chattyfamily
New member
We go to Rainbow Babies CF clinic in Cleveland and LOVE it. Everyone on Porter's "team" is so caring and helpful.
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Rainbow babies clinic in cleveland ohio.
- Thread starter PlumPerfect
- Start date
chattyfamily
New member
We go to Rainbow Babies CF clinic in Cleveland and LOVE it. Everyone on Porter's "team" is so caring and helpful.
chattyfamily
New member
We go to Rainbow Babies CF clinic in Cleveland and LOVE it. Everyone on Porter's "team" is so caring and helpful.
chattyfamily
New member
We go to Rainbow Babies CF clinic in Cleveland and LOVE it. Everyone on Porter's "team" is so caring and helpful.
chattyfamily
New member
We go to Rainbow Babies CF clinic in Cleveland and LOVE it. Everyone on Porter's "team" is so caring and helpful.
Transplantmommy
New member
I have never gone to the Rainbow Clinic but I have only ever heard good things about it! I had my Tx at the Cleveland Clinic and go there for follow-up care. They do have a CF doctor there but I think he is an adult doc. He actually started working there just before I had the transplants in January '07.
Transplantmommy
New member
I have never gone to the Rainbow Clinic but I have only ever heard good things about it! I had my Tx at the Cleveland Clinic and go there for follow-up care. They do have a CF doctor there but I think he is an adult doc. He actually started working there just before I had the transplants in January '07.
Transplantmommy
New member
I have never gone to the Rainbow Clinic but I have only ever heard good things about it! I had my Tx at the Cleveland Clinic and go there for follow-up care. They do have a CF doctor there but I think he is an adult doc. He actually started working there just before I had the transplants in January '07.
Transplantmommy
New member
I have never gone to the Rainbow Clinic but I have only ever heard good things about it! I had my Tx at the Cleveland Clinic and go there for follow-up care. They do have a CF doctor there but I think he is an adult doc. He actually started working there just before I had the transplants in January '07.
Transplantmommy
New member
I have never gone to the Rainbow Clinic but I have only ever heard good things about it! I had my Tx at the Cleveland Clinic and go there for follow-up care. They do have a CF doctor there but I think he is an adult doc. He actually started working there just before I had the transplants in January '07.
PlumPerfect
New member
awesome, thank you all, we have decided to go for it!
PlumPerfect
New member
awesome, thank you all, we have decided to go for it!
PlumPerfect
New member
awesome, thank you all, we have decided to go for it!
PlumPerfect
New member
awesome, thank you all, we have decided to go for it!
PlumPerfect
New member
awesome, thank you all, we have decided to go for it!
We were initially cared for at the Cleveland Clinic and then later sent to Rainbow's Babies and Children (University Hospitals) CF Clinic where we were admitted and finally diagnosed. They were awesome during the absolutely toughest time of our lives. It is ranked one of the best in the country. I believe the CF clinic is one of the highest funded research clinics in this country and received many grants. We are constantly asked to join studies. I have found them to have a nice blend -- not overdoing it with antibiotics, encouraging caution with their use but being on top of PA at first culture and really recommending what is right for each child. People come from around the country to do their "clean outs" at Rainbows, even adults.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
We were initially cared for at the Cleveland Clinic and then later sent to Rainbow's Babies and Children (University Hospitals) CF Clinic where we were admitted and finally diagnosed. They were awesome during the absolutely toughest time of our lives. It is ranked one of the best in the country. I believe the CF clinic is one of the highest funded research clinics in this country and received many grants. We are constantly asked to join studies. I have found them to have a nice blend -- not overdoing it with antibiotics, encouraging caution with their use but being on top of PA at first culture and really recommending what is right for each child. People come from around the country to do their "clean outs" at Rainbows, even adults.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
We were initially cared for at the Cleveland Clinic and then later sent to Rainbow's Babies and Children (University Hospitals) CF Clinic where we were admitted and finally diagnosed. They were awesome during the absolutely toughest time of our lives. It is ranked one of the best in the country. I believe the CF clinic is one of the highest funded research clinics in this country and received many grants. We are constantly asked to join studies. I have found them to have a nice blend -- not overdoing it with antibiotics, encouraging caution with their use but being on top of PA at first culture and really recommending what is right for each child. People come from around the country to do their "clean outs" at Rainbows, even adults.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
We were initially cared for at the Cleveland Clinic and then later sent to Rainbow's Babies and Children (University Hospitals) CF Clinic where we were admitted and finally diagnosed. They were awesome during the absolutely toughest time of our lives. It is ranked one of the best in the country. I believe the CF clinic is one of the highest funded research clinics in this country and received many grants. We are constantly asked to join studies. I have found them to have a nice blend -- not overdoing it with antibiotics, encouraging caution with their use but being on top of PA at first culture and really recommending what is right for each child. People come from around the country to do their "clean outs" at Rainbows, even adults.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
Reminds me...he is due for a visit.
Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
We were initially cared for at the Cleveland Clinic and then later sent to Rainbow's Babies and Children (University Hospitals) CF Clinic where we were admitted and finally diagnosed. They were awesome during the absolutely toughest time of our lives. It is ranked one of the best in the country. I believe the CF clinic is one of the highest funded research clinics in this country and received many grants. We are constantly asked to join studies. I have found them to have a nice blend -- not overdoing it with antibiotics, encouraging caution with their use but being on top of PA at first culture and really recommending what is right for each child. People come from around the country to do their "clean outs" at Rainbows, even adults.
<br />
<br />All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
<br />
<br />Reminds me...he is due for a visit.
<br />
<br />Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.
<br />
<br />All the doctors who have cared for our son have been amazing. I have had many conversations about breastfeeding and nutrition, ways they could improve things, and they have been very open to change. Of course, I'd like to see more but that's just me. They have come to expect our active involvement in our son's care and have welcomed it.
<br />
<br />Reminds me...he is due for a visit.
<br />
<br />Hope this helps...PM me if your in the area...I do alot of nutritional and supplemental stuff as well. I think all CF clinics are less knowledgeable in this area than they should be so we have an expanded team if we need it which is more aware of complimentary care options.