questions about ports

westonsmom

New member
My son is a very hard stick for IV's and is the hospital on average every other month. If anyone read my blog today we have already had 5 sticks this admission and one involved a nurse passing out and the hospital having to call a code blue for her!!!
So someone posted that their child had a port put in. What is the procedure for this? What is the maintence? How permanent is it? Is it painful? Any info. you have would be very helpful. Thanks.
 

westonsmom

New member
My son is a very hard stick for IV's and is the hospital on average every other month. If anyone read my blog today we have already had 5 sticks this admission and one involved a nurse passing out and the hospital having to call a code blue for her!!!
So someone posted that their child had a port put in. What is the procedure for this? What is the maintence? How permanent is it? Is it painful? Any info. you have would be very helpful. Thanks.
 

westonsmom

New member
My son is a very hard stick for IV's and is the hospital on average every other month. If anyone read my blog today we have already had 5 sticks this admission and one involved a nurse passing out and the hospital having to call a code blue for her!!!
So someone posted that their child had a port put in. What is the procedure for this? What is the maintence? How permanent is it? Is it painful? Any info. you have would be very helpful. Thanks.
 

fourkidsmom

New member
Jenn,

I would recommend the port, our soon to be 6 yr old got his first at 2 months old. He had been in the hospital since birth and had lots of PICC lines and even a central line that was surgically put in go bad after 1 day. That is when we decided on the port, he had to get a new one placed April of 2005, but we never thought of NOT replacing it, they are so nice.

We flush it monthly at home ourselves. It is great for cleanouts, and blood draws, also for surgery we access it before going and they use it instead of the gas and having to stick his arm. (he has a real phobia of the gas mask for some reason).

As far as pain, he never needed pain medicine and got to go home the same day with the second one, with the first one he had to continue to stay in the hospital for other reasons.

He has only had to have his arm stuck since the port a few times, the arm is much more tramadic than accessing his port.

I would definately think about it if I were you especially how often he needs to be poked. Good luck with everything!

Fourkidsmom
 

fourkidsmom

New member
Jenn,

I would recommend the port, our soon to be 6 yr old got his first at 2 months old. He had been in the hospital since birth and had lots of PICC lines and even a central line that was surgically put in go bad after 1 day. That is when we decided on the port, he had to get a new one placed April of 2005, but we never thought of NOT replacing it, they are so nice.

We flush it monthly at home ourselves. It is great for cleanouts, and blood draws, also for surgery we access it before going and they use it instead of the gas and having to stick his arm. (he has a real phobia of the gas mask for some reason).

As far as pain, he never needed pain medicine and got to go home the same day with the second one, with the first one he had to continue to stay in the hospital for other reasons.

He has only had to have his arm stuck since the port a few times, the arm is much more tramadic than accessing his port.

I would definately think about it if I were you especially how often he needs to be poked. Good luck with everything!

Fourkidsmom
 

fourkidsmom

New member
Jenn,

I would recommend the port, our soon to be 6 yr old got his first at 2 months old. He had been in the hospital since birth and had lots of PICC lines and even a central line that was surgically put in go bad after 1 day. That is when we decided on the port, he had to get a new one placed April of 2005, but we never thought of NOT replacing it, they are so nice.

We flush it monthly at home ourselves. It is great for cleanouts, and blood draws, also for surgery we access it before going and they use it instead of the gas and having to stick his arm. (he has a real phobia of the gas mask for some reason).

As far as pain, he never needed pain medicine and got to go home the same day with the second one, with the first one he had to continue to stay in the hospital for other reasons.

He has only had to have his arm stuck since the port a few times, the arm is much more tramadic than accessing his port.

I would definately think about it if I were you especially how often he needs to be poked. Good luck with everything!

Fourkidsmom
 

blindhearted

New member
I did not have a port as a child, they were not around then. I got my first port at 15. I highly recommend getting a port. I have enjoyed both of mine. My first one lasted 7 yrs and I didnt hesitate to get it replaced (in 2005) with the one I have now.

What is the procedure for this?
he will have to have surgery to have it put in. Not major surgery, but still surgery. Usually you go home the say day, unless you have it put in during one of his hopsital stay. It can be used right after surgery.

What is the maintence?
It will have to be flushed every month, most parents are taught this so they can do it in the comfort of home. I got my port to cut down on blood draws also, however, after getting it placed they told me they do not recommend me drawing blood due to it altering blood levels and shorting the life of the port. So, I do not draw blood out of my port. When accessed, the needle has to be changed once a week as well as the dressing. You can change it all at once.

