Hey Dani,
I'm now 20yrs old (male) and i'm from Ireland (yeah i'm irish). I've only briefly met a few other people with CF during my life and that was in hospital. So basically i've had to go through this on my own. Of course i have the best parents in the WORLD, but i would never talk to them about my fear of death cause it would be too upsetting for them and me!
I know what i'm going to say is very obvious, but i find that people often need to be reminded!
Death is normal and EVERYONE is going to die at some stage. People with CF may die sooner than other people but NOT ALWAYS. What people like us need to do is put what may happen to one side of our minds and then decide how you want to enjoy the life that is given to us.
If your ever feeling afraid or depressed about CF then just think how lucky we are in so many ways!! I sure know that i'd rather have CF than be blind or unable to walk, or missing an arm or leg. These things are all obvious when u see a person, but with CF we can hide it (but not always).
When i was younger i used to think about it more and it used to depress me and made me a bit afraid. But every person in the world who ever spends any time thinking about death is going to feel a bit afraid.
I hope this helps.
Best Wishes
D Rainey