Question!!

[Mommafirst]

I'm a few years ahead of you on this road. My daughter is three and a half. I work just two half days a week. My DH and I decided long before we had any kids that day care was not for us. We have always paid to have a sitter (nanny) in the house while I'm at work. I've been very lucky, in the three years since Alyssa's diagnosis I've only had 2 different sitters and both have been like a second mom to her. Both have learned everything they've needed to give meds and vest treatments, etc. Its worked out terrifically, with no sacrifice on my child's health for me to be working.

When your boys go to school, you will sit down with the school reps and create a 504 plan that will ensure they get whatever they need so that their disease doesn't limit them in school. Things like med distribution, extra bathroom time, tutors if they are hospitalized, a more lenient attendance policy provided they keep up with the required work, etc.

Try not to freak out about what will happen in 5 years. You will have all the tools you need to send them to school and make the best decisions for them. Just keep coming here. . . it is invaluable for all of us!!!!

 

[Mommafirst]

I'm a few years ahead of you on this road. My daughter is three and a half. I work just two half days a week. My DH and I decided long before we had any kids that day care was not for us. We have always paid to have a sitter (nanny) in the house while I'm at work. I've been very lucky, in the three years since Alyssa's diagnosis I've only had 2 different sitters and both have been like a second mom to her. Both have learned everything they've needed to give meds and vest treatments, etc. Its worked out terrifically, with no sacrifice on my child's health for me to be working.

When your boys go to school, you will sit down with the school reps and create a 504 plan that will ensure they get whatever they need so that their disease doesn't limit them in school. Things like med distribution, extra bathroom time, tutors if they are hospitalized, a more lenient attendance policy provided they keep up with the required work, etc.

Try not to freak out about what will happen in 5 years. You will have all the tools you need to send them to school and make the best decisions for them. Just keep coming here. . . it is invaluable for all of us!!!!

 

[Mommafirst]

I'm a few years ahead of you on this road. My daughter is three and a half. I work just two half days a week. My DH and I decided long before we had any kids that day care was not for us. We have always paid to have a sitter (nanny) in the house while I'm at work. I've been very lucky, in the three years since Alyssa's diagnosis I've only had 2 different sitters and both have been like a second mom to her. Both have learned everything they've needed to give meds and vest treatments, etc. Its worked out terrifically, with no sacrifice on my child's health for me to be working.

When your boys go to school, you will sit down with the school reps and create a 504 plan that will ensure they get whatever they need so that their disease doesn't limit them in school. Things like med distribution, extra bathroom time, tutors if they are hospitalized, a more lenient attendance policy provided they keep up with the required work, etc.

Try not to freak out about what will happen in 5 years. You will have all the tools you need to send them to school and make the best decisions for them. Just keep coming here. . . it is invaluable for all of us!!!!

 

[Mommafirst]

I'm a few years ahead of you on this road. My daughter is three and a half. I work just two half days a week. My DH and I decided long before we had any kids that day care was not for us. We have always paid to have a sitter (nanny) in the house while I'm at work. I've been very lucky, in the three years since Alyssa's diagnosis I've only had 2 different sitters and both have been like a second mom to her. Both have learned everything they've needed to give meds and vest treatments, etc. Its worked out terrifically, with no sacrifice on my child's health for me to be working.

When your boys go to school, you will sit down with the school reps and create a 504 plan that will ensure they get whatever they need so that their disease doesn't limit them in school. Things like med distribution, extra bathroom time, tutors if they are hospitalized, a more lenient attendance policy provided they keep up with the required work, etc.

Try not to freak out about what will happen in 5 years. You will have all the tools you need to send them to school and make the best decisions for them. Just keep coming here. . . it is invaluable for all of us!!!!

