I was wondering if someone who is very knowledgeable on the CF information could please contact me. My email address is T_Robinson05@hotmail.com. I have some questions that I really need help with. Short version, I was diagnosed at 3 with CF and "undiagnosed" at 12. I am now 20 but still seem to have many symptoms. If anyone is willing to try to help, please let me know.
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- Thread starter Gymnast
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I was wondering if someone who is very knowledgeable on the CF information could please contact me. My email address is T_Robinson05@hotmail.com. I have some questions that I really need help with. Short version, I was diagnosed at 3 with CF and "undiagnosed" at 12. I am now 20 but still seem to have many symptoms. If anyone is willing to try to help, please let me know.
I was wondering if someone who is very knowledgeable on the CF information could please contact me. My email address is T_Robinson05@hotmail.com. I have some questions that I really need help with. Short version, I was diagnosed at 3 with CF and "undiagnosed" at 12. I am now 20 but still seem to have many symptoms. If anyone is willing to try to help, please let me know.
I was wondering if someone who is very knowledgeable on the CF information could please contact me. My email address is T_Robinson05@hotmail.com. I have some questions that I really need help with. Short version, I was diagnosed at 3 with CF and "undiagnosed" at 12. I am now 20 but still seem to have many symptoms. If anyone is willing to try to help, please let me know.
I was wondering if someone who is very knowledgeable on the CF information could please contact me. My email address is T_Robinson05@hotmail.com. I have some questions that I really need help with. Short version, I was diagnosed at 3 with CF and "undiagnosed" at 12. I am now 20 but still seem to have many symptoms. If anyone is willing to try to help, please let me know.
I'd be happy to talk to you.... that's interesting that you were diagnosed and then undiagnosed.... how long ago was your genetic testing? or did you ever have it?
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
I'd be happy to talk to you.... that's interesting that you were diagnosed and then undiagnosed.... how long ago was your genetic testing? or did you ever have it?
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
I'd be happy to talk to you.... that's interesting that you were diagnosed and then undiagnosed.... how long ago was your genetic testing? or did you ever have it?
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
I'd be happy to talk to you.... that's interesting that you were diagnosed and then undiagnosed.... how long ago was your genetic testing? or did you ever have it?
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
I'd be happy to talk to you.... that's interesting that you were diagnosed and then undiagnosed.... how long ago was your genetic testing? or did you ever have it?
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.
My daughter was misdiagnosed for 8 years because she has a normal sweat test. My son is just one point over normal and into the borderline area, but we now know they both have two cf genes.
So what's happening with you? What are your symptoms? What were you/your parents told when you were 3 and 12. Have you seen a doctor recently? That sounds like a very interesting story.
*****
I also sent this same message to your email address, please feel free to respond either place. Or you can also use the Private message feature on this website...just click on the little icon of the person with the text box near his head on this post.