Questions 'bout CFRD

D

DaMan

Guest
Just have a few questions for anyone with CFRD
1) How does it effect your life?
2) what do you talk or do for it?
3) This is a stupid question I know but is there any known
cures?
4) How do you know you haver it/ what conditions do you get?

Any answers would be greatly appreciated thanks <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
D

DaMan

Guest
Just have a few questions for anyone with CFRD
1) How does it effect your life?
2) what do you talk or do for it?
3) This is a stupid question I know but is there any known
cures?
4) How do you know you haver it/ what conditions do you get?

Any answers would be greatly appreciated thanks <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
D

DaMan

Guest
Just have a few questions for anyone with CFRD
1) How does it effect your life?
2) what do you talk or do for it?
3) This is a stupid question I know but is there any known
cures?
4) How do you know you haver it/ what conditions do you get?

Any answers would be greatly appreciated thanks <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
D

DaMan

Guest
Just have a few questions for anyone with CFRD
1) How does it effect your life?
2) what do you talk or do for it?
3) This is a stupid question I know but is there any known
cures?
4) How do you know you haver it/ what conditions do you get?

Any answers would be greatly appreciated thanks <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
D

DaMan

Guest
Just have a few questions for anyone with CFRD
<br />1) How does it effect your life?
<br />2) what do you talk or do for it?
<br />3) This is a stupid question I know but is there any known
<br />cures?
<br />4) How do you know you haver it/ what conditions do you get?
<br />
<br />Any answers would be greatly appreciated thanks <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
U

upfrom31

New member
When I first found out I had CFRD i was in the hospital because I had gotten another lung infection. At a previous visit they had tested my A1c level, and it was abnormaly high. So they thought it was either CFRD or i was experiencing high blood sugars because of my health at the time. Throughout the next year they kept checking my A1c, and eventually check my blood sugars pre and post meal to see if i had CFRD. It really made me angry that i had another disease to deal with, so i kinda didnt take care of it for a while, and i eventually ended up in the hospital again. They taught me all the ins and outs of CFRD, and I wasnt so scared of it any more. If not taken care of, CFRD will most likely land you back in the hospital every time because bacteria multiply better when there is a high glucose level.

For me I take both Humolog and Lantus, The Humalog to take care of meals, and the Lantus every night. (It is a long term insulin to make things easier throughout the day) Both of my insulins are in a disposable pen, so i just carry them in my pocket along with some needles made for the pens. Once I am done with both of them I can just toss them. They dont really effect me as much as I had imagined, I just have to cound how many carbs I take in, and calculate the ammount of insuline I need to take. Its really not that hard to do either of these.

There is no cure for CFRD so far. I would think if your doctor sees a trend of exaserbations, he will have a A1c blood test done, to calculate your glucose average level over the last few months. If it is high your doctor will probably ask you to monitor your blood sugar levels for a while in order to determine whether or not you have CFRD. I have heard of people with a mild case of it just taking pills to control the symptoms, but i dont know all that much about it?

Hopefuly I was helpful!
 
U

upfrom31

New member
When I first found out I had CFRD i was in the hospital because I had gotten another lung infection. At a previous visit they had tested my A1c level, and it was abnormaly high. So they thought it was either CFRD or i was experiencing high blood sugars because of my health at the time. Throughout the next year they kept checking my A1c, and eventually check my blood sugars pre and post meal to see if i had CFRD. It really made me angry that i had another disease to deal with, so i kinda didnt take care of it for a while, and i eventually ended up in the hospital again. They taught me all the ins and outs of CFRD, and I wasnt so scared of it any more. If not taken care of, CFRD will most likely land you back in the hospital every time because bacteria multiply better when there is a high glucose level.

For me I take both Humolog and Lantus, The Humalog to take care of meals, and the Lantus every night. (It is a long term insulin to make things easier throughout the day) Both of my insulins are in a disposable pen, so i just carry them in my pocket along with some needles made for the pens. Once I am done with both of them I can just toss them. They dont really effect me as much as I had imagined, I just have to cound how many carbs I take in, and calculate the ammount of insuline I need to take. Its really not that hard to do either of these.

There is no cure for CFRD so far. I would think if your doctor sees a trend of exaserbations, he will have a A1c blood test done, to calculate your glucose average level over the last few months. If it is high your doctor will probably ask you to monitor your blood sugar levels for a while in order to determine whether or not you have CFRD. I have heard of people with a mild case of it just taking pills to control the symptoms, but i dont know all that much about it?

