I received this link from my minister at MarbleChurch.org...Reverend Gregory Johnson...he is a caregiver extroadinaire!
Thanks Rev!
https://www.caregiving.org/wp-content/uploads/2018/02/NAC-RareDiseaseReport_February-2018_WEB.pdf
Thanks Rev!
https://www.caregiving.org/wp-content/uploads/2018/02/NAC-RareDiseaseReport_February-2018_WEB.pdf