How permanent is it?
I guess you can say it is Semi-Permanent. It is placed under the skin. Looks like a bubble. It can be removed but only by surgery and usually only when there is a problem with it.

Is it painful?
Tender after surgery, but once that has pass - no. It does take a little getting use to since you now have something that wasnt there before...but that usually doesnt take long. Getting stuck with the needle to access it can be painful for some ppl, other's say it doesnt hurt or after a while you get numb to it. For me, I dont chance it and I use Emla cream before getting accessed. I put the cream on, with tegaderm to hold it in place, for about an hour before access. That way I know I wont feel anything.

Unlike the post from fourkidsmom, whenever I go to surgery, they will not use it. They have to have vein access. I have had a number of surgeries over the past 10 yrs and it has never been used for surgery. I always ask, even at different hospitals, and they always say no. That always annoys me. I guess cause I am older, they figure I should understand. Also my port is not in a common place. Mine is located on my lower chest on the left side. That may play a factor. If he goes for surgery, always ask but dont be surprised if they say no.

Personally, the Pros of a port out weigh the Cons. Talk to your son's doctor what he thinks about a port. If they say yes. Ask the surgeon putting in the port what you can and cannot do with the port. I have notice each hospital has their own set of protocols and rules when ports are involved.
 

blindhearted

New member
I did not have a port as a child, they were not around then. I got my first port at 15. I highly recommend getting a port. I have enjoyed both of mine. My first one lasted 7 yrs and I didnt hesitate to get it replaced (in 2005) with the one I have now.

What is the procedure for this?
he will have to have surgery to have it put in. Not major surgery, but still surgery. Usually you go home the say day, unless you have it put in during one of his hopsital stay. It can be used right after surgery.

What is the maintence?
It will have to be flushed every month, most parents are taught this so they can do it in the comfort of home. I got my port to cut down on blood draws also, however, after getting it placed they told me they do not recommend me drawing blood due to it altering blood levels and shorting the life of the port. So, I do not draw blood out of my port. When accessed, the needle has to be changed once a week as well as the dressing. You can change it all at once.

How permanent is it?
I guess you can say it is Semi-Permanent. It is placed under the skin. Looks like a bubble. It can be removed but only by surgery and usually only when there is a problem with it.

Is it painful?
Tender after surgery, but once that has pass - no. It does take a little getting use to since you now have something that wasnt there before...but that usually doesnt take long. Getting stuck with the needle to access it can be painful for some ppl, other's say it doesnt hurt or after a while you get numb to it. For me, I dont chance it and I use Emla cream before getting accessed. I put the cream on, with tegaderm to hold it in place, for about an hour before access. That way I know I wont feel anything.

Unlike the post from fourkidsmom, whenever I go to surgery, they will not use it. They have to have vein access. I have had a number of surgeries over the past 10 yrs and it has never been used for surgery. I always ask, even at different hospitals, and they always say no. That always annoys me. I guess cause I am older, they figure I should understand. Also my port is not in a common place. Mine is located on my lower chest on the left side. That may play a factor. If he goes for surgery, always ask but dont be surprised if they say no.

Personally, the Pros of a port out weigh the Cons. Talk to your son's doctor what he thinks about a port. If they say yes. Ask the surgeon putting in the port what you can and cannot do with the port. I have notice each hospital has their own set of protocols and rules when ports are involved.
 

blindhearted

New member
I did not have a port as a child, they were not around then. I got my first port at 15. I highly recommend getting a port. I have enjoyed both of mine. My first one lasted 7 yrs and I didnt hesitate to get it replaced (in 2005) with the one I have now.

What is the procedure for this?
he will have to have surgery to have it put in. Not major surgery, but still surgery. Usually you go home the say day, unless you have it put in during one of his hopsital stay. It can be used right after surgery.

What is the maintence?
It will have to be flushed every month, most parents are taught this so they can do it in the comfort of home. I got my port to cut down on blood draws also, however, after getting it placed they told me they do not recommend me drawing blood due to it altering blood levels and shorting the life of the port. So, I do not draw blood out of my port. When accessed, the needle has to be changed once a week as well as the dressing. You can change it all at once.

How permanent is it?
I guess you can say it is Semi-Permanent. It is placed under the skin. Looks like a bubble. It can be removed but only by surgery and usually only when there is a problem with it.

Is it painful?
Tender after surgery, but once that has pass - no. It does take a little getting use to since you now have something that wasnt there before...but that usually doesnt take long. Getting stuck with the needle to access it can be painful for some ppl, other's say it doesnt hurt or after a while you get numb to it. For me, I dont chance it and I use Emla cream before getting accessed. I put the cream on, with tegaderm to hold it in place, for about an hour before access. That way I know I wont feel anything.

