Rectal biopsy for CF??? Never heard of this

charl72

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>

Thanks everybody for your support!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

It means so much to know you're not alone!



So, many of you haven't heard about CF in the family either.

It sounds mind boggling... but as my son's doctor says, CF has been recognized not long ago (in terms of generations). In my grand-parents generation, CF could come across as "bad colds", "having weak lungs", etc... For instance, my mom knows her older brother died very young (she never met him) but she doesn't know exactly of what. This was in the early 1910's.



Another thing that bugs me, and I don't want to tell this to my DS is, even having a "mild" mutation will he have a "normal" life? How's he going to have a girlfriend/wife if he's coughing all the time and who will want to have his kids knowing the disease he has? I know this may sound petty to those of you whose kids have a life-threatening condition (though even a mild one can develop into a life-threatening one, if I understood correctly).

I'm sure you've discussed this a lot in the forums, and I don't personally know anybody who has the disease, so... please bear with me <img src="i/expressions/face-icon-small-smile.gif" border="0">



About the rectal biopsy, doctor told my DS it's a new procedure and he and another boy will be the first to do it... Puzzling!... I'll tell you more details later.



Thanks again!... you're wonderful, people!... may the future be kind to you and your loved ones. To all of us!...</end quote></div>


Quote 'How's he going to have a girlfriend/wife if he's coughing all the time' - no offence, but how on earth can you say that about your son? People will love him and adore him for who he is not what he's got. It's like me saying that about our daughter. So what, if she has CF, so what if she has a life-threatening disease, I could go on, but I won't. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 

charl72

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>

Thanks everybody for your support!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

It means so much to know you're not alone!



So, many of you haven't heard about CF in the family either.

It sounds mind boggling... but as my son's doctor says, CF has been recognized not long ago (in terms of generations). In my grand-parents generation, CF could come across as "bad colds", "having weak lungs", etc... For instance, my mom knows her older brother died very young (she never met him) but she doesn't know exactly of what. This was in the early 1910's.



Another thing that bugs me, and I don't want to tell this to my DS is, even having a "mild" mutation will he have a "normal" life? How's he going to have a girlfriend/wife if he's coughing all the time and who will want to have his kids knowing the disease he has? I know this may sound petty to those of you whose kids have a life-threatening condition (though even a mild one can develop into a life-threatening one, if I understood correctly).

I'm sure you've discussed this a lot in the forums, and I don't personally know anybody who has the disease, so... please bear with me <img src="i/expressions/face-icon-small-smile.gif" border="0">



About the rectal biopsy, doctor told my DS it's a new procedure and he and another boy will be the first to do it... Puzzling!... I'll tell you more details later.



Thanks again!... you're wonderful, people!... may the future be kind to you and your loved ones. To all of us!...</end quote></div>


Quote 'How's he going to have a girlfriend/wife if he's coughing all the time' - no offence, but how on earth can you say that about your son? People will love him and adore him for who he is not what he's got. It's like me saying that about our daughter. So what, if she has CF, so what if she has a life-threatening disease, I could go on, but I won't. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 

charl72

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>

Thanks everybody for your support!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

It means so much to know you're not alone!



So, many of you haven't heard about CF in the family either.

It sounds mind boggling... but as my son's doctor says, CF has been recognized not long ago (in terms of generations). In my grand-parents generation, CF could come across as "bad colds", "having weak lungs", etc... For instance, my mom knows her older brother died very young (she never met him) but she doesn't know exactly of what. This was in the early 1910's.



Another thing that bugs me, and I don't want to tell this to my DS is, even having a "mild" mutation will he have a "normal" life? How's he going to have a girlfriend/wife if he's coughing all the time and who will want to have his kids knowing the disease he has? I know this may sound petty to those of you whose kids have a life-threatening condition (though even a mild one can develop into a life-threatening one, if I understood correctly).

I'm sure you've discussed this a lot in the forums, and I don't personally know anybody who has the disease, so... please bear with me <img src="i/expressions/face-icon-small-smile.gif" border="0">



About the rectal biopsy, doctor told my DS it's a new procedure and he and another boy will be the first to do it... Puzzling!... I'll tell you more details later.



Thanks again!... you're wonderful, people!... may the future be kind to you and your loved ones. To all of us!...</end quote></div>


Quote 'How's he going to have a girlfriend/wife if he's coughing all the time' - no offence, but how on earth can you say that about your son? People will love him and adore him for who he is not what he's got. It's like me saying that about our daughter. So what, if she has CF, so what if she has a life-threatening disease, I could go on, but I won't. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 

charl72

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>

Thanks everybody for your support!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

It means so much to know you're not alone!



So, many of you haven't heard about CF in the family either.

It sounds mind boggling... but as my son's doctor says, CF has been recognized not long ago (in terms of generations). In my grand-parents generation, CF could come across as "bad colds", "having weak lungs", etc... For instance, my mom knows her older brother died very young (she never met him) but she doesn't know exactly of what. This was in the early 1910's.



Another thing that bugs me, and I don't want to tell this to my DS is, even having a "mild" mutation will he have a "normal" life? How's he going to have a girlfriend/wife if he's coughing all the time and who will want to have his kids knowing the disease he has? I know this may sound petty to those of you whose kids have a life-threatening condition (though even a mild one can develop into a life-threatening one, if I understood correctly).

