Revision of Soc Security for those of us with Respiratory Disease

[RytheStunner]

"Truth is, a lot of CFers who currently receive them probably shouldn't" Are you kidding me? How do you know this as the truth? Ever CF case in different

With stacks of ENDLESS PILLS, breathing treatments, IV antibiotics with side effects and trying to cram that in at the same time while trying to WORK a full time is NOT POSSIBLE,- FOR SOME,.

My lung function currently is in the 75 on a good day and for last last few years 80's once I stopped working, they only reason they are '75' now is because I can keep them that way. When I tried to worked full time, trying to do treatments my lung function dropped 40-50's, and I knew I had stop work for my health soon, it just wasn't possible, I would come home EXHAUSTED and not do treatments, and start a vicious cycle over and over, besides that and trying to eat and exercise. WORK was MORE WORK for my CF ! Eventually I think all the stress from work, -I developed permanent diabetes and that was the last straw for me.

I am not sure on your CF treatments regiment and i'm not trying to criticize you in anyway and bless you, but you state your lung function is in the 20's,- to me and to be working seems doesn't seem possible.

Well, it clearly IS possible because I'm doing that. And I realize that "everyone's different", but that's a very shady grey area. I do the same "endless pills, breathing treatments, IV antibiotics, etc." as other CFers, and I make it work. So it's certainly not impossible...

 

[SoyaSauce]

I sent you a PM, if you don't mind, -

 

[SoyaSauce]

Well, it clearly IS possible because I'm doing that. And I realize that "everyone's different", but that's a very shady grey area. I do the same "endless pills, breathing treatments, IV antibiotics, etc." as other CFers, and I make it work. So it's certainly not impossible...

Well not everyone can, and I think SSA needs to know that, not have a ' ONE SIZE' fits all approach, that's wrong.

 

[SoyaSauce]

Also, for the number of CF patients this country has, are FAR lower by the HUGE ratio of the REAL people who take a chunk of SSA, unwed mothers, WICC program recipients, illegal immigrants, these people can work especially- with in the minority groups, as Selme34 said LAZINESS and the USA government doesn't question them.

 

[mgl]

What is the current status of social security and CF under obamacare?

 

[Printer]

Social Security Disability and Obamacare are two separate and distinct functions of the Federal Government. In this thread, we are discussing proposed changes to Social Security Disability. These changes are being proposed in the budget that was introduced in the Republican controlled House of Representatives.

Obamacare, for adults, will not begin to be implemented until October 1, 2013.

Bill

 

[kgfrompa]

This is so sad I know there is no way I can work and with being so sick over and over again I am in trouble.