Rest and Fatigue

[coltsfan715]

When I was in school and not working pre transplant people always thought I COULD do both. I just explained that I had tried and my body just couldn't handle the work. Everytime I tried to hold a job I would end up losing weight, getting sick and 9 times out of 10 in the hospital for a few weeks. Once I told people that they normally left me alone.


Low O2 is another huge reason though that you may be having a hard time waking up in the AM. When my O2 levels started to drop it felt like no matter how much sleep I got I was still tired.

Take Care,
Lindsey

 

[coltsfan715]

When I was in school and not working pre transplant people always thought I COULD do both. I just explained that I had tried and my body just couldn't handle the work. Everytime I tried to hold a job I would end up losing weight, getting sick and 9 times out of 10 in the hospital for a few weeks. Once I told people that they normally left me alone.


Low O2 is another huge reason though that you may be having a hard time waking up in the AM. When my O2 levels started to drop it felt like no matter how much sleep I got I was still tired.

Take Care,
Lindsey

 

[coltsfan715]

When I was in school and not working pre transplant people always thought I COULD do both. I just explained that I had tried and my body just couldn't handle the work. Everytime I tried to hold a job I would end up losing weight, getting sick and 9 times out of 10 in the hospital for a few weeks. Once I told people that they normally left me alone.


Low O2 is another huge reason though that you may be having a hard time waking up in the AM. When my O2 levels started to drop it felt like no matter how much sleep I got I was still tired.

Take Care,
Lindsey

 

[coltsfan715]

When I was in school and not working pre transplant people always thought I COULD do both. I just explained that I had tried and my body just couldn't handle the work. Everytime I tried to hold a job I would end up losing weight, getting sick and 9 times out of 10 in the hospital for a few weeks. Once I told people that they normally left me alone.


Low O2 is another huge reason though that you may be having a hard time waking up in the AM. When my O2 levels started to drop it felt like no matter how much sleep I got I was still tired.

Take Care,
Lindsey

 

[coltsfan715]

When I was in school and not working pre transplant people always thought I COULD do both. I just explained that I had tried and my body just couldn't handle the work. Everytime I tried to hold a job I would end up losing weight, getting sick and 9 times out of 10 in the hospital for a few weeks. Once I told people that they normally left me alone.
<br />
<br />
<br />Low O2 is another huge reason though that you may be having a hard time waking up in the AM. When my O2 levels started to drop it felt like no matter how much sleep I got I was still tired.
<br />
<br />Take Care,
<br />Lindsey

 

[Marjolein]

I love the spoon theory.

If I had to explain before I had read the theory people said they understood. Even best friends acted like they really understood and always knew when to help me, what to do or don't do.
I posted the spoontheory right after I'd read it. And got lots of reactions, even from my best friends, that now they really knew what it was like.

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.

 

[Marjolein]

I love the spoon theory.

If I had to explain before I had read the theory people said they understood. Even best friends acted like they really understood and always knew when to help me, what to do or don't do.
I posted the spoontheory right after I'd read it. And got lots of reactions, even from my best friends, that now they really knew what it was like.

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.

 

[Marjolein]

I love the spoon theory.

If I had to explain before I had read the theory people said they understood. Even best friends acted like they really understood and always knew when to help me, what to do or don't do.
I posted the spoontheory right after I'd read it. And got lots of reactions, even from my best friends, that now they really knew what it was like.

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.

 

[Marjolein]

I love the spoon theory.

If I had to explain before I had read the theory people said they understood. Even best friends acted like they really understood and always knew when to help me, what to do or don't do.
I posted the spoontheory right after I'd read it. And got lots of reactions, even from my best friends, that now they really knew what it was like.

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.

 

[Marjolein]

I love the spoon theory.
<br />
<br />If I had to explain before I had read the theory people said they understood. Even best friends acted like they really understood and always knew when to help me, what to do or don't do.
<br />I posted the spoontheory right after I'd read it. And got lots of reactions, even from my best friends, that now they really knew what it was like.
<br />
<br />One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.

 

[Wheezie]

Thanks to everyone for all of the suggestions. I sometimes think I need to hear that stuff to convince even <i>myself</i> that it is normal to feel so drained and that I <i>can</i> say no to things when I don't have any reserves left.