Unlike the post from fourkidsmom, whenever I go to surgery, they will not use it. They have to have vein access. I have had a number of surgeries over the past 10 yrs and it has never been used for surgery. I always ask, even at different hospitals, and they always say no. That always annoys me. I guess cause I am older, they figure I should understand. Also my port is not in a common place. Mine is located on my lower chest on the left side. That may play a factor. If he goes for surgery, always ask but dont be surprised if they say no.

Personally, the Pros of a port out weigh the Cons. Talk to your son's doctor what he thinks about a port. If they say yes. Ask the surgeon putting in the port what you can and cannot do with the port. I have notice each hospital has their own set of protocols and rules when ports are involved.
 

Emily65Roses

New member
I copied this from an older thread:

They are semi-permanent. They last for years, if taken care of correctly and you have enough luck for it not to get infected. Mine was placed 5 years ago, and is still doing fine. I've heard of them lasting as long as like 10 years. I'm sure there have been some that have lasted even longer. There's no real limit on time, though. As long as they stay clean and not infected... and as long as you can still push meds with no trouble, and no leaking, the port can stay.

PICC lines are generally placed in the elbow, and then they fish the line up your arm, around your shoulder, and into your heart. They are meant to last weeks or months, from my understanding. They never worked on me, and never lasted. But some people swear by them. I was always wide awake for the placement, but they would put numbing cream (Emla) on it beforehand, and so I didn't feel most of the pain. PICC stands for Peripherally Inserted Central Catheter.

<i>If you have any specific questions, I'll try to come back and answer them. I love my port, so I'm generally fairly helpful answering questions about it. I'm just too busy to write too much this instant. I'll visit again tomorrow and take another look at it. Haha. <img src="i/expressions/face-icon-small-smile.gif" border="0"></i>
 

Emily65Roses

New member
I copied this from an older thread:

They are semi-permanent. They last for years, if taken care of correctly and you have enough luck for it not to get infected. Mine was placed 5 years ago, and is still doing fine. I've heard of them lasting as long as like 10 years. I'm sure there have been some that have lasted even longer. There's no real limit on time, though. As long as they stay clean and not infected... and as long as you can still push meds with no trouble, and no leaking, the port can stay.

PICC lines are generally placed in the elbow, and then they fish the line up your arm, around your shoulder, and into your heart. They are meant to last weeks or months, from my understanding. They never worked on me, and never lasted. But some people swear by them. I was always wide awake for the placement, but they would put numbing cream (Emla) on it beforehand, and so I didn't feel most of the pain. PICC stands for Peripherally Inserted Central Catheter.

<i>If you have any specific questions, I'll try to come back and answer them. I love my port, so I'm generally fairly helpful answering questions about it. I'm just too busy to write too much this instant. I'll visit again tomorrow and take another look at it. Haha. <img src="i/expressions/face-icon-small-smile.gif" border="0"></i>
 

Emily65Roses

New member
I copied this from an older thread:

They are semi-permanent. They last for years, if taken care of correctly and you have enough luck for it not to get infected. Mine was placed 5 years ago, and is still doing fine. I've heard of them lasting as long as like 10 years. I'm sure there have been some that have lasted even longer. There's no real limit on time, though. As long as they stay clean and not infected... and as long as you can still push meds with no trouble, and no leaking, the port can stay.

PICC lines are generally placed in the elbow, and then they fish the line up your arm, around your shoulder, and into your heart. They are meant to last weeks or months, from my understanding. They never worked on me, and never lasted. But some people swear by them. I was always wide awake for the placement, but they would put numbing cream (Emla) on it beforehand, and so I didn't feel most of the pain. PICC stands for Peripherally Inserted Central Catheter.

<i>If you have any specific questions, I'll try to come back and answer them. I love my port, so I'm generally fairly helpful answering questions about it. I'm just too busy to write too much this instant. I'll visit again tomorrow and take another look at it. Haha. <img src="i/expressions/face-icon-small-smile.gif" border="0"></i>
 

AnD

New member
Mind if I hijack this slightly and ask- can you swim with a port? And does anyone know of a link that shows one (not asking for a pic of yours, don't worry <img src="i/expressions/face-icon-small-wink.gif" border="0">- like, a medical link...). Are there any activity restrictions with a port?
 

AnD

New member
Mind if I hijack this slightly and ask- can you swim with a port? And does anyone know of a link that shows one (not asking for a pic of yours, don't worry <img src="i/expressions/face-icon-small-wink.gif" border="0">- like, a medical link...). Are there any activity restrictions with a port?
 
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