I'm sure you've discussed this a lot in the forums, and I don't personally know anybody who has the disease, so... please bear with me <img src="i/expressions/face-icon-small-smile.gif" border="0">



About the rectal biopsy, doctor told my DS it's a new procedure and he and another boy will be the first to do it... Puzzling!... I'll tell you more details later.



Thanks again!... you're wonderful, people!... may the future be kind to you and your loved ones. To all of us!...</end quote></div>


Quote 'How's he going to have a girlfriend/wife if he's coughing all the time' - no offence, but how on earth can you say that about your son? People will love him and adore him for who he is not what he's got. It's like me saying that about our daughter. So what, if she has CF, so what if she has a life-threatening disease, I could go on, but I won't. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 

charl72

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>

Thanks everybody for your support!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

It means so much to know you're not alone!



So, many of you haven't heard about CF in the family either.

It sounds mind boggling... but as my son's doctor says, CF has been recognized not long ago (in terms of generations). In my grand-parents generation, CF could come across as "bad colds", "having weak lungs", etc... For instance, my mom knows her older brother died very young (she never met him) but she doesn't know exactly of what. This was in the early 1910's.



Another thing that bugs me, and I don't want to tell this to my DS is, even having a "mild" mutation will he have a "normal" life? How's he going to have a girlfriend/wife if he's coughing all the time and who will want to have his kids knowing the disease he has? I know this may sound petty to those of you whose kids have a life-threatening condition (though even a mild one can develop into a life-threatening one, if I understood correctly).

I'm sure you've discussed this a lot in the forums, and I don't personally know anybody who has the disease, so... please bear with me <img src="i/expressions/face-icon-small-smile.gif" border="0">



About the rectal biopsy, doctor told my DS it's a new procedure and he and another boy will be the first to do it... Puzzling!... I'll tell you more details later.



Thanks again!... you're wonderful, people!... may the future be kind to you and your loved ones. To all of us!...</end quote>


Quote 'How's he going to have a girlfriend/wife if he's coughing all the time' - no offence, but how on earth can you say that about your son? People will love him and adore him for who he is not what he's got. It's like me saying that about our daughter. So what, if she has CF, so what if she has a life-threatening disease, I could go on, but I won't. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 

charl72

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>

Thanks everybody for your support!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

It means so much to know you're not alone!



So, many of you haven't heard about CF in the family either.

It sounds mind boggling... but as my son's doctor says, CF has been recognized not long ago (in terms of generations). In my grand-parents generation, CF could come across as "bad colds", "having weak lungs", etc... For instance, my mom knows her older brother died very young (she never met him) but she doesn't know exactly of what. This was in the early 1910's.



Another thing that bugs me, and I don't want to tell this to my DS is, even having a "mild" mutation will he have a "normal" life? How's he going to have a girlfriend/wife if he's coughing all the time and who will want to have his kids knowing the disease he has? I know this may sound petty to those of you whose kids have a life-threatening condition (though even a mild one can develop into a life-threatening one, if I understood correctly).

I'm sure you've discussed this a lot in the forums, and I don't personally know anybody who has the disease, so... please bear with me <img src="i/expressions/face-icon-small-smile.gif" border="0">



About the rectal biopsy, doctor told my DS it's a new procedure and he and another boy will be the first to do it... Puzzling!... I'll tell you more details later.



Thanks again!... you're wonderful, people!... may the future be kind to you and your loved ones. To all of us!...</end quote>


Quote 'How's he going to have a girlfriend/wife if he's coughing all the time' - no offence, but how on earth can you say that about your son? People will love him and adore him for who he is not what he's got. It's like me saying that about our daughter. So what, if she has CF, so what if she has a life-threatening disease, I could go on, but I won't. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 

okok

New member
I'm so sorry the biopsy was positive. I completely understand how devastated you feel. I know this probably won't be of any consolation to you but on the other hand it is great that this test was available to you that your son could get a diagnosis and be treated properly.
 

okok

New member
I'm so sorry the biopsy was positive. I completely understand how devastated you feel. I know this probably won't be of any consolation to you but on the other hand it is great that this test was available to you that your son could get a diagnosis and be treated properly.
 

okok

New member
I'm so sorry the biopsy was positive. I completely understand how devastated you feel. I know this probably won't be of any consolation to you but on the other hand it is great that this test was available to you that your son could get a diagnosis and be treated properly.
 

okok

New member
I'm so sorry the biopsy was positive. I completely understand how devastated you feel. I know this probably won't be of any consolation to you but on the other hand it is great that this test was available to you that your son could get a diagnosis and be treated properly.
 

okok

New member
I'm so sorry the biopsy was positive. I completely understand how devastated you feel. I know this probably won't be of any consolation to you but on the other hand it is great that this test was available to you that your son could get a diagnosis and be treated properly.
 

okok

New member
I'm so sorry the biopsy was positive. I completely understand how devastated you feel. I know this probably won't be of any consolation to you but on the other hand it is great that this test was available to you that your son could get a diagnosis and be treated properly.
 
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