Hopefuly I was helpful!
 
U

upfrom31

New member
When I first found out I had CFRD i was in the hospital because I had gotten another lung infection. At a previous visit they had tested my A1c level, and it was abnormaly high. So they thought it was either CFRD or i was experiencing high blood sugars because of my health at the time. Throughout the next year they kept checking my A1c, and eventually check my blood sugars pre and post meal to see if i had CFRD. It really made me angry that i had another disease to deal with, so i kinda didnt take care of it for a while, and i eventually ended up in the hospital again. They taught me all the ins and outs of CFRD, and I wasnt so scared of it any more. If not taken care of, CFRD will most likely land you back in the hospital every time because bacteria multiply better when there is a high glucose level.

For me I take both Humolog and Lantus, The Humalog to take care of meals, and the Lantus every night. (It is a long term insulin to make things easier throughout the day) Both of my insulins are in a disposable pen, so i just carry them in my pocket along with some needles made for the pens. Once I am done with both of them I can just toss them. They dont really effect me as much as I had imagined, I just have to cound how many carbs I take in, and calculate the ammount of insuline I need to take. Its really not that hard to do either of these.

There is no cure for CFRD so far. I would think if your doctor sees a trend of exaserbations, he will have a A1c blood test done, to calculate your glucose average level over the last few months. If it is high your doctor will probably ask you to monitor your blood sugar levels for a while in order to determine whether or not you have CFRD. I have heard of people with a mild case of it just taking pills to control the symptoms, but i dont know all that much about it?

Hopefuly I was helpful!
 
U

upfrom31

New member
When I first found out I had CFRD i was in the hospital because I had gotten another lung infection. At a previous visit they had tested my A1c level, and it was abnormaly high. So they thought it was either CFRD or i was experiencing high blood sugars because of my health at the time. Throughout the next year they kept checking my A1c, and eventually check my blood sugars pre and post meal to see if i had CFRD. It really made me angry that i had another disease to deal with, so i kinda didnt take care of it for a while, and i eventually ended up in the hospital again. They taught me all the ins and outs of CFRD, and I wasnt so scared of it any more. If not taken care of, CFRD will most likely land you back in the hospital every time because bacteria multiply better when there is a high glucose level.

For me I take both Humolog and Lantus, The Humalog to take care of meals, and the Lantus every night. (It is a long term insulin to make things easier throughout the day) Both of my insulins are in a disposable pen, so i just carry them in my pocket along with some needles made for the pens. Once I am done with both of them I can just toss them. They dont really effect me as much as I had imagined, I just have to cound how many carbs I take in, and calculate the ammount of insuline I need to take. Its really not that hard to do either of these.

There is no cure for CFRD so far. I would think if your doctor sees a trend of exaserbations, he will have a A1c blood test done, to calculate your glucose average level over the last few months. If it is high your doctor will probably ask you to monitor your blood sugar levels for a while in order to determine whether or not you have CFRD. I have heard of people with a mild case of it just taking pills to control the symptoms, but i dont know all that much about it?

Hopefuly I was helpful!
 
U

upfrom31

New member
When I first found out I had CFRD i was in the hospital because I had gotten another lung infection. At a previous visit they had tested my A1c level, and it was abnormaly high. So they thought it was either CFRD or i was experiencing high blood sugars because of my health at the time. Throughout the next year they kept checking my A1c, and eventually check my blood sugars pre and post meal to see if i had CFRD. It really made me angry that i had another disease to deal with, so i kinda didnt take care of it for a while, and i eventually ended up in the hospital again. They taught me all the ins and outs of CFRD, and I wasnt so scared of it any more. If not taken care of, CFRD will most likely land you back in the hospital every time because bacteria multiply better when there is a high glucose level.
<br />
<br />For me I take both Humolog and Lantus, The Humalog to take care of meals, and the Lantus every night. (It is a long term insulin to make things easier throughout the day) Both of my insulins are in a disposable pen, so i just carry them in my pocket along with some needles made for the pens. Once I am done with both of them I can just toss them. They dont really effect me as much as I had imagined, I just have to cound how many carbs I take in, and calculate the ammount of insuline I need to take. Its really not that hard to do either of these.
<br />
<br />There is no cure for CFRD so far. I would think if your doctor sees a trend of exaserbations, he will have a A1c blood test done, to calculate your glucose average level over the last few months. If it is high your doctor will probably ask you to monitor your blood sugar levels for a while in order to determine whether or not you have CFRD. I have heard of people with a mild case of it just taking pills to control the symptoms, but i dont know all that much about it?
<br />
<br />Hopefuly I was helpful!
 