 

[Wheezie]

Thanks to everyone for all of the suggestions. I sometimes think I need to hear that stuff to convince even <i>myself</i> that it is normal to feel so drained and that I <i>can</i> say no to things when I don't have any reserves left.

 

[Wheezie]

Thanks to everyone for all of the suggestions. I sometimes think I need to hear that stuff to convince even <i>myself</i> that it is normal to feel so drained and that I <i>can</i> say no to things when I don't have any reserves left.

 

[Wheezie]

Thanks to everyone for all of the suggestions. I sometimes think I need to hear that stuff to convince even <i>myself</i> that it is normal to feel so drained and that I <i>can</i> say no to things when I don't have any reserves left.

 

[Wheezie]

Thanks to everyone for all of the suggestions. I sometimes think I need to hear that stuff to convince even <i>myself</i> that it is normal to feel so drained and that I <i>can</i> say no to things when I don't have any reserves left.

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Marjolein</b></i>

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.</end quote></div>

Aw, that is very sweet. I like the theory too, I just read it here for the first time. I think it sums up what we deal with every day pretty well... and although the diseases are pretty far apart, just from reading that, it seems like we have a lot of the same "choices" to make as someone with lupus. I mean just deciding what you can get done in a day, without wearing yourself out.

Before I read that theory, I would do this exercise with my friends. Give them a straw, and tell them to pinch their nose and try to breathe through the straw. Voila, that is what it's like for us to breathe all the time. (I think I read this in a CF book or something like that) Needless to say they didn't much like the straw and gave it up after about 30 seconds. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Marjolein</b></i>

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.</end quote></div>

Aw, that is very sweet. I like the theory too, I just read it here for the first time. I think it sums up what we deal with every day pretty well... and although the diseases are pretty far apart, just from reading that, it seems like we have a lot of the same "choices" to make as someone with lupus. I mean just deciding what you can get done in a day, without wearing yourself out.

Before I read that theory, I would do this exercise with my friends. Give them a straw, and tell them to pinch their nose and try to breathe through the straw. Voila, that is what it's like for us to breathe all the time. (I think I read this in a CF book or something like that) Needless to say they didn't much like the straw and gave it up after about 30 seconds. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Marjolein</b></i>

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.</end quote></div>

Aw, that is very sweet. I like the theory too, I just read it here for the first time. I think it sums up what we deal with every day pretty well... and although the diseases are pretty far apart, just from reading that, it seems like we have a lot of the same "choices" to make as someone with lupus. I mean just deciding what you can get done in a day, without wearing yourself out.

Before I read that theory, I would do this exercise with my friends. Give them a straw, and tell them to pinch their nose and try to breathe through the straw. Voila, that is what it's like for us to breathe all the time. (I think I read this in a CF book or something like that) Needless to say they didn't much like the straw and gave it up after about 30 seconds. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Marjolein</b></i>

One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.</end quote>

Aw, that is very sweet. I like the theory too, I just read it here for the first time. I think it sums up what we deal with every day pretty well... and although the diseases are pretty far apart, just from reading that, it seems like we have a lot of the same "choices" to make as someone with lupus. I mean just deciding what you can get done in a day, without wearing yourself out.

Before I read that theory, I would do this exercise with my friends. Give them a straw, and tell them to pinch their nose and try to breathe through the straw. Voila, that is what it's like for us to breathe all the time. (I think I read this in a CF book or something like that) Needless to say they didn't much like the straw and gave it up after about 30 seconds. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[Sevenstars]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Marjolein</b></i>
<br />
<br />One of my friends said she wanted to give me her whole drawr of cutlery(?)... That really was one of the sweetest things I've been told.</end quote>
<br />
<br />Aw, that is very sweet. I like the theory too, I just read it here for the first time. I think it sums up what we deal with every day pretty well... and although the diseases are pretty far apart, just from reading that, it seems like we have a lot of the same "choices" to make as someone with lupus. I mean just deciding what you can get done in a day, without wearing yourself out.
<br />
<br />Before I read that theory, I would do this exercise with my friends. Give them a straw, and tell them to pinch their nose and try to breathe through the straw. Voila, that is what it's like for us to breathe all the time. (I think I read this in a CF book or something like that) Needless to say they didn't much like the straw and gave it up after about 30 seconds. <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />