questions

LouLou

New member
I've never heard of testing a leg. Was she sweat tested at an accredited cf center? look on cff.org to find out. you should advocate for your daughter that you want a genetic sequencing test done to completely rule out cf...there are TONS of people on this site that only know they have cf because of genetic testing.
 

LouLou

New member
I've never heard of testing a leg. Was she sweat tested at an accredited cf center? look on cff.org to find out. you should advocate for your daughter that you want a genetic sequencing test done to completely rule out cf...there are TONS of people on this site that only know they have cf because of genetic testing.
 

LouLou

New member
I've never heard of testing a leg. Was she sweat tested at an accredited cf center? look on cff.org to find out. you should advocate for your daughter that you want a genetic sequencing test done to completely rule out cf...there are TONS of people on this site that only know they have cf because of genetic testing.
 

LouLou

New member
I've never heard of testing a leg. Was she sweat tested at an accredited cf center? look on cff.org to find out. you should advocate for your daughter that you want a genetic sequencing test done to completely rule out cf...there are TONS of people on this site that only know they have cf because of genetic testing.
 

LouLou

New member
I've never heard of testing a leg. Was she sweat tested at an accredited cf center? look on cff.org to find out. you should advocate for your daughter that you want a genetic sequencing test done to completely rule out cf...there are TONS of people on this site that only know they have cf because of genetic testing.
 

JazzysMom

New member
I too am curious about testing the legs......

Please keep us updated so we know for sure! We hate being left out on a limb!!!

HUGS
 

JazzysMom

New member
I too am curious about testing the legs......

Please keep us updated so we know for sure! We hate being left out on a limb!!!

HUGS
 

JazzysMom

New member
I too am curious about testing the legs......

Please keep us updated so we know for sure! We hate being left out on a limb!!!

HUGS
 

JazzysMom

New member
I too am curious about testing the legs......

Please keep us updated so we know for sure! We hate being left out on a limb!!!

HUGS
 

JazzysMom

New member
I too am curious about testing the legs......
<br />
<br />Please keep us updated so we know for sure! We hate being left out on a limb!!!
<br />
<br />HUGS
 

mom2kas

New member
She was tested at Texas Children's Hospital. They first cleaned her legs off, then put this metal circles on her legs for 5 minutes to stimulate the sweat glands. Then, they put a small gauze with a clear square taped on top of it. They then wrapped it in seran wrap for 30 minutes. Afterwards the pulled the gauze out with tweezers and put it in a test tube. This sounds right, right?

I asked then how often they get a positive read and she told me very, very rarely.

I will ask about genetic testing for her. I am supposed to follow up with her pediatrician next week so she can listen to Kassie's lungs.
 

mom2kas

New member
She was tested at Texas Children's Hospital. They first cleaned her legs off, then put this metal circles on her legs for 5 minutes to stimulate the sweat glands. Then, they put a small gauze with a clear square taped on top of it. They then wrapped it in seran wrap for 30 minutes. Afterwards the pulled the gauze out with tweezers and put it in a test tube. This sounds right, right?

I asked then how often they get a positive read and she told me very, very rarely.

I will ask about genetic testing for her. I am supposed to follow up with her pediatrician next week so she can listen to Kassie's lungs.
 

mom2kas

New member
She was tested at Texas Children's Hospital. They first cleaned her legs off, then put this metal circles on her legs for 5 minutes to stimulate the sweat glands. Then, they put a small gauze with a clear square taped on top of it. They then wrapped it in seran wrap for 30 minutes. Afterwards the pulled the gauze out with tweezers and put it in a test tube. This sounds right, right?

I asked then how often they get a positive read and she told me very, very rarely.

I will ask about genetic testing for her. I am supposed to follow up with her pediatrician next week so she can listen to Kassie's lungs.
 

mom2kas

New member
She was tested at Texas Children's Hospital. They first cleaned her legs off, then put this metal circles on her legs for 5 minutes to stimulate the sweat glands. Then, they put a small gauze with a clear square taped on top of it. They then wrapped it in seran wrap for 30 minutes. Afterwards the pulled the gauze out with tweezers and put it in a test tube. This sounds right, right?

I asked then how often they get a positive read and she told me very, very rarely.

I will ask about genetic testing for her. I am supposed to follow up with her pediatrician next week so she can listen to Kassie's lungs.
 

mom2kas

New member
She was tested at Texas Children's Hospital. They first cleaned her legs off, then put this metal circles on her legs for 5 minutes to stimulate the sweat glands. Then, they put a small gauze with a clear square taped on top of it. They then wrapped it in seran wrap for 30 minutes. Afterwards the pulled the gauze out with tweezers and put it in a test tube. This sounds right, right?
<br />
<br />I asked then how often they get a positive read and she told me very, very rarely.
<br />
<br />I will ask about genetic testing for her. I am supposed to follow up with her pediatrician next week so she can listen to Kassie's lungs.
 
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