Questions about summer...

KCarroll

New member
Hello! I have 1 year old twins and my daughter, Kadyn, has CF (she is on 28 day cycles of TOBI for PA). I have so many questions now that she is crawling, walking, chasing her brother, going outside, and summer is coming....I felt pretty good during the winter when it was okay to stay inside. I worried about the health of visitors and the cleanliness of the floors and the house. It seems like all the sudden there is so much more to worry about. I want my daughter to live life to the fullest and experience (almost) everything my son is able to, but I know there are some things I need to watch out for. I am wondering what are some tip - do's and don'ts for children with CF when they enter and begin exploring the big outdoor world. Any help is greatly appreciated!
 

KCarroll

New member
Hello! I have 1 year old twins and my daughter, Kadyn, has CF (she is on 28 day cycles of TOBI for PA). I have so many questions now that she is crawling, walking, chasing her brother, going outside, and summer is coming....I felt pretty good during the winter when it was okay to stay inside. I worried about the health of visitors and the cleanliness of the floors and the house. It seems like all the sudden there is so much more to worry about. I want my daughter to live life to the fullest and experience (almost) everything my son is able to, but I know there are some things I need to watch out for. I am wondering what are some tip - do's and don'ts for children with CF when they enter and begin exploring the big outdoor world. Any help is greatly appreciated!
 

KCarroll

New member
Hello! I have 1 year old twins and my daughter, Kadyn, has CF (she is on 28 day cycles of TOBI for PA). I have so many questions now that she is crawling, walking, chasing her brother, going outside, and summer is coming....I felt pretty good during the winter when it was okay to stay inside. I worried about the health of visitors and the cleanliness of the floors and the house. It seems like all the sudden there is so much more to worry about. I want my daughter to live life to the fullest and experience (almost) everything my son is able to, but I know there are some things I need to watch out for. I am wondering what are some tip - do's and don'ts for children with CF when they enter and begin exploring the big outdoor world. Any help is greatly appreciated!
 

Ratatosk

Administrator
Staff member
Wash hands, use hand sanitizer after playing outside or at the park.

Make sure she gets enough water and SALT if she's going to be outside. DS sweats out a lot of salt so he usually takes hits off a salt shaker at daycare, but when he was smaller, they made sure to have pretzel sticks or saltine crackers along.

Sunscreen -- ds is on a couple drugs that could make him photosensitive. He's never gotten burned and he loves being outdoors quite a bit year round.

We've always avoided hot tubs -- higher temps tend to grow more bugs, plus the steam tends to be right at face height. Kids aren't supposed to use hot tubs anyway...

DS takes swimming lessons, spends time at the lakes, is in gymnastics and other sporting events. The only time we've avoided a swimming pool is a local hotel with a waterslide that the health department has cited numerous times. Most local families with healthy kids avoid THAT cesspool. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gross story -- DS told me a few years ago that he found gum on the playground on a swing. Not sure how one handles already been chewed gum HOURS after it happens. Bleah! No harm, no foul. Just really grossed out about it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
Wash hands, use hand sanitizer after playing outside or at the park.

Make sure she gets enough water and SALT if she's going to be outside. DS sweats out a lot of salt so he usually takes hits off a salt shaker at daycare, but when he was smaller, they made sure to have pretzel sticks or saltine crackers along.

Sunscreen -- ds is on a couple drugs that could make him photosensitive. He's never gotten burned and he loves being outdoors quite a bit year round.

We've always avoided hot tubs -- higher temps tend to grow more bugs, plus the steam tends to be right at face height. Kids aren't supposed to use hot tubs anyway...

DS takes swimming lessons, spends time at the lakes, is in gymnastics and other sporting events. The only time we've avoided a swimming pool is a local hotel with a waterslide that the health department has cited numerous times. Most local families with healthy kids avoid THAT cesspool. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gross story -- DS told me a few years ago that he found gum on the playground on a swing. Not sure how one handles already been chewed gum HOURS after it happens. Bleah! No harm, no foul. Just really grossed out about it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
Wash hands, use hand sanitizer after playing outside or at the park.
<br />
<br />Make sure she gets enough water and SALT if she's going to be outside. DS sweats out a lot of salt so he usually takes hits off a salt shaker at daycare, but when he was smaller, they made sure to have pretzel sticks or saltine crackers along.
<br />
<br />Sunscreen -- ds is on a couple drugs that could make him photosensitive. He's never gotten burned and he loves being outdoors quite a bit year round.
<br />
<br />We've always avoided hot tubs -- higher temps tend to grow more bugs, plus the steam tends to be right at face height. Kids aren't supposed to use hot tubs anyway...
<br />
<br />DS takes swimming lessons, spends time at the lakes, is in gymnastics and other sporting events. The only time we've avoided a swimming pool is a local hotel with a waterslide that the health department has cited numerous times. Most local families with healthy kids avoid THAT cesspool. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Gross story -- DS told me a few years ago that he found gum on the playground on a swing. Not sure how one handles already been chewed gum HOURS after it happens. Bleah! No harm, no foul. Just really grossed out about it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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