 

[Mommafirst]

I'm a few years ahead of you on this road. My daughter is three and a half. I work just two half days a week. My DH and I decided long before we had any kids that day care was not for us. We have always paid to have a sitter (nanny) in the house while I'm at work. I've been very lucky, in the three years since Alyssa's diagnosis I've only had 2 different sitters and both have been like a second mom to her. Both have learned everything they've needed to give meds and vest treatments, etc. Its worked out terrifically, with no sacrifice on my child's health for me to be working.
<br />
<br />When your boys go to school, you will sit down with the school reps and create a 504 plan that will ensure they get whatever they need so that their disease doesn't limit them in school. Things like med distribution, extra bathroom time, tutors if they are hospitalized, a more lenient attendance policy provided they keep up with the required work, etc.
<br />
<br />Try not to freak out about what will happen in 5 years. You will have all the tools you need to send them to school and make the best decisions for them. Just keep coming here. . . it is invaluable for all of us!!!!

 

[Hughett]

<UL>Some really good advice already here. I can't help in some of the areas as my wife stays home with our 3 year old son. We didn't want to expose him to day care with so many kids with who knows what cold or cough. I love the idea that Heather gave for that.</UL>

<UL>School is quite a ways away for you yet. I haven't had to cross that bridge yet but I feel so much more confident now compared to when our kids were that young. The CFF.ORG has some good reading material in regards to school and some ideas for parents and teachers. It's worth reading. If you time vest treatments and nebs right than there might be a very minimal disruptution to the school schedule for your kids. The youngsters will have some enzymes to take and some extra Kleenex's in the desk for coughing ect... but it's not anything out of the ordinary or super noticeable. Like Heather said most schools will be very happy to work with you and some may even have had experience with CF before. </UL>

<UL>My wife and I took the advice from a favorite movie of ours called "What About Bob?" lol. <i>Baby Steps</i>. Its ok to have a plan for years ahead but thinking of what you have to deal with next is good and it will give you confidence and experience to deal with the next thing that comes up.</UL>

<UL>I hope this helps even its just a little. I am glad you came to post here. This site is the best thing ever! </UL>

 

[Hughett]

<UL>Some really good advice already here. I can't help in some of the areas as my wife stays home with our 3 year old son. We didn't want to expose him to day care with so many kids with who knows what cold or cough. I love the idea that Heather gave for that.</UL>

<UL>School is quite a ways away for you yet. I haven't had to cross that bridge yet but I feel so much more confident now compared to when our kids were that young. The CFF.ORG has some good reading material in regards to school and some ideas for parents and teachers. It's worth reading. If you time vest treatments and nebs right than there might be a very minimal disruptution to the school schedule for your kids. The youngsters will have some enzymes to take and some extra Kleenex's in the desk for coughing ect... but it's not anything out of the ordinary or super noticeable. Like Heather said most schools will be very happy to work with you and some may even have had experience with CF before. </UL>

<UL>My wife and I took the advice from a favorite movie of ours called "What About Bob?" lol. <i>Baby Steps</i>. Its ok to have a plan for years ahead but thinking of what you have to deal with next is good and it will give you confidence and experience to deal with the next thing that comes up.</UL>

<UL>I hope this helps even its just a little. I am glad you came to post here. This site is the best thing ever! </UL>

 

[Hughett]

<UL>Some really good advice already here. I can't help in some of the areas as my wife stays home with our 3 year old son. We didn't want to expose him to day care with so many kids with who knows what cold or cough. I love the idea that Heather gave for that.</UL>

<UL>School is quite a ways away for you yet. I haven't had to cross that bridge yet but I feel so much more confident now compared to when our kids were that young. The CFF.ORG has some good reading material in regards to school and some ideas for parents and teachers. It's worth reading. If you time vest treatments and nebs right than there might be a very minimal disruptution to the school schedule for your kids. The youngsters will have some enzymes to take and some extra Kleenex's in the desk for coughing ect... but it's not anything out of the ordinary or super noticeable. Like Heather said most schools will be very happy to work with you and some may even have had experience with CF before. </UL>

<UL>My wife and I took the advice from a favorite movie of ours called "What About Bob?" lol. <i>Baby Steps</i>. Its ok to have a plan for years ahead but thinking of what you have to deal with next is good and it will give you confidence and experience to deal with the next thing that comes up.</UL>