C

cfsucks

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?</end quote></div>

1.) Not too much. Just have to inject myself with needles before I eat and before I go to bed now. Nothing compared to the time required for CF treatments. I'm actually kind of happy since they found it. I've gained nearly 20 pounds (all the weight I lost, and I'm still gaining)
2.) I use Lantus at night (long lasting) and Novorapid before meals. Have to test my blood sugars daily... (I do it around 6-7 times a day)
3.) Pancreas transplant maybe?
4.) I lost weight and started to get really thirsty. Like unquenchable thirst. Went in for a glucose tolerance test, and they found out mine were high.
 
C

cfsucks

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?</end quote></div>

1.) Not too much. Just have to inject myself with needles before I eat and before I go to bed now. Nothing compared to the time required for CF treatments. I'm actually kind of happy since they found it. I've gained nearly 20 pounds (all the weight I lost, and I'm still gaining)
2.) I use Lantus at night (long lasting) and Novorapid before meals. Have to test my blood sugars daily... (I do it around 6-7 times a day)
3.) Pancreas transplant maybe?
4.) I lost weight and started to get really thirsty. Like unquenchable thirst. Went in for a glucose tolerance test, and they found out mine were high.
 
C

cfsucks

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?</end quote></div>

1.) Not too much. Just have to inject myself with needles before I eat and before I go to bed now. Nothing compared to the time required for CF treatments. I'm actually kind of happy since they found it. I've gained nearly 20 pounds (all the weight I lost, and I'm still gaining)
2.) I use Lantus at night (long lasting) and Novorapid before meals. Have to test my blood sugars daily... (I do it around 6-7 times a day)
3.) Pancreas transplant maybe?
4.) I lost weight and started to get really thirsty. Like unquenchable thirst. Went in for a glucose tolerance test, and they found out mine were high.
 
C

cfsucks

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?</end quote>

1.) Not too much. Just have to inject myself with needles before I eat and before I go to bed now. Nothing compared to the time required for CF treatments. I'm actually kind of happy since they found it. I've gained nearly 20 pounds (all the weight I lost, and I'm still gaining)
2.) I use Lantus at night (long lasting) and Novorapid before meals. Have to test my blood sugars daily... (I do it around 6-7 times a day)
3.) Pancreas transplant maybe?
4.) I lost weight and started to get really thirsty. Like unquenchable thirst. Went in for a glucose tolerance test, and they found out mine were high.
 
C

cfsucks

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>
<br />
<br />Just have a few questions for anyone with CFRD
<br />
<br />1) How does it effect your life?
<br />
<br />2) what do you talk or do for it?
<br />
<br />3) This is a stupid question I know but is there any known
<br />
<br />cures?
<br />
<br />4) How do you know you haver it/ what conditions do you get?</end quote>
<br />
<br />1.) Not too much. Just have to inject myself with needles before I eat and before I go to bed now. Nothing compared to the time required for CF treatments. I'm actually kind of happy since they found it. I've gained nearly 20 pounds (all the weight I lost, and I'm still gaining)
<br />2.) I use Lantus at night (long lasting) and Novorapid before meals. Have to test my blood sugars daily... (I do it around 6-7 times a day)
<br />3.) Pancreas transplant maybe?
<br />4.) I lost weight and started to get really thirsty. Like unquenchable thirst. Went in for a glucose tolerance test, and they found out mine were high.
 
T

tleigh

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?



Any answers would be greatly appreciated thanks <img src=""></end quote></div>


1. It seemed to play a role in excerbations and how quickly I could recover

2. I get treated by an endocrinologist that is familiar w/ cfrd-in the past month, i have started on an insulin pump. prior to that, i took humalog (fast acting insulin) and lantus (long acting insulin). the insulin pump has made staying on top of things really easy-i don't have to do 4-6 shots a day-just change out an infusion set every 3 days

3. no known cure/but definitely treatments that are accessible

4. annual cf tests watch A1C raised questions and then we did the glucose tolerance test. I was able to control it w/ oral meds for a couple of years and then it has been in the past two years that I have had to switch to insulin.

