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Recently diagonised 4 yr old with CF. Any help appreciated!
- Thread starter csan00
- Start date
Welcome-
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
Welcome-
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
Welcome-
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
Welcome-
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
Welcome-
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
The advice I can give is that you have to keep an open mind when it comes to the board as it pertains to your son. Don't gauge your child on someone else's because it will drive you crazy. CF has come a long ways since our little girl was dx 2 1/2 years and it will only get better. Best of luck and post often you will have great support here.
Chuck father to Avery 4 with DDF508 and Rhett 3 carrier
Ditto with the other replies.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
Ditto with the other replies.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
Ditto with the other replies.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
Ditto with the other replies.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
Ditto with the other replies.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.
I also came for support and to have others who knew the language I was speaking and understood the fears, frustrations, and emotions of it all. So for I have been able to laugh with and cry with and for so many who truly understand.
The advice that was given not to guage your child with other posts is so correct. As you will be discovering this is not a one size fits all disease which is what often times makes it so frustrating. You cannot look at even 2 kiddos the same age and see the same process of disease or be able to predict from one to the other.
I always say that my very best advice to all parents of CFers is to follow your gut instincts until you are proven wrong and are satisfied with the answer. You know your child best and very soon they will know their body best and those instincts have always been my best guide.