odd occasion mine are painful. i sometimes get this weird extreme pain like someone is trying to pull my guts out of my you know what.
 

HollyCatheryn

New member
<P>You can try Red Rasberry leaf (pills or teas) and/or Evening Primrose Oil. Both are great for soothing female aches. Check <A href="http://www.geocities.com/MurrensNatureMama/wellness">www.geocities.com/MurrensNatureMama/wellness</A> for some tips on using it. I don't have to take Ibuprofen on my periods anymore. Another things that has really helped my periods - believe it or not - is switching to cloth pads. GladRags and LunaPads are great. I actually got a couple of GladRags and then used them to make my own pattern. My periods are MUCH lighter and easier now that I don't use tampons or disposable pads. Most tampons include a chemical that actually causes you to bleed more (then you use more tampons, hmmm). Disposable pads encourage growth of yeast and other bacteria by trapping heat and moisture. I got my GladRags at Whole Foods. </P>
 

kybert

New member
<blockquote>Quote<br><hr>Most tampons include a chemical that actually causes you to bleed more (then you use more tampons, hmmm). Disposable pads encourage growth of yeast and other bacteria by trapping heat and moisture.<hr></blockquote>

this myth keeps getting debunked over and over again and it wouldnt suprise me if the reusable pad companies themselves keeping spreading this bull. good for you for having light periods but somehow someone with heavy periods dont want to spend hours scraping giant clots off of their reusable pads...
 

wuffles

New member
I get very, very bad pain. Endometriosis etc hasn't been ruled out yet but I don't have any other symptoms. Even ibuprofen and codeine don't do much except reduce my brain power by about 90% <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 

anonymous

New member
i am 29 , no c/f, and my periods are heavy, although not as as when i was 20, but nasty bloodclots, and about every other month or so i get excruating pain in my belly, and my lower back becomes sore, but when i take advil, it works wonders!!
 

miesl

New member
Say for <a target=new class=ftalternatingbarlinklarge href="http://snopes.com/toxins/tampon.htm">Snopes</a>.
 

julie

New member
I don't have CF but I too have horrible periods every few months, like they gradually get worse and then "explode". I don't have endometreosis, cysts.... either. I use Naproxen Sodium (by RX) and it works wonders if I utilize it at the first inkling that I might be starting to cramp (my period is also somewhat irregular, 35 -40 days instead of every 28. This year has been the worst, onc time on a saturday I was in bead with a heating pad, rollig around from the pain, moaning, and then, I had to throw up. I hadn't taken meds in a few hours, but hadn't caught it soon enough with the naproxen. I was throwing up from the pain, my stomach was in such torment. And then a few months ago-at work of all places, it started immediately with bad cramping. Tried the naproxen (hindsight telsl me I should have used it the night before when I thought I was starting to cramp but couldn't be sure). I had the urge to go to the bathroom (of course) and felt faint on the toilet, started cold sweating, shaking.... finished up and was walking back down the hall when I fainted-FAINTED. Luckly 3 guys were walking back and saw that I was leaning against/trying to grab the flat wall and they caught me. I spent the afternoon upstairs in the ER. The doctors were asking me, "are you normally this white". I was so ticked off by the question at the time, I was like, I don't know. And then when the next nurse, and next doctor, and next nurse.... came in and asked me the same question, I was like, "how about a mirrior or something so I can answer that question". They finally got an answer when Mark came into the ER, NO she is not normall this white, NO she has never fainted before and we've been together 6 years....

It was a period I will never forget (sorry for the life story)
 

HollyCatheryn

New member
Thanks Miesl for the Snopes link. Very thorough. Two of the things they don't address is how the use of any tampon overdries the vaginal walls and how the slight adherence to the walls and the subsequent removal effects the vagina. In case there was any misunderstanding, my periods were not always light. I used to SOAK tampons and pads in less than an hour - literally. Even as an adult, I would soak through a tampon and pad and make a mess of the bed at night. It only stopped when I quit using tampons and replaced disposable pads with reusable ones. I learned about cloth pads from several women who had switched. After I noticed the change, I inquired and found that having a lighter flow with cloth pads and/or Keepers is common.The Keeper is an internal-use product that can be used if your flow is still too heavy for only a pad. There are some other brands that make similar products. I've heard of one made out of soft silicone instead of the harder rubber - can't remember the name though.As for caring for the pads. It is very easy - no scraping. I put mine in a little bucket with a lid on it by the toilet until I'm ready to wash. Then I put them in the washing machine with an extra rinse cycle. Then I dry them in the dryer as usual. You can always try it and find out for yourself. I got started using cloth pads because I was cloth diapering my daughter and it just made sense.
 
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