CFRD is a unique animal when talking about diabetes. It is kind of a combination of type 1 and 2. Our bodies can't use the insulin we do produce correctly and often when we get sick it becomes more resistant to insulin.
 
T

tleigh

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?



Any answers would be greatly appreciated thanks <img src=""></end quote></div>


1. It seemed to play a role in excerbations and how quickly I could recover

2. I get treated by an endocrinologist that is familiar w/ cfrd-in the past month, i have started on an insulin pump. prior to that, i took humalog (fast acting insulin) and lantus (long acting insulin). the insulin pump has made staying on top of things really easy-i don't have to do 4-6 shots a day-just change out an infusion set every 3 days

3. no known cure/but definitely treatments that are accessible

4. annual cf tests watch A1C raised questions and then we did the glucose tolerance test. I was able to control it w/ oral meds for a couple of years and then it has been in the past two years that I have had to switch to insulin.

CFRD is a unique animal when talking about diabetes. It is kind of a combination of type 1 and 2. Our bodies can't use the insulin we do produce correctly and often when we get sick it becomes more resistant to insulin.
 
T

tleigh

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?



Any answers would be greatly appreciated thanks <img src=""></end quote></div>


1. It seemed to play a role in excerbations and how quickly I could recover

2. I get treated by an endocrinologist that is familiar w/ cfrd-in the past month, i have started on an insulin pump. prior to that, i took humalog (fast acting insulin) and lantus (long acting insulin). the insulin pump has made staying on top of things really easy-i don't have to do 4-6 shots a day-just change out an infusion set every 3 days

3. no known cure/but definitely treatments that are accessible

4. annual cf tests watch A1C raised questions and then we did the glucose tolerance test. I was able to control it w/ oral meds for a couple of years and then it has been in the past two years that I have had to switch to insulin.

CFRD is a unique animal when talking about diabetes. It is kind of a combination of type 1 and 2. Our bodies can't use the insulin we do produce correctly and often when we get sick it becomes more resistant to insulin.
 
T

tleigh

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>

Just have a few questions for anyone with CFRD

1) How does it effect your life?

2) what do you talk or do for it?

3) This is a stupid question I know but is there any known

cures?

4) How do you know you haver it/ what conditions do you get?



Any answers would be greatly appreciated thanks <img src=""></end quote>


1. It seemed to play a role in excerbations and how quickly I could recover

2. I get treated by an endocrinologist that is familiar w/ cfrd-in the past month, i have started on an insulin pump. prior to that, i took humalog (fast acting insulin) and lantus (long acting insulin). the insulin pump has made staying on top of things really easy-i don't have to do 4-6 shots a day-just change out an infusion set every 3 days

3. no known cure/but definitely treatments that are accessible

4. annual cf tests watch A1C raised questions and then we did the glucose tolerance test. I was able to control it w/ oral meds for a couple of years and then it has been in the past two years that I have had to switch to insulin.

CFRD is a unique animal when talking about diabetes. It is kind of a combination of type 1 and 2. Our bodies can't use the insulin we do produce correctly and often when we get sick it becomes more resistant to insulin.
 
T

tleigh

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>DaMan</b></i>
<br />
<br />Just have a few questions for anyone with CFRD
<br />
<br />1) How does it effect your life?
<br />
<br />2) what do you talk or do for it?
<br />
<br />3) This is a stupid question I know but is there any known
<br />
<br />cures?
<br />
<br />4) How do you know you haver it/ what conditions do you get?
<br />
<br />
<br />
<br />Any answers would be greatly appreciated thanks <img src=""></end quote>
<br />
<br />
<br />1. It seemed to play a role in excerbations and how quickly I could recover
<br />
<br />2. I get treated by an endocrinologist that is familiar w/ cfrd-in the past month, i have started on an insulin pump. prior to that, i took humalog (fast acting insulin) and lantus (long acting insulin). the insulin pump has made staying on top of things really easy-i don't have to do 4-6 shots a day-just change out an infusion set every 3 days
<br />
<br />3. no known cure/but definitely treatments that are accessible
<br />
<br />4. annual cf tests watch A1C raised questions and then we did the glucose tolerance test. I was able to control it w/ oral meds for a couple of years and then it has been in the past two years that I have had to switch to insulin.
<br />
<br />CFRD is a unique animal when talking about diabetes. It is kind of a combination of type 1 and 2. Our bodies can't use the insulin we do produce correctly and often when we get sick it becomes more resistant to insulin.
<br />
<br />
 
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