<UL>I hope this helps even its just a little. I am glad you came to post here. This site is the best thing ever! </UL>

 

[Hughett]

<UL>Some really good advice already here. I can't help in some of the areas as my wife stays home with our 3 year old son. We didn't want to expose him to day care with so many kids with who knows what cold or cough. I love the idea that Heather gave for that.</UL>

<UL>School is quite a ways away for you yet. I haven't had to cross that bridge yet but I feel so much more confident now compared to when our kids were that young. The CFF.ORG has some good reading material in regards to school and some ideas for parents and teachers. It's worth reading. If you time vest treatments and nebs right than there might be a very minimal disruptution to the school schedule for your kids. The youngsters will have some enzymes to take and some extra Kleenex's in the desk for coughing ect... but it's not anything out of the ordinary or super noticeable. Like Heather said most schools will be very happy to work with you and some may even have had experience with CF before. </UL>

<UL>My wife and I took the advice from a favorite movie of ours called "What About Bob?" lol. <i>Baby Steps</i>. Its ok to have a plan for years ahead but thinking of what you have to deal with next is good and it will give you confidence and experience to deal with the next thing that comes up.</UL>

<UL>I hope this helps even its just a little. I am glad you came to post here. This site is the best thing ever! </UL>

 

[Hughett]

<UL>Some really good advice already here. I can't help in some of the areas as my wife stays home with our 3 year old son. We didn't want to expose him to day care with so many kids with who knows what cold or cough. I love the idea that Heather gave for that.</UL>

<UL>School is quite a ways away for you yet. I haven't had to cross that bridge yet but I feel so much more confident now compared to when our kids were that young. The CFF.ORG has some good reading material in regards to school and some ideas for parents and teachers. It's worth reading. If you time vest treatments and nebs right than there might be a very minimal disruptution to the school schedule for your kids. The youngsters will have some enzymes to take and some extra Kleenex's in the desk for coughing ect... but it's not anything out of the ordinary or super noticeable. Like Heather said most schools will be very happy to work with you and some may even have had experience with CF before. </UL>

<UL>My wife and I took the advice from a favorite movie of ours called "What About Bob?" lol. <i>Baby Steps</i>. Its ok to have a plan for years ahead but thinking of what you have to deal with next is good and it will give you confidence and experience to deal with the next thing that comes up.</UL>

<UL>I hope this helps even its just a little. I am glad you came to post here. This site is the best thing ever! </UL>

 

[jbrandonAW]

Relax! Take one step at a time.

I was never made fun of in school for my meds. I went to the nurses office to take pills. As I got older people just asked and I told them. I have always been conifdent about my disease and figured the more people asked the more people would know about it. I figure if you are going to make fun of me b/c of my disease then you aren't worth my time anyways ya know

 

[jbrandonAW]

Relax! Take one step at a time.

I was never made fun of in school for my meds. I went to the nurses office to take pills. As I got older people just asked and I told them. I have always been conifdent about my disease and figured the more people asked the more people would know about it. I figure if you are going to make fun of me b/c of my disease then you aren't worth my time anyways ya know

 

[jbrandonAW]

Relax! Take one step at a time.

I was never made fun of in school for my meds. I went to the nurses office to take pills. As I got older people just asked and I told them. I have always been conifdent about my disease and figured the more people asked the more people would know about it. I figure if you are going to make fun of me b/c of my disease then you aren't worth my time anyways ya know

 

[jbrandonAW]

Relax! Take one step at a time.

I was never made fun of in school for my meds. I went to the nurses office to take pills. As I got older people just asked and I told them. I have always been conifdent about my disease and figured the more people asked the more people would know about it. I figure if you are going to make fun of me b/c of my disease then you aren't worth my time anyways ya know

 

[jbrandonAW]

Relax! Take one step at a time.
<br />
<br />I was never made fun of in school for my meds. I went to the nurses office to take pills. As I got older people just asked and I told them. I have always been conifdent about my disease and figured the more people asked the more people would know about it. I figure if you are going to make fun of me b/c of my disease then you aren't worth my time